A day in the life of a trans guy

Does anyone else just smash the keys until they can think of how to start a blog post?! No.. just me then lol! My brain feel slugish today but still full of things swirling around and around a million miles an hour.

I am due my testosterone shot on the 17th March and holy shit do I know it! A week or two before my shot I turn into such a gremlin! My mood takes a complete nose dive, my anxiety gets sky high and I feel so irritable, like I could hulk out at any moment at the slightest inconvenience. I get so easily angry, when normally I can keep myself together without completely loosing my mind!

I am getting my bloods taken before my shot as I’ve been on Nebido for a year now and for some reason not had the right bloods taken that then endocrinologist needs to see if my levels are right or not. If they’re not then I’ll need my shot more regular then every 12 weeks. I’m hoping they are ok but I’m not sure I should be feeling so shitty and intense before I’m due my shot, so maybe they aren’t quite right. But we’ll see next week to see if the levels are right or not.

My skin also is so bad right now, but tbh its been so bad since my last shot so I’m not sure its related to being due my testosterone. But yeah that’s frustrating me mainly because the spots are pretty sore and seem to just be multiplying. I haven’t had the greatest of diets at the moment, so I know that hasn’t been helping either but really on the list of things it isn’t really high up of priority.

When my mood is this low all I want to do is eat junk and hibernate and that’s pretty much what I’m doing. But it is difficult to distinguish between what is my ‘regular depression’ and what is a mood change because my testosterone levels are low because my shot is due. And if I am being super honest I can’t really remember the last time I felt properly happy and that really sucks to even say but its true. I mean I’ve had small intervals of feeling happy but they’ve been small moments that haven’t really dragged me far out from the darkness.

A lot of this is due to lockdown and being forced to just be in, enforced isolation for such a long period. I’m just totally over it now. It just feels so dark and heavy and seems never ending, like I’m in a tunnel that I can’t run fast enough to find the light again. It’s all just such a big mess of big emotions and I’m just so exhausted with dealing with it all, although some days I just completely shut off, shut down just to recharge a little and have a much needed break from reality.

I am anxious about lockdown lifting as I feel we’ll be back at square one again. Plus my anxiety is just so bad, I’ve never had anxiety about leaving the house and I know that is one thing that is going to be super difficult so get over. Although part of me can’t fucking wait to get out and about again, so I’m not sure how its going to be, just have to wait and see. So much is still so unknown at this point, I don’t know just feels like an eternal nightmare.

So yeah that’s me right now, feeling pretty fragile I suppose. I’m just over it all.

Peace out

Zak

Update on working on myself as a whole

I thought I would do an update on last weeks blog about looking after myself as a whole, rather then just focusing on my mental health.

Last week I focused on moving more and eating better and it was pretty successful, I made a conscious effort to eat more fruit and veggies and different meals, which I do totally feel better for and this week I will continue to eat a more of a balanced diet than I was previously doing. I’m enjoying cooking for myself again, which is something I do really enjoy doing.

I’ve also been using my mini stepper everyday and again I feel better for it. Even though some days it feels like such a drag, I forced myself to get up and move and have definitely noticed a bit of a change in myself. I feel energised after and my brain feels a bit more awake too.

I up my mycophenolate tonight, so I have some tasty meals that I’ve prepped in the freezer just in case I feel sick and exhausted and also I have the covid vaccine on Wednesday so I want to make sure I’m 100% prepared with quick and easy meals and snacks for the next week or so, as its one less thing to worry about if I do feel a bit rough after the vaccine and adjusting my meds a bit.

But I’m going to continue to try and look after myself in a more rounded way but I know this week maybe a bit trickier and that’s ok. I’m not making huge changes and I don’t make myself guilty if I’m not doing what I set out to do. I’m just trying my best and that’s absolutely good enough.

Most days last week I struggled to get up before 11am and some days I didn’t get dressed until late afternoon as I was just resting and my brain was just totally switched off as being in lockdown we are all dealing with something that is having a huge impact on mental health, which is a pretty traumatic event and sometimes your brain just needs a break and switches off and that’s totally fine too. Plus it was so grey and rainy last week I just had zero motivation to get up early because there was nothing really I needed to be up for, I’m not doing anything or going anywhere to getting dressed at 4pm is totally fine.

I’m just rolling with what is good for me, but my mind, body and soul, not just my mind. Overall I am definitely feeling better then I was, although I am feeling super exhausted but that’s not unusual for me lol!

Peace out

Zak

Time to work on my body (as well as my mind

Hey all, how are you finding lockdown this time around? I am overall doing ok, but I’m still struggling a bit, but I am just trying to take things at my own pace and not getting too wrapped up in trying to compete and keep up with what I see other people doing, especially on social media. It’s super easy to compare your life to others and for me personally I can get myself completely lost in another person and just completely abandon who I am because I want to make that other person happy, which that in itself isn’t bad, but losing yourself in the process isn’t great and I also feel guilty about the things I think I SHOULD be doing with my time during lockdown… but ya know most days my focus is on getting through another day, my focus isn’t on the future right now because it is too uncertain.

Having my complete focus on making myself feel safe and comfortable has made other things fall by the way side, which isn’t too good but I can’t do it all. But I do need to find a bit more balance then I have at the moment. I’ve been doing too much sitting around and snoozing and not enough moving around, but its Jan, I find it harder to get motivated to get out anyway because its cold and rainy, however some days I have used that as a bit of an excuse to not bother lol!

So I ordered myself a mini stepper, now I have never been super healthy and fit because of my autoimmune disorder but I was much fitter then I am now before the very first lockdown. Like now I get out of breath putting my boots on which is really bad and I keep getting constipated, I know TMI but I’m here to tell my whole truth and that is partly because I’ve been so lazy regarding cooking different things and I’ve been eating too much sweet stuff, not drinking nearly half of what I usually drink and just not moving a whole lot and all of that has contributed to weight gain and belly issues.

My goal aimed at just loosing weight, I want to get my fitness levels back to where they were before lockdown and in fact probably before I had top surgery nearly 18 months ago now because that’s when the weight started piling on. So hopefully eating a bit better, drinking more water and moving more I will feel so much better over all.

Right now because I keep getting constipated my belly looks like I’m pregnant and that’s partly down to testosterone too as its redistributing fat and muscle, but it does make me feel uncomfortable and doesn’t help with the gender dysphoria. So that’s another big reason I want to try and get healthier.

My goal is to use the mini stepper every day and push myself further each day or every few days, set myself little goals etc as I am quite competitive so I know I can do it.

Keeping up with my walking which is where I get my exercise from has been more difficult during lockdown because I am high risk, shouldn’t really be out or going very far and its had a huge impact on my over all health and mental health so I am really hoping this can help me.

I shall keep everyone posted

Peace out

Zak

Happy New Year – 2021

Hey, how is everyone doing? I hope the first few days of the new year have been treating you well so far.

So far the first few days for me have been fairly good, I haven’t set any new years resolutions for this year, mainly because I feel very soon we will be back into a national lockdown so it seems kind of pointless. Although I do have things I want to aim for and things I want to achieve but I don’t like to share them, or even have them written down, as then I am less likely to do it. It just feels too much pressure to have specific things written down, but I know what I want to do/achieve but also if I don’t that’s totally cool as well because we’re all still stuck in such a weird time and feels like nothings really moving forward very far. I am quite happy with how my life is moving forward anyway right now and even though I initially found lockdown really hard, I am actually really loving my own company, like I am really enjoying it.

New Years day was extremely quite, even though I didn’t actually get to bed that late, I was so exhausted! That all I could manage for most of the day was sleeping and resting, not a terrible way to spend the first day of the new year though. But I did cook up the rest of the veg I had left over from Christmas so it didn’t go to waste, the last of which I will have tonight for dinner, can’t beat a good roast dinner!

Yesterday I did the housework and took the dogs for a walk around the Quay, which I forced myself to do, as it was cold and I was exhausted. But with fatigue its such a catch 22 situation, the less I do the more I’m exhausted but on the flip side if I do too much, I’m also exhausted! So I am making a conscious effort to try and walk a little more every day and try and build my energy levels back up a bit. It’s going to be hard but I’ve done it before, however I am fighting against a under active thyroid as well at the moment, so it may not go quite to plan.

After our walk, I got in and had a rest for a bit before cracking on with some paperwork for my disability benefits. The form filling service needed some information before the phone call, which will help with filling it in, so I spent 2 hours sorting through everything and writing down all the information they needed. I hate sorting through this crap, its so emotionally exhausting and draining!

I treated myself to a Pizza hut for dinner, as I was just too tired to cook or even think about cooking. I had a nice surprise and my friend B video called me, which was lovely as we’d not done that in years! We spent about an hour and a half catching up which was really lovely.

After my video call, it was back to finishing off sorting through the paperwork and I emailed the form filling service with all the information they wanted and holy shit! I felt so much better for having that all done and sorted! The benefits process is so long and draining, but I am so glad I am not doing it alone, because I would just put it off till the last second! Because I hate it so much!

I was so tired after all that I decided to get ready for bed and watched the Simpsons curled up in bed with my 4 fur babies, a perfect way to end a productive day.

Today has been a pretty good day and I am really proud of myself! It was so hard to get going, as its been so cold and grey today, I mean when isn’t it in the UK LOL! But it does make it much harder to get motivated to want to do anything.

I did eventually get myself up, showered, dressed and fed I had peanut butter and honey porridge which I am obsessed with! So tasty and filling. I then got the dogs ready and took them across the road for a run around, Foxy wasn’t overly impressed because she was getting cold. She did what she needed to do and she was done lol. We went back home and the whole time I was trying to decided whether or not to take Scrappy out for a longer walk on his own, but that meant walking further from home… which is something I have been really struggling to do.

We got in and I was going back and forth in my head and decided fuck it! I’m not doing this for me, I’m doing it because Scrappy loves going for long walks and being by the sea. So we went… I did nearly have a panic attack as we got further away from home but I managed to control it and carry on. Once we got down to the sea I felt so much better, I was still feeling a bit tense but I tried to focus on taking pictures and playing fetch with Scrappy. I was just trying to enjoy the moment and watching Scrappy run, play and swim always helps. He’s always so happy whatever he’s doing and that always makes me smile.

I had a great walk with my boy, all be it a chilly walk lol and I am SO proud of myself for pushing myself to get out and not turning back when the panic attack kicked it, but it did not win! We got back in and I made myself a nice cuppa to warm up and curled up on the sofa with a film.

I didn’t come on the laptop to blog initially… but here we are! I still have a few bits to sort out for my disability benefits, which is actually what I came on here to do. I need copies of all the information I need to send, but I still have this evening and tomorrow that I can sort that stuff out. It’s not too much of a rush to get done.

I’m actually feeling pretty good, that walk did me the world of good and also getting so much sorted regarding my disability benefits, I feel like I have some sort of control over the situation.

Life under lockdown has been far from easy but I am so proud that I’ve been able to mange and handle all the change and deal with everything its thrown at me and taken away from and I’ve still come out fighting and smiling. Although some days it does and has gotten the better of me but I mean that’s the nature of living with chronic depression that would happen in any situation. I don’t think my younger self would have been able to deal with this at all, I definitely think that a younger me would have given up, because younger me needed to be around other people to feel like a valid human. Me now at age 35 (very nearly 36) has finally realised that the only person that I need to be happy with is myself, I am the only one I will have a life long relationship with, so it better be a good one! I am valid, worthy and loved all by myself! I don’t need outside validation for that anymore, I know exactly who I am now and I am freaking awesome! I am happy on my own and I know whatever else is thrown at me, I am capable of dealing with on my own.

Here’s a few pictures from the first few days of this year

That’s all for now,

Peace out

Zak

Christmas and New Year 2020 Round up

Wow what can I say about this year… It certainly has been a wild ride, I’ve had to learn how to adapt quickly to new situations and be ok with the things that are completely out of my control and I’ve had to learn how to be ok completely on my own, which has been incredibly hard but interesting.

I’ll jump back to Christmas before continuing with the round up of the year. I thankfully was able to spend Christmas and Boxing Day with my friend, which was good fun. I got some great presents, I cooked a delicious roast dinner, we went for a walk, watched movies, ate and played games. I really had a good time, it was very much needed after such a crazy year.

Yesterday it was announced that we are now in Tier 4 which means sadly my friend can’t come over for New Years.. but thank god for technology! We’ll still be able to chat which won’t be the same but it’s the safest way.

Oh on the 19th Dec disability benefits decided to send me assessment forms! Absolute assholes! They’ve got to be back for 13th Jan, which just isn’t long enough. So I rang up for a time extension.. although its not much better and I booked myself in for a form filling service because I’m not doing it myself, its just too stressful. So all I really need to do now it gather evidence to send off with my assessments. I really don’t understand why they’re assessing me every 2 years, its not like I’m suddenly going to be healed! But whatever… they’ve extended my money until Oct 2021 so hopefully non of my payments will stop which will take a lot of stress out of the situation… But yeah URGH! they suck!

Speaking of my health, this year it has definitely got worse. I not only have Granulomatosis with Polyangiitis, but I have high blood pressure and borderline under active thyroid… and my fatigue has been so bad that my whole body sometimes feels like jelly and I feel so shaky and sick. My fatigue hasn’t been this bad in years and its just so awful, whatever I do I have to have a sit down and rest afterwards, which is really frustrating. I can’t even really explain how bad my fatigue is some days, but I really hate it so much.

Other then all of that I’m actually mentally feeling alright, I’m getting used to being on my own for very long periods of time, not being able to just go out and do anything. It doesn’t really bother me now, earlier on in the year the lockdown and all the change that came with it was extremely stressful because I wasn’t really sure what was happening, what I was/wasn’t allowed to do. But now I feel like I’m more settled, I’m used to not doing the things I would usually do and being home more. I mean in the winter I’m home more then I would be in the summer anyway, so its not so bad. Although there doesn’t really seem to be an end of this in sight just yet, but I’m sure at some point in the new year life can slowly start getting back to normal.

It’s not easy everyday though, some days I’m still finding thigs really difficult. Even simple things like making breakfast feels like a mammoth task, but I do what I always do and just push through. However I am trying to sit more and try and really concentrate on connecting with how I’m feeling because pushing through regardless is easy but doesn’t always acknowledge what you really need/want and can make how I’m feeling worse. So I do try and connect with myself to see how I’m feeling and what I need in that moment. Most of the time what I need is a nap lol! which is easy enough and its actually a good way to have a little break from everything.

I think overall this year has been a good one, despite the strange circumstances that we’ve all found ourselves in this year.

I like a lot of people have experienced loss this year, I lost a friend to Covid-19 and my stepdad also passed away this year, which I don’t think the grief for either has entirely hit me yet, but I think that’s been my brains way of protecting me in order to get through these times safely. I think the sadness and grief has come out when I’ve watched a movie that’s made me cry, which happens quite often as I’m a sensitive soul but that’s ok.

I’ve made huge progress through counselling which I am so proud of! I feel like I can tackle any friendship/relationship and relationship with myself in a much more healthy way and finally healing those deep routed trauma’s, which feels good.

I feel like I’ve changed so much in just 12 months, I am unapologetically myself and I am confident in who I am now and that feels good. For the first time ever I know myself, I listen to myself, I know what I want and need and I know what I won’t put up with and I don’t feel guilty for asking to be treated better. I don’t feel embarrassed to be seen or even to exist, I feel solid.

So 2021, I have no idea what this year will bring and I’m not going into the new year with any resolutions. But I am going to continue to heal and continue on this journey with myself.

That’s it really, see ya all in the New Year.

Stay safe

Peace out

Zak

Surviving lockdown/winter Part 2

I’m back with some more exciting lists lol, although these are a bit more interesting then the last ones.

I wrote two separate lists of activities and self care activities, some do overlap and that’s cool because we all do need to be doing self care everyday and I know its maybe an overused maybe wish washy expression but basic self care is having a shower, feeding yourself, sorting out a bill, doing some laundry all of that day to day boring adult stuff we all have to do is a form of self care. Self care isn’t all about extravagant spa days and buying yourself expensive gifts, its getting those most boring jobs done, because that is you looking after yourself and that’s what self care is about. You know changing the bedding may not feel like an exciting form of self care, but getting into that fresh bedding, feels so so good! The task itself sucks! but what you get from it is what makes you feel good.

I wrote down a list of activities and self care things as I’ve said before I’m quite a visual person so its good for me to have something written down. Also I find some days I don’t know what to do with myself and I find that so overwhelming that I end up doing nothing and feeling even more frustrated with myself, so having a list and a rough plan for the day give me that bit of structure and feels much less overwhelming, so its easier to decide what to do.

Here’s the Daily activities list

Walk the dogs

Blog – Try and write at least once a week

Listen to music and podcasts

Watch tv (I’ll often re-watch stuff I’ve seen a million times which helps ease my anxiety)

Have a day of total rest, do nothing at all and make a cosy resting spot

Online course (not found anything interesting yet)

On rainy days play inside with the dogs, bubbles, balloons, fetch and treat toys

Play on my PS4

Write/draw/doodle/colour/read

But don’t feel the need to fill EVERY second of every day, its ok to rest and relax and keep in contact with mind and body.

Here are my self care activities

Shower in the morning and evening if I feel like it

Make sure I get outside everyday for at least 30 mins no matter what the weather.

Take morning and evening meds and do my sinus rinse twice a day

Journal – Write every evening

Blog

Continue counselling (currently via video call)

Nap and rest – meditation and breathing exercises

Cut hair / bleach and dye it (I find cutting my hair and colouring it very theraputic)

Treat self to something I want

Don’t force myself to eat dinner or cook dinner. If I only want snacks for dinner or a takeaway that’s fine do it!

Do things that make me feel happy and good, don’t force myself to do anything especially if it doesn’t make me feel good.

Make a cosy place on the lounge floor lots of pillows and blankets (my inner child bloody loves this)

Or get comfy in bed and watch films on my laptop with snacks, pillows and candles

Don’t forget to reach out! Take time to message friends and interact on FB groups

Play with fidget toys (they help me to concentrate loads and just help me feel calmer)

Bake cakes/cookies or make bread

Don’t wait to long to take pain killers, take them when I need them, don’t wait till the pain is unbearable

Don’t force myself to be happy, let myself feel how I feel.

Keep on top of hospital appointments, blood tests and medications

Take a day where I don’t reply to notifications and try to not spend too much time just scrolling through social media. Try and do that once a week, just to shield myself from constant negative news

Feel tension in my body and chest, stop take and deep breaths and exhale slowly, do that a few times and slowly unclench my jaw, drop my shoulder and just sink into it the breath

When the evenings start t get darker earlier use the SAD light once a day to help with my mood during the winter months

Regularly wash face masks (I suck at remembering to so this lol)

Use weighted blanket when feeling anxious or just need some comfort

Take photographs and use clip on lenses

Hunt for mushrooms and other autumn things (my new interest)

Take a moment to stop and ask myself what I need in that moment.

That’s all I have written down and some may seem really obvious and simple but our lives and minds are often to busy that the simple things get forgotten.

The most important thing is to find joy in the things you do, even in the boring tasks.

Hopefully this list will be helpful and its something you can incorporate into your life to makes things run better, to maybe help you feel better. Obviously tweak, it change it and make it work for you, these are just my ideas and what’s been helpful to me, but won’t be helpful to everyone.

Peace out

Zak

Surviving Lockdown and Winter

I struggle with the winter months every year and every year the shorter colder days always hit me smack in the face, even though it happens every year. But as I was preparing for another lockdown, I thought it was a good time to include the seasonal aspect to it, as earlier on in the year I was able to go outside more because the weather was nicer but this time of year is a bit colder with more rain, so being stuck inside more can be difficult.

As you’ve probably noticed I like my lists, as lists helps me organise myself and my thoughts, so I wrote several more lists for surviving winter/lockdown.

One list is called Non negotiable tasks, now these are the things I NEED to do every day no excuses.

These are my non negotiable tasks,

Sunday – Thursday get to bed between 11pm and 12 am at the latest

Friday and Saturday get to bed 1am at the latest

Getting to bed at the same time every night helps with insomnia, so if you have trouble getting to sleep try and get to bed and wake up at the same time every day.

Get up between 9am and 10am (not always easy with chronic fatigue but I try)

Every Monday do up medication pill boxes and write down what needs to be ordered

Take my meds in the morning and evening and do my sinus rinse morning and evening

Have breakfast before snacks

Get showered and dressed

Get out of the house with the dogs BEFORE sunset! no matter how exhausted I am.

Now those are the bare bones of my day and things that I do every day and somethings are much harder then others but creating a good routine, especially if you have mental health issues, is super important as consistency creates a sense of comfort and safety which will ease anxiety.

A more in depth list I have is a Rough day to day plan (some of this will be repetitive)

Sunday – Thursday get to bed between 11pm and 12 am at the latest

Friday and Saturday get to bed 1am at the latest

Wake up around 9am – 10am

Do the housework every other day

Take morning meds and do sinus rinse

Have a shower and get dressed

Have breakfast (before snacks)

Walk the dogs – weather and fatigue depending – either a longer walk or just a shorter walk across the road. But get out before sunset

See activities list (yet another list lol!)

Walk the dogs 6pm – 6:30pm at the latest

Between 7pm – 8pm at the latest make dinner or order takeaway.

After dinner have a shower (but not every night just if I feel, cold and achy or fancy one) Put some candles and incense sticks on.

Sit down with my SAD light and journal.

Maybe have a hot chocolate/camomile and honey tea and watch a film or something

Take meds, do sinus rinse and get to bed. (I usually listen to a podcast in bed)

So that is my rough day to day plan which helps give me a bit of structure to each day, now a lot of it is dependent on my chronic fatigue and chronic pain, so I try and keep checking in with myself to see how I’m feeling physically, so I’m not pushing myself and so I can still get things done whilst looking after myself as well.

This may seem quite over simplified but when you’re living with a chronic illness and especially depression, things need to simple. I find having a rough day to day plan written out, which I can go back to look at when I need too, takes a bit of stress out of daily living because I can keep track of the things I need to do.

In another separate list I have the days of the week written out and by each day I write what day the housework is, if I have any appointments, if I need to order medications, make any phone calls, when I need to do food shopping, things like that so that each day the important tasks are highlighted. As I really struggle to prioritise tasks, sometimes I’ll get invested in doing something I really enjoy doing but the boring and often more important tasks get forgotten until its too late then I have to run around and get stuff done which ends up being more stressful then if I had just got on and done it in the first place.

I also have written down when I get paid my benefits and how much and I also have my bills all written out and what comes and when, how much, who its going to etc and this has helped me so much to manage my money! I am really rubbish with money and in the past I have gotten myself into debt because I didn’t know what was coming out and when and now along with online banking, which is great as I’m such a visual person I need to see my money so I can organise myself and again it just takes so much stress and anxiety out of it all.

As I said I’m a really visual person which is why for me writing lists is incredibly helpful and having those visual aids helps things run a bit more smoothly and I don’t get myself into difficult situations with money etc any more because I am more organised.

Being an adult and know how to manage yourself and your life doesn’t come easy to everyone and we all do things differently and for me a routine and lists are the 2 things that help me manage my life on my own and maybe at 35 I should be able to do these things with no problems but when you have over riding things like a chronic illness and mental health issues, simple tasks can be much harder to manage.

I will write another blog with a list of activities and self care things this week coming.

I hope you find this useful

Peace Out

Zak

Shining light

It’s been a few weeks since I last wrote anything and I’m feeling less angry and frustrated then I was in my last blog.

I took the decision to up my trazadone again to help me sleep better and hopefully help me feel less depressed and so far I’m sleeping a better most nights and I’m starting to feel a little better too. I don’t feel so hopeless and so lost in the darkness, I still don’t feel great but I can see the shimmer of light at the end of the darkness, I’ve just got to keep reaching out for it.

I’ve been trying to make little changes to my daily life, that will help continue to make me feel a bit better and to prepare myself for the winter months. Each year I struggle with my mood during the winter and every year it really hits me, so I’ve been trying to prepare myself so its not going to be so much of a shock when it rolls around.

I have written up a rough plan of things to do day to day, some of these things are non negotiable, like take my meds in the morning and evening, getting to bed at a reasonable time things like that. But also to get outside for at least 30 mins each day, especially when the clocks change. As some days I like to just chill and I don’t get dressed until 4pm, which during the summer months is fine as I have loads of time still to enjoy the sunshine. But in the winter it gets dark by 4pm, so I’m going to make sure that no mater how I’m feeling I make sure I spend time outside, soak in that vitamin D from the sun. I love being outside in nature so it shouldn’t be too much of a drag. Even something as small as that I know will make a huge difference to how I feel from day to day.

I love my lists and I’ve been spending nearly every day just writing and writing. One list is of self care stuff, things like washing my face masks regularly as that’s a new thing I need to do better, or using my SAD light every day, listening to what my body wants and needs. Just simple things.

This winter is going to be a tough one as we’re heading into another lockdown and firs time around I found it so hard and winter on top of that is going to bring added stress. But I feel much more prepared this time, that’s why I’ve been writing lists down, mainly as a reminder of things I can be doing to make myself feel better and help me get through this next part a bit easier and I know what to expect now so its not going to be so much of a shock to the system.

I think I mainly operate from my inner child, he’s in charge most of the time. Which is fine but at the moment he’s feeling scared, anxious and unsafe and that’s the main reason I’ve been trying to prepare myself for the winter months to ease the anxieties of my inner child and to make him feel safe. Which he is a bit more settled then he was but he’s still highly anxious and just wants everything in place to feel as safe as possible. Which I am currently working on and I’m not far off having everything ready but I’m not quite finished.

Trying to calm my inner child down has been difficult, but I’ve been trying to listen and trying to identify his needs and what he wants, but it’s tricky as he has complex needs from traumatic events in our life. Slowly I will heal us both, through counselling and lots of patience and self care. I’ve been trying to heal myself for the last 20 years but I’ve never even really scratched the surface until now, I think I’m finally ready to heal. I can’t keep bleeding, I can’t keep letting this little boy hurt, he deserves to feel better now. I want my life to be better now, I want things to be different, I want to break the patterns that I’ve been repeating for the last 35 years. I’m ready to be happy.

One of my self care/regular activities is to try and blog on a bit more of a regular basis. I love writing/blogging and my anxiety/procrastination stops me just getting on with it. I think sometimes I just feel so overwhelmed I can’t physically do anything so I don’t and then I feel annoyed because I haven’t done anything. So I am going to try and make more of a conscious effort to push through the anxiety and sit down and write. I always feel so much better for it, I just need to get over myself and do it! With any luck I’ll be here writing again soon and not with weeks or even months in between posts.

Now I’m sleeping much better at night, I’m getting between 7-9 hours a night, which is much better then the 4-6 hours I was getting, my appetite is a bit better as well. I’m not binge eating sugar because I’m tired. Hopefully I’ll loose a bit of weight now, as I’m not eating half as much as I was, I’m actually eating a proper breakfast every morning as well and I’m trying to eat dinner too, whether that be something I cook or a takeaway at least I’m eating meals rather then just shovelling chocolate into my face all day long.

Getting a good nights sleep for me is so important, it improves my mood, my appetite, I can manage my chronic fatigue better. It’s so easy to slip into bad habits when depressed but at the moment I’m really aware of what makes things worse for me and having all these lists of things will definitely help. Getting into a routine of going to bed at a reasonable time and having a slightly more structured day is slow going, it won’t ever be perfect but I’ve got a good start on it.

Well that’s all for now

Peace out

Zak

trauma – Parts work

I posted last week I think about childhood trauma, but I missed a big chunk out. I didn’t come to mind at the time, but as I’ve mentioned before my memory has huge chunks missing and things that aren’t in order and that’s got much worse over the years and I think that’s mainly cuz I’ve been getting closer to the source of the trauma, maybe its ready to start healing. Finally.

So when I was about 7 years old I started getting ill (I’m not sure if that age is accurate, but I know I was in first school) I think it started with asthma like symptoms and in fact I ended up having a asthma attack as all my x-rays would come back clear and I have the same issue now, I can have a chest infection and doc’s can never really hear anything until I cough. So In was treated for asthma, I then started having nosebleeds that would last for what felt like hours at a time and because I was young and the shape of my nose wasn’t right they would never cauterise my nose to stop the bleed. It then progressed to joint pain and fatigue but as was young most doctors didn’t really know what was wrong with me.

By the time it came to the year 2000, which was the year after my parents divorce (I think) I was diagnosed with an auto immune disorder, for which I was given heavy medications and their side effects were just as brutal as my illness itself. I was given no support for my mental health, I was given no extra support at school even though I had to take a lot of time off. I was given this huge life changing condition and I just had to manage it myself and that wasn’t easy.

At school I was always different, always the outsider and dealing with a auto immune disorder, did me no favours. I was already struggling with my mental health and this only impacted on it. I thought my life was over, what I wanted to do with my life was taken away from me, well I had no clue what I wanted to do with my life, but now everything seemed pointless. I’d already given up on my life at that point and to be honest I feel the same way, just a ghost going through the motions until I die. (PSA No I am not suicidal, just tired of existing, wanting this pain to end, not to be dead)

Childhood/teenage years are pivotal for the person you grown into as an adult and some who suffer trauma in those years can because stuck there, or parts of your inner system can become stuck in a certain mode as a way to protect that child.

I have been reading about ‘parts work’ or internal family systems model and holy shit did my protective child go crazy when I read about the protective child, why they are formed and how they can be changed to be more in balance. I felt physically weird reading that part, I definitely disassociated, felt itchy and uncomfortable and had to stop reading, so I could get up and move around. I ended up having to do something else as my protective child wasn’t ready to be reading that stuff, especially as its only been in the last week that I’ve verbalised to another human that yo this trauma is the source of this pain that isn’t shifting no matter what I do, I need to heal this pain first.

But I know that this protective child is protecting not just me but other deeply hidden pains and I know that this is going to take a while to work through and its not going to be easy or comfortable but I want to heal properly now, I think I’m finally ready to be vulnerable enough to dig through this pain and trauma that’s trapped within. I want to feel more balanced, I want to feel happy, I want to let this stuff go. I want to be able to fully accept myself and I want to self to take its place, I want to stop coming from a place of hurt and self preservation because that’s not helping me.

I want to stop hurting, because its getting to hard to keep carrying on my own. The load is too heavy now, I only end up bleeding on everyone, that’s why I can’t break into any friend circles, I don’t want to be alone anymore.

But for now at least I know that 95% of the time protective child fronts to protect me from the world because that’s what he’s had to do for so long. I wish I could hold that little kid and tell him its going to ok, those nights I would cry in bed at night, all alone. I’d never let myself be emotional or cry in front of anyone, I’d hold it in until I was alone. I do the same now, I could do with a hug now, someone to tell me I’m going to be ok.

I may not be where I want to be, or where I think I should be, but I’m finally starting to understand myself a little better. It’s never too late right?!

Peace out

Zak

Living with a Chronic illness

Having a chronic illness is hard work, especially at the moment, with the current pandemic. As I’ve mentioned in previous posts I am classed a vulnerable and I’m meant to be staying inside for 12 weeks, but I’ve had to go out for various reasons.

Now I have finally been given a priority delivery slot with Tesco, which means I don’t have to go into any shops to get my food shopping. There’s also a service provided by the council where someone can pick up medication for me and do any other bits I need doing. Which is a relief as I was starting to get more anxious about going food shopping and collecting medications myself.

So now I have things in place for essentials I can relax a bit more, the only thing I’ve still been doing myself is walking the dogs as I need to get out an exercise as I’ve been really feeling the effects of not moving around as much as normal. I didn’t realise that just by getting out each day, doing general stuff like food shopping, going to hospital appointments, going to the cinema etc was so good for my physical health. In the last few weeks since everything has closed and I’m stuck in the local area, my joints have been super painful, especially my lower back and knees and my chronic fatigue has been much worse as well.

I’ve spent many years building up the strength in my legs to combat the chronic pain in them and same with chronic fatigue, I’ve spent years building it up to a point where I rarely needed to rest or sleep in the day time. But now I feel like I’m back at square one, which is really frustrating.

Now I’m have more clarity about dog walking, I’ve been out walking more, so I can build myself back up again, so I can feel a bit more human again and have a sense of well being.

Yesterday I had to have a 24 hour blood pressure monitor, as my blood pressure has been quite high recently. I think its mainly down to anxiety and possibly the change in testosterone. I don’t know why they haven’t prescribed propanaolol yet, it’s a beta blocker but also helps with anxiety. I get the results next week and I’m going to ask about the beta blocker as I think its probably the best course of action.

The blood pressure monitor went off every 20 mins, which was really annoying lol as I had to stand still when it was taking my blood pressure because it didn’t read it if I was moving around. Then in the evening from 10pm it went off every hour. I went to bed at midnight in hopes I would fall asleep before it went off again. I managed to get comfortable and I managed to get to sleep, I was conscious a few times throughout the night of it going off to take my blood pressure but apart from that I slept pretty well lol! The world could be ending and I still be asleep haha!

A couple of weeks ago they did an ECG which was fine and some blood test and only one flagged up as a not normal. Turns out I am borderline under active thyroid, which really makes sense, I’ve put on weight recently which I’ve been struggling to loose. They’ll repeat the bloods again in 3/4 months time to see if it’s still the same or its sorted itself out. Hopefully it will have sorted itself out by then, as I really don’t need anymore illnesses on top of what I’m already dealing with at the moment.

It’s been really difficult dealing with everything at the moment, but I am trying to keep a sense of normalcy. Each day is different, some days are much easier then others and that’s ok, just trying to go with the flow and trying not to push myself.

Well that’s it for now,

Peace out

Zak