Surviving lockdown/winter Part 2

I’m back with some more exciting lists lol, although these are a bit more interesting then the last ones.

I wrote two separate lists of activities and self care activities, some do overlap and that’s cool because we all do need to be doing self care everyday and I know its maybe an overused maybe wish washy expression but basic self care is having a shower, feeding yourself, sorting out a bill, doing some laundry all of that day to day boring adult stuff we all have to do is a form of self care. Self care isn’t all about extravagant spa days and buying yourself expensive gifts, its getting those most boring jobs done, because that is you looking after yourself and that’s what self care is about. You know changing the bedding may not feel like an exciting form of self care, but getting into that fresh bedding, feels so so good! The task itself sucks! but what you get from it is what makes you feel good.

I wrote down a list of activities and self care things as I’ve said before I’m quite a visual person so its good for me to have something written down. Also I find some days I don’t know what to do with myself and I find that so overwhelming that I end up doing nothing and feeling even more frustrated with myself, so having a list and a rough plan for the day give me that bit of structure and feels much less overwhelming, so its easier to decide what to do.

Here’s the Daily activities list

Walk the dogs

Blog – Try and write at least once a week

Listen to music and podcasts

Watch tv (I’ll often re-watch stuff I’ve seen a million times which helps ease my anxiety)

Have a day of total rest, do nothing at all and make a cosy resting spot

Online course (not found anything interesting yet)

On rainy days play inside with the dogs, bubbles, balloons, fetch and treat toys

Play on my PS4

Write/draw/doodle/colour/read

But don’t feel the need to fill EVERY second of every day, its ok to rest and relax and keep in contact with mind and body.

Here are my self care activities

Shower in the morning and evening if I feel like it

Make sure I get outside everyday for at least 30 mins no matter what the weather.

Take morning and evening meds and do my sinus rinse twice a day

Journal – Write every evening

Blog

Continue counselling (currently via video call)

Nap and rest – meditation and breathing exercises

Cut hair / bleach and dye it (I find cutting my hair and colouring it very theraputic)

Treat self to something I want

Don’t force myself to eat dinner or cook dinner. If I only want snacks for dinner or a takeaway that’s fine do it!

Do things that make me feel happy and good, don’t force myself to do anything especially if it doesn’t make me feel good.

Make a cosy place on the lounge floor lots of pillows and blankets (my inner child bloody loves this)

Or get comfy in bed and watch films on my laptop with snacks, pillows and candles

Don’t forget to reach out! Take time to message friends and interact on FB groups

Play with fidget toys (they help me to concentrate loads and just help me feel calmer)

Bake cakes/cookies or make bread

Don’t wait to long to take pain killers, take them when I need them, don’t wait till the pain is unbearable

Don’t force myself to be happy, let myself feel how I feel.

Keep on top of hospital appointments, blood tests and medications

Take a day where I don’t reply to notifications and try to not spend too much time just scrolling through social media. Try and do that once a week, just to shield myself from constant negative news

Feel tension in my body and chest, stop take and deep breaths and exhale slowly, do that a few times and slowly unclench my jaw, drop my shoulder and just sink into it the breath

When the evenings start t get darker earlier use the SAD light once a day to help with my mood during the winter months

Regularly wash face masks (I suck at remembering to so this lol)

Use weighted blanket when feeling anxious or just need some comfort

Take photographs and use clip on lenses

Hunt for mushrooms and other autumn things (my new interest)

Take a moment to stop and ask myself what I need in that moment.

That’s all I have written down and some may seem really obvious and simple but our lives and minds are often to busy that the simple things get forgotten.

The most important thing is to find joy in the things you do, even in the boring tasks.

Hopefully this list will be helpful and its something you can incorporate into your life to makes things run better, to maybe help you feel better. Obviously tweak, it change it and make it work for you, these are just my ideas and what’s been helpful to me, but won’t be helpful to everyone.

Peace out

Zak

Shining light

It’s been a few weeks since I last wrote anything and I’m feeling less angry and frustrated then I was in my last blog.

I took the decision to up my trazadone again to help me sleep better and hopefully help me feel less depressed and so far I’m sleeping a better most nights and I’m starting to feel a little better too. I don’t feel so hopeless and so lost in the darkness, I still don’t feel great but I can see the shimmer of light at the end of the darkness, I’ve just got to keep reaching out for it.

I’ve been trying to make little changes to my daily life, that will help continue to make me feel a bit better and to prepare myself for the winter months. Each year I struggle with my mood during the winter and every year it really hits me, so I’ve been trying to prepare myself so its not going to be so much of a shock when it rolls around.

I have written up a rough plan of things to do day to day, some of these things are non negotiable, like take my meds in the morning and evening, getting to bed at a reasonable time things like that. But also to get outside for at least 30 mins each day, especially when the clocks change. As some days I like to just chill and I don’t get dressed until 4pm, which during the summer months is fine as I have loads of time still to enjoy the sunshine. But in the winter it gets dark by 4pm, so I’m going to make sure that no mater how I’m feeling I make sure I spend time outside, soak in that vitamin D from the sun. I love being outside in nature so it shouldn’t be too much of a drag. Even something as small as that I know will make a huge difference to how I feel from day to day.

I love my lists and I’ve been spending nearly every day just writing and writing. One list is of self care stuff, things like washing my face masks regularly as that’s a new thing I need to do better, or using my SAD light every day, listening to what my body wants and needs. Just simple things.

This winter is going to be a tough one as we’re heading into another lockdown and firs time around I found it so hard and winter on top of that is going to bring added stress. But I feel much more prepared this time, that’s why I’ve been writing lists down, mainly as a reminder of things I can be doing to make myself feel better and help me get through this next part a bit easier and I know what to expect now so its not going to be so much of a shock to the system.

I think I mainly operate from my inner child, he’s in charge most of the time. Which is fine but at the moment he’s feeling scared, anxious and unsafe and that’s the main reason I’ve been trying to prepare myself for the winter months to ease the anxieties of my inner child and to make him feel safe. Which he is a bit more settled then he was but he’s still highly anxious and just wants everything in place to feel as safe as possible. Which I am currently working on and I’m not far off having everything ready but I’m not quite finished.

Trying to calm my inner child down has been difficult, but I’ve been trying to listen and trying to identify his needs and what he wants, but it’s tricky as he has complex needs from traumatic events in our life. Slowly I will heal us both, through counselling and lots of patience and self care. I’ve been trying to heal myself for the last 20 years but I’ve never even really scratched the surface until now, I think I’m finally ready to heal. I can’t keep bleeding, I can’t keep letting this little boy hurt, he deserves to feel better now. I want my life to be better now, I want things to be different, I want to break the patterns that I’ve been repeating for the last 35 years. I’m ready to be happy.

One of my self care/regular activities is to try and blog on a bit more of a regular basis. I love writing/blogging and my anxiety/procrastination stops me just getting on with it. I think sometimes I just feel so overwhelmed I can’t physically do anything so I don’t and then I feel annoyed because I haven’t done anything. So I am going to try and make more of a conscious effort to push through the anxiety and sit down and write. I always feel so much better for it, I just need to get over myself and do it! With any luck I’ll be here writing again soon and not with weeks or even months in between posts.

Now I’m sleeping much better at night, I’m getting between 7-9 hours a night, which is much better then the 4-6 hours I was getting, my appetite is a bit better as well. I’m not binge eating sugar because I’m tired. Hopefully I’ll loose a bit of weight now, as I’m not eating half as much as I was, I’m actually eating a proper breakfast every morning as well and I’m trying to eat dinner too, whether that be something I cook or a takeaway at least I’m eating meals rather then just shovelling chocolate into my face all day long.

Getting a good nights sleep for me is so important, it improves my mood, my appetite, I can manage my chronic fatigue better. It’s so easy to slip into bad habits when depressed but at the moment I’m really aware of what makes things worse for me and having all these lists of things will definitely help. Getting into a routine of going to bed at a reasonable time and having a slightly more structured day is slow going, it won’t ever be perfect but I’ve got a good start on it.

Well that’s all for now

Peace out

Zak

A day in the life of a trans guy

Well I haven’t been writing for a long while, although the notes on my phone are crazy long lol. I just haven’t had the motivation or concentration to sit down and write, so I have lots to catch up on. That’s if I can make sense of some of the things I’ve noted down.

Yesterday marked 10 months since having had top surgery, it has gone crazy fast. I can barely keep up with myself. My scars are looking great and I’m just so happy with the results, areas of my chest still feel a bit numb but its slowly regaining sensation. I still have the occasional nipple twinge where I’m assuming the nerve endings are still growing, that is a super weird feeling.

I still feel quite self conscious when I’m out and about, I still feel like I need a hoody so I can hide my chest. I still feel like people are staring at me, that I don’t ‘pass’ well enough etc and I know that’s just my insecurities and gender dysphoria. I also think its down to the ridiculously high standard that is set for trans men to look a certain way and I certainly do not meet the criteria. The expectation is that all trans men are super buff, work out, have muscles and are super handsome. I am non of those things, I’m short with a chubby body and I don’t work out or have muscles. I am currently in the process of loosing a bit of weight to help with my self esteem, body image and my general physical wellbeing, but I will never be a gym bunny.

I will never look like a lot of trans activists out there, who all work hard and look amazing. But there’s not a lot of representation out there for different body types within the trans masc community and I am no where near brave enough to show my chubby body in all its chubby glory on social media, as I am not strong enough to handle any negative criticism, even though I know it may help others feel seen, right now its not something I can do. But hey maybe one day.

I also think the expectation that once you have surgery that the dysphoria will disappear, I think I was under the illusion that it wouldn’t be an issue anymore. I’ve spent so long not feeling comfortable in my skin, that its going to take a whole lot of self love to even being to love this body of mine. I am so grateful for my body, it keeps me alive but I still don’t love my body enough and I don’t even really know what that looks like, as I’ve spent so long neglecting my mind and body that true self love and acceptance is not something I’ve experienced before and not sure how it looks or how it feels. I feel like I’m only just starting to scratch the surface of this self love stuff, I’ve got so much I need to heal first but I’m still trying.

The 12 weekly testosterone shots are going well, I’m 2 years and 10 months on T now which again has gone crazy fast. Only feels like yesterday that I would have done anything to be on testosterone and now here I am nearly 3 years down the line. There where times where I thought I can’t wait, its taking too long, once I knew who I was finally, waiting for everything was absolute agony it was almost like a physical pain, it was unbearable. I am so glad I held on, things get better eventually.

I much prefer the 12 weekly shot to the 3 weekly as my hormones are more settled and I feel less chaotic, then on the 3 weekly shots. My next one is due on a couple of weeks and I’ve got to get my levels checked to see how my body is reacting to the longer lasting testosterone. My sex drive has only just settled down since my last injection lol, it sucks being single and stuck in lockdown by myself. The first few weeks after my shot I’m super hungry and just want to eat everything and I’m horny as hell too, which is so weird. Before testosterone I had very little sex drive, mainly due to being on the medications I’m on, but now its a different story lol! But unlike the crazy appetite which settles down, the high sex drive seems to last a good 9-10 weeks! But self pleasure is a good pain relief, which I can say is true as I’ve barely had to take any of my usual pain meds recently so its not just an old wives tale.

I recently joined a dating website, which feels so embarrassing to even say… that I just want the ground to swallow me up right now lol! Its called OkCupid, which is a LGBT friendly dating site and that was the main reason for joining that specific one. I decided to join as I’ve on dated one person in the last 7 years and that relationship was exactly long, it lasted all of 6 months and it was my first relationship out as a trans guy.

There’s a few downsides to the website, one being that I am shit and describing myself and bigging myself up or even making myself sound in the slightest bit interesting…so I’ve not had any likes yet lol and I’m too scared to message anyone first as I feel awkward as fuck and I’m so shit and inserting myself into other people’s orbit, as I feel like I’m being instantly annoying.. Shit if I could be invisible but still be seen that would be the best lol. So yeah I don’t think my profile is really anything special, it doesn’t really stand out from anyone else’s.

The second downside is that I keep being matched with lesbians… like WTF! Lesbians want to be with lesbians, they do not want to be with trans men, I mean that would make them bi/straight. So that’s pretty annoying, trying to sift through all these hot lesbians and I feel bad for swiping no, although I don’t think it tells you who rejects you which is good.

So yeah I’m trying to get myself out there but its so fucking hard when all I want to do is disappear because I don’t feel worthy enough to be taking up space on this earth. I’m desperate to be seen and heard but I also want to disappear which is such a confusing paradox. But a lot of it is I have no self worth, self love etc and like I said I wouldn’t even know what that feels like, looks like. I’m so used to feeling like this for most of my life, its hard to imagine ever feeling any different. Maybe one day. I’ve got a lot of trauma to work through.

I know I am a bit late but HAPPY PRIDE MONTH! Always live your truth, no matter how hard your light will eventually shine and you can be a beacon of hope for others out there.

Peace out

Zak

Binge eating – Getting back on track

So this subject is something I’ve been avoiding even really acknowledging as it is 100% on me and something I’ve always struggled with on and off. But its not seen as a mental health issue by mental health professionals, which is ridiculous.

I’ve written before about my struggles with binge eating without the purging before and its something that seems to be a reoccurring issues. Winter seems to be when it’s at its worst.

But I decided to write about it again now, as its something I need to recognise and sort out. I need to have more of an awareness of what I’m shoving in my mouth,

Just to jump back the reason its not recognised by mental health professionals is all about BMI, if you aren’t below your BMI, then you don’t have an eating disorder. Now I’m not saying I have a eating disorder but my eating habits aren’t “normal” if you like. I will eat even if I feel sick because I’m still full from eating. It is something I have brought up with the mental health team before and just got brushed aside and at the time there were other more important things going on. So its something I’ve always just dealt with, but the spectrum of eating disorders needs re looking at and re classifying as this area is so important and they are failing so many people.

Anyway, right now I’m feeling full, feeling bloated and generally cannot stand the fact I have let myself put on so much weight. I know I’ve put on over 14lbs, I haven’t weighed myself recently because I can feel in my body and just looking at myself that I am fatter then I would like to be.

It started back in December, when I think I was a bit low, struggling with anxiety and all I wanted to do was hibernate and eat and that’s exactly what I did. But now we aren’t that far away from March and I am still hibernating and the overeating has gotten out of control.

I am just eating for the sake of it, partly because I’m bored, partly out of habit now. I know I can control this behaviour, as I have done it many times before. I know I can loose weight if I need too, I know how to eat sensibly.

I think I’ve had an awareness over this binge eating since probably the start of the year. I knew it was getting out of hand and continued to let it happen.

But I think I’ve been having such huge emotional revelations during counselling, that my binge eating hasn’t been something I’ve actually spoken about as I know I can easily control it. But I’ve been quite emotionally overwhelmed that eating has just been a go to comfort, while I try and make sense of everything.

Now I’m starting to feel sick from being full and over eating, I know I need to get on top of it. I can’t carry on binge eating, I need to stop. It won’t be easy and will be a shock to my body but I need to find a balance again.

For the first few days I’m going to only eat breakfast and dinner and no snack in between and try and drink more and replace drinking water with eating. So every time I want to eat, I have a drink instead and make a more healthy habit. Also make portions smaller too, so I’m not putting so much in my body.

Also intermittent fasting has really helped me in the past as well. Helps get me in the right mind set about it. I never call it being on a diet, because diets never work.

I need to get out and walk a bit more too, in between storms and the rain. But I need to move more and get rid of this belly, cuz its making me feel so gross! It’s not helping with the gender dysphoria as well, just makes me feel shit that I’ve let myself go so much.

I shall post more in a few days and update everyone on how its going. Hopefully I can get in the right frame of mind and get my eating back to a more ordered way to get myself a bit healthier

Peace out

Zak

Still trying – Self care

At the weekend I was feeling really agitated, indecisive and I just didn’t know what to do with myself.

I think I was stressing about not doing enough…by that I’m not sure what. But I think I felt like I HAD to be doing something productive. But really all that pressure I was putting on myself was just stressing me out and making me feel worse then I already did.

So after much stressing and panicking that I wasn’t doing ‘enough’ (whatever enough means) I decided to go to the shop to get some food, to make sure I was eating, I got some fruit but mainly packet stuff that’s quick and easy to eat without much hassle. I then decided to find something to watch on Netflix and that relaxing with my animals for the rest of the day and making sure I ate was more then enough.

That simple change in my perspective changed everything and has actually made this week so much easier. The agitation and stress disappeared and I felt much more relaxed and to my surprise I was able to make decisions without feeling so stressed and felt a bit more motivated.

On the Sunday I took Scrappy to the beach, the weather was really nice so we spent most of the afternoon there, we walked, sat and had snacks, talked with other dog walkers. It was such a nice day and very much needed.

This week has been fairly busy, I’ve done two shifts at the cat cafe, I’ve meet up with two friends and I’ve had a physio appointment.

Today I have done the housework and laundry, I’ve taken the dogs out and then I have rested and listened to podcasts. I’m so exhausted from everything I’ve done this week, I decided it was best to just rest my body and my mind.

I’ve also spent some time sorting through my appointments for the next few months of which I seem to have more then I usually do lol! But I at least know where I’ve got to be and when.

I’ve not had the idiot box on today, only to play music on YouTube while I was doing the housework. It’s been quite nice just to listen to different podcasts, instead of starting at the TV.

That small change in how I feel about relaxing and doing nothing, has really helped me this week. I know I deserve to relax and I should be relaxing, I shouldn’t be pushing my body and I am worthy of self care.

Feeling worthy is so important and something I really struggle with. I often feeling like I am not worthy of anything! I’m working on it and it comes and goes but I’m still trying.

Self care is super important and because I’ve been depressed, I haven’t been looking after myself as well as I deserve. I’m starting again, which is fine, no matter how many times, I stop, start, fall down, I will always get back up and keep trying.

Peace out

Zak

*Insert*Title*Here*

I don’t often write in between my weekly transition blogs, but I feel like I needed to write today, I got things I just need to get out and maybe it will help me make sense of everything.

It’s probably gonna come out a bit all over the place and scattered, but that’s how my brain is feeling at the moment. It probably won’t be strictly transition related but a bit of everything that happening in my life at the moment, so transition, physical health, mental health, family etc…

I can’t even remember the last time I just wrote a regular blog entry, must have been a while ago now.

I literally don’t know where to even start… Ok I’ll start with the good stuff going on, so I can get into the flow of things and unpick my brain as I go along.

My name change is all official now, which is really awesome and feels so good. I am now legally Mr Zak Dyllan Mills! Woohoo! I’ve already changed it at the bank and the doctors and I’ve written some letters too, they just need posting. It just feels really right and just the next part of my transition, I feel much more like me now. Which probably sounds weird as its just a name but for me a name is quite an important part of my identity and how the world views me and how I view myself. So yeah feeling pretty awesome about that.

Last Sunday my new little nephew Alex came into the world, weighing in at 9lbs 3! the lil fatty lol but he’s so damn cute. I already had cuddles on Tuesday with him, he was just so content just laying on my lap fast asleep, he’s so chill. Proud uncle to 3 nephews, which is insane! the eldest will be 9 this year, its just flown by so fast. I absolutely adore all of them.

Physical health hasn’t really been too great this year, I’ve had infection after infection. Over the new years I kept getting nose bleeds, I then had a sinus infection, then last month I had a ear infection and at the moment I’ve had a chest infection for about 3 weeks and I’ve had lots of really bad nose bleeds as well. So I’m not sure what’s really going on, but I went to Southampton hospital this week and he took some blood to see what was happening. As he didn’t want to up the cellcept and make me more immuo-suppressed just in case its just been back luck that I’ve been getting ill and not due to my Churg Strauss Syndrome playing up, but he can’t tell until he gets the results. I’m hoping I’ll hear about the results soon and I’mm also kind of hoping its just been a bad run of luck getting ill and nothing more serious then that. But when nose bleeds are involved I know its more likely to be my condition as nose bleeds were one of my first ever symptoms. I’ll just have to see what happens with all this… I am hoping its nothing serious, I’d rather not up any medication if I don’t have too.

My mental health has been a bit of a mixture recently, its been quite difficult to deal with and I know its made me a bit harder to be around as well. Its not really been the bipolar that I’ve been struggling to control, although fighting with the depression and bad thoughts some days seems like the easy part of it all. I’ve been really struggling with the gender dysphoria, it hits so hard and its overwhelming and intense beyond words. The slightest thing can kick it off and I feel like I have zero control over it, which in itself is kinda frustrating and a bit scary.

Its my chest that is causing all the distress, anxiety and stress. I want top surgery so bad. I’ve never liked my chest, its always made me feel uncomfortable and embarrassed. When the dysphoria hits, I feel so detached, I feel like a ghost, I just want to be as far away from myself and my body as I can get, so I just disassociate but then I find it hard to get back in my body again. It really effects my mood, it makes me feel so depressed and really agitated because I’m not comfortable in my skin, because it doesn’t feel like it belongs to me, its never really belonged to me. I know I have to do some work around acceptance of self etc, as I know surgery will not fix all the emotional stuff but it will ease it. But right now that seems like a big thing to work on by myself.

I’m already starting to stress about summer and the warmer weather, as I get hot easily so it wont be as easy to cover up while remaining comfortable. I’m already aware that its gonna cause me a huge deal of stress and anxiety and it may make me less likely to go out far, I’m already anticipating how I’m going to feel, be etc… So I don’t know how I’m going to handle that and get through it.

Not being able to bind my chest makes it all the worse, I think maybe if I could bind that would take a bit of anxiety and stress out of it, I’ve been still trying on the high impact sports bras as they were the most comfortable out of everything I tried but its still not comfortable enough, especially with my chest problems I experience anyway. Its just so fucking frustrating! and doesn’t seem to be getting any easier to deal with, but the longer I’m on T the worse its getting to deal with and most days I feel pretty agitated and anxious. Its not so bad if I’m just at home and not really going anywhere, but as soon as I’ve got to go out for any period of time, especially on my own then I feel so self conscious, agitated and anxious.

I feel like I’m stuck in a limbo, like life can’t move forward right now and I know I’ve stopped moving forward, I wouldn’t know where to go now anyway. I just feel stuck, waiting for life to start again but I can’t find the button. I know I shouldn’t be waiting for top surgery but that’s what it feels like, I feel like after that then my life can start going again, where too I don’t know. I know my life can be better then it is right now, but I don’t know where I’m going, what I want, what direction, what I should or shouldn’t be doing… I’m in a rut and I hate it. Desperately trying to find things that make me really happy and not much is making me as happy as before. I mean I’m not totally unhappy, but I know things can and should be better, I just lost the drive to find it, I feel lost.

Ok… so maybe I needed to write this a more then I really realised but feels good to get it all out, I can breathe now. Been feeling mostly ok today, as I’ve stayed close to home, I’ve only been out to take the dogs for a run. Have felt so so tired today, I’ve just been chilling and looking after myself. I also finished writing out my ESA forms, I just need to get my paperwork together and then Monday I can post it all off recorded delivery, so they can’t say they didn’t get it. But I’ll sort that out on Monday I think, gonna spend the rest of the weekend just relaxing and looking after myself.

That’s it for now, am getting hungry…bloody steroids lol! Gonna go cook myself some food, although I’d really love a take away but money is low.. so cooking it is lol!

Peace out

Zak

Transition update – Week 21 on T

I’m writing this a day late this week, as yesterday I was having a bit of a hissy fit. So I ended up just sleeping and binge watching stuff on Netflix all day. I totally needed it and felt much better for it, the two previous nights I’d not slept well at all and I think it all finally caught up with me.

The reason I was having a bit of a moment was because at the weekend I had fraud on my card…again! For the 3rd time in about 3 years, its such an inconvenience being without a card. Also for some reason I had it in my head that I was getting paid this week… But I didn’t because I wasn’t due to get paid until next week URGH! I don’t know what happened, or how it happened but I totally mismanaged my money and was left with £8 for a week. I was totally kicking myself and I was so fucking angry with myself, I could not believe I fucked up so baldy. Some of my lovely friends though offered me money which was so sweet of them, but after much agonising I rang my grandparents and asked them for some money, which felt horrible! I hate asking for help and money especially from family. But thankfully they gave me £80, unfortunately £60 of that went straight into the bank for bills… and I’ve already spent the rest on food. But luckily I’m still owed a bit of money from a friend and my mum, so I won’t be totally skint.

So to say I was stressed was an understatement, I just couldn’t get over how I fucked up so bad. I ended up just sleeping on and off all day long, but I totally needed and I feel loads better today.

Anyway back to the transition stuff, I have noticed that the hair on my thighs have finally started growing and looking darker which is cool, the rest of my legs look like a forest and my armpits too, I’m so chuffed.

Yesterday I had my peak blood test for my testosterone levels and I should get my results tomorrow, which will tell me how often I will need to do my injections.

For a few days after my injection last week my appetite increased but that’s settled down now thankfully and from Fri-Mon my mood and energy was way up which felt good! Feeling a bit more settled and chill today and a bit more grounded.

Week 21 on T

^ This weeks picture

^ This weeks video

That’s all for this week,

Peace out

Dyllan

Trying to survived in a messed up system

Where to even start?! I suppose I’ll start with the GP appointment I had on Friday.

I had written some notes down the night before so I could just hand it over to my new GP. It was hard to write as it made everything real, it made me feel vulnerable and exposed. I was already feeling vulnerable and exposed, because on Thursday I was open and honest with someone about how I was feeling and what has been going on and that was really difficult. But I felt heard and I felt cared about.

I walked over to my GP surgery, I hadn’t eaten anything so I was feeling dizzy and sick. I felt so anxious, but I had my notes I’d written down, I’d also brought some blog posts that I had printed out and my wellness journal. My new GP called me up to her room, she came across as quite abrupt, unemotional and not particularly empathetic. It didn’t make me want to open up to her, I just gave her the notes I had written and she read them.

She asked me what was the main problem at the moment.. um like everything! I started with the cellcept, I said to her I am not sorting it out with Southampton, I don’t have the capacity to at the moment, I can’t deal with anymore bullshit right now. It isn’t my responsibility to sort out funding for a medication that I take. They approved my last prescription, so I have two months worth but she didn’t seem like she was going to do anything about it. But whatever..I really don’t care.

She then asked me about my physical health and she examined me, I was so on edge I freaked out a bit when she wanted to listen to my chest. I don’t know why they can’t just do it on the top of my t-shirt and why docs have to actually put the stethoscope on my skin. Because she didn’t make me feel at ease, I was so freaking anxious, it was almost like I felt threatened. I really didn’t want her touching me, it felt so invasive. The weird thing is I am so used to having my chest listened too and never usually freak out.

As per she couldn’t really hear anything but said there was a slight wheeze, my temp was up slightly too and my throat was red. She said its viral but gave me a script for antibiotics anyway.

Finally got around to talk about my mental health, which was the main reason I was there. She asked me some questions but she was so cold about it, she asked me to show her my self harm! I out right refused! in all the years I’ve self harmed which is a really long time, not once have I ever been asked to show where I cut. I was so fucking shocked, she acted like she didn’t believe me. She asked me a few other questions, but I had just shut down by this point I could barely talk. She just didn’t really care and just referred me back to the community mental health team, although I don’t know how long I’m going to have to wait to see anyone… but whatever.

I left this appointment feeling worse then ever. I got home and just sat and cried.

Later on in the day I got an email to say my medical records where ready to pick up and that they would be £10 instead of £50. I walked back into town, got some money out and went back to the doctors. I asked to have a look at these so called ‘medical records’ before I paid for them. But what I found made me so fucking angry, upset and frustrated. These so called medical records, where just printed off from my online records, which I have already stated several times are inaccurate! and there are huge chunks of my medical history missing. Like WTF?! this isn’t what I asked for. There was a few letters in there but only a few and they only go back till last year… Non of these shitty online notes are detailed enough, they’re all coded entries. So will make no sense to anyone other then doctors! The surgery knew what I needed it for! Yes I can use the letters but I need way more evidence, its far too little. Last time was fucking horrific! and the main reason was due to lack of evidence, I don’t want to go through it all again. I can’t go through it all over again.

I was so upset, I was already feeling like total shit from the appointment with the GP in the morning, that I just couldn’t hold myself together and I started crying in the doctors reception, while the lady was sorting out a receipt for me. I decided to pay the £10 as I can use a couple of letters, she suggest I write what’s missing and book an appointment to see a doc to see if they can find what’s missing on my notes.. but that’s a waste of time. There’s huge chunks of stuff that’s missing, so I’m going to speak to patient advice liaison services and see if they can advise me on what to do next.

I am so emotionally drained, I don’t have an ounce of energy left to keep fighting for my life. I feel like I’m just fighting for my survival every day, getting by on a minimal amount of food, because I’m just not hungry. I wake up feeling anxious and lost, I go to bed feeling the same way, there maybe brief moments of relief in between.

I read my GP notes after my appointment, she wrote that I denied being suicidal… I didn’t deny anything because I’m not suicidal! I’m depressed and she writes that I said my cuts are superficial, which they are but to me she’s written it like she doesn’t believe me because I refused to show her. Anyway this is what she wrote.

IMG_E6046

That’s it for now, I needed to get everything out of my head.

Peace out

Dyllan

 

Fractured self

I’m not quite sure where to start, so I suppose I’ll start with the two posts that I posted on Instagram, although I don’t 100% remember posting them. It all seems like a very vague memory, or a story that someone once told me. It doesn’t feel like something I wrote last night, it clearly was because its on my account and I’m the only one that can access it and the posts make sense to how I feel at the moment.

The first one says – Laying in bed feeling sick and dizzy, anxiety has come and ruled today. I’ve barely eaten, I did what I needed to do but in between my mind just wandered away. This dark passenger is following me and he won’t let go of me…this is is a scary place to be.

The second one says – I feel like a fractured soul. I feel like someone flipped off the switch the my brain and disconnected it from my body. I feel no connection. Sometimes I question if what I’m doing is even real, if my life is even real. Just watching myself in my life. I feel like a ghost.

In one regard I love these pictures and what I’ve written because, its raw and its real. But I feel no connection to the posts, even though I know I wrote it, I feel like someone else did.

I also woke up with tiny cuts on the back of my hand, I have no memory of doing them either. Its pretty scary not being aware of what’s happening and then being aware and stuff has happened. Even sat here writing this I just keep spacing out, I can feel myself doing it but I can’t stop it.

I found this picture on my phone too from last night IMG_5992 I don’t remember saving this to my phone, but it describes how I feel quite well.

I feel sad, anxious and disconnected, I don’t know if I can fix it.

I’ve dropped like 2lbs in a few days where I’ve not eaten much, I’m struggling to maintain my weight. What I do eat comes straight back out anyway, the anxiety is messing with my stomach so much, I’ve been taking loperamide (not everyday, just twice since Fri) so that I’m not just shitting everything back out again. The trouble with this is I then don’t really want to eat because I like how I feel when I haven’t eaten anything and when I do eat I feel sick. I ate when my friend came down to stay, it was easier because I didn’t feel too bad and I didn’t want him to see how little I was really eating.

Whys is this all so complex…why does one thing affect everything else? I just want it to stop.

I see my new GP Friday, so see what she says. Will print out my most recent blogs, so I don’t have to really say anything to her. Maybe she’ll send me back the the mental health team, but I’m not overly helpful that they will do anything.

Peace out

Batman

 

Anxiety sucks

I can’t relax. So I thought maybe writing would help.

I’ve been so anxious for the last maybe week or more, but today has been really bad. I’ve barely done anything, I just can’t focus enough to do anything.

A billion thoughts all at once just crashing through my brain uninvited. Non of them helpful and no top of these bad thoughts I have really bad stomach pains, which feel like they did just when my parents divorced. Stress induced stomach ache, I’ve barely eaten all week, just been eating whatever I have in the cupboards. I feel too sick to eat, I just eat so I don’t pass out.

I hate anxiety so much, its so debilitating and can be so hidden too. I can hide it well but inside I’m screaming. I can still do what I absolutely have too but and fake my way through anything, but it doesn’t mean I’m ok. I haven’t had any major issues with anxiety for about 4 years and that was because I chose to stop taking my anti anxiety medication because it was making my moods fluctuate more.

There are good types of anxiety, the good type is where you’re super anxious about meeting someone for the first time but it turns out great, that’s normal healthy anxiety. This anxiety though is not, it makes me feel scared, nervous and defensive, my guards are up because I’m on high alert..although not sure what about.

I just want to close my eyes and for it to all be over, for it to just stop.