Vasculitis sucks! – living with a chronic illness

Yesterday was so long and exhausting, not only did I have to go to Christchurch hospital but I also had to go to the chemist in Bournemouth hospital… but that’s a whole other story.

Yesterday I saw a vasculitis nurse because I’ve been having nosebleeds and I’ve had a chesty cough for a few weeks.

But this nurse wasn’t qualified to write a prescription and she wasn’t qualified to listen to my chest. It was all very frustrating because as my bloods, blood pressure and pee sample we’re all fine there wasn’t much she could do…

So she ended up calling in my Doctor to listen to my chest, which of course was clear. But he gave me a prescription for antibiotics as I have been coughing up green crap so that’s indicative of an infection, but I have no other real signs then that. He also is going to refer me to another ENT doctor as my current one is a jerk! Last time I saw him I was really ill but because my nose looked fine then I must be fine… so hopefully a new ENT doc will be more thorough.

The only good thing the nurse did notice with me is that I’m not steady on my feet and she asked me questions about my legs and I explained my knees bend back and both knees turn in and as a child I had my shoes built up by the hospital and had special in souls made as well, but I’ve had nothing as an adult other then physio on my legs. So she’s going to refer me to a physiotherapist, which is cool and a pediatrist to have a look at me, although I’m not sure in souls will fix this problem but we’ll see what happens. I’ve had problems since with my legs since I was born so I’m not sure how much these appointments will help, but I can only go and see.

After I got my prescription they said I needed to go to the boots in Bournemouth, so I assumed they meant in town, but what they didn’t say was they meant Bournemouth hospital.

I got to the boots in town and they said I needed to go to Bournemouth hospital. I was so angry because by that point I’d been up since 6 am, out since 7:45 am and it was now midday and I was absolutely exhausted and in so much pain with my joints.

I had to wait for half an hour for the bus and when I got to the hospital I was waiting for about 25 mins for my meds.

I didn’t have to wait too long for the bus back but that took an hour. M

I slept for a bit when I got in, which was much needed.

I’m hoping the antibiotics work and my chest feels better and hopefully these nose bleeds will stop.

On top of all that my gender dysphoria was bad but I’ll leave that for another blog.

Peace out

Zak

Transition update – Week 29 on T

This week I have some big news! But before I talk about that I’ll talk about other stuff that’s transition related.

This morning I had a blood test to check my testosterone levels, this is the trough which means that my testosterone levels will be at their lowest. I then had my testosterone injection done, which went well. Next Tuesday I have another blood test which will be the peak of my testosterone levels and from that they can work out if my levels are too low or high enough. I’m still not convinced that my levels will be high enough but I’ll find out next week.

Again no massive physical changes going on, other then my hair on my face, chest and stomach is getting darker which is really cool. I’ve still not had the confidence to start shaving yet but I’m in no rush. Voice is definitely starting to change, it sounds more noticeable to me now, so that’s pretty cool and others are starting to notice it too.

The gender dysphoria hasn’t been too bad over the last few days, that’s mainly because my mood has lifted a bit, which makes everything a lot easier to deal with. I feel like I’ve got a bit more positive energy going on. I felt a real energy shift on Saturday and I’ve been feeling really calm and peaceful, it feels so nice.

I’m ill yet again at the moment, I have a chest infection so I have more antibiotics and a higher dose of steroids. Hopefully it will kick it soon, I’ve had a high temperature, I ache so much and my chest has been really sore. I’m anticipating a bit of insomnia though being on 35mgs of steroids, hopefully it wont be too bad.

So the big news! which I have left till last on purpose. 9 years ago before I even realised I was trans, I changed my name to Dyllan. I wanted to change my name as I’d always hated my birth name, it never felt right, it never felt like it was me at all. I always felt disconnected from my birth name. I purposely picked Dyllan as its the unisex was of spelling it and I was so sure I wanted a unisex name, but I couldn’t tell you why I wanted a unisex name, I just did. Now it all makes sense as to the why I did what I did.

Recently I have been thinking a lot about my name and how I want to change it to a masculine name, rather then have a unisex name. Since starting testosterone and having physical changes to my body, I’ve been wanting to move away from everything associated with pre-transition. So I have decided to change my name to Zak, its a name that I’ve always loved and it was the name I really thought about a lot when I changed my name to Dyllan. My middle nephew Leo’s middle name is Zack, so it’s cool we’ll have that little connection.

I told my bro and sister in law the other day and they’re both happy about it. My bro said oh well least I can spell that! lol!!! and I’ve told all my friends and had a good response from everyone which is really awesome. I ordered my deed poll yesterday morning, I’m super excited and it shouldn’t take too long to sort out.

The only people I’ve not told yet is my mum and grandparents… But mother is never happy with anything I do in my life, so I know she won’t be happy. I’m not sure how my grandparents will react. But I’m already anticipating a negative response but in all honesty their opinion really means nothing to me. We have no emotional connection, yes we are family but they’re like strangers to me.

Anyway I’m super happy with my new name, it feels so good and feels really right. It feels like the natural progression of my transition, the next step. I feel really content and peaceful and I’ve not felt like that in a few weeks, so its a nice relief.

That’s all for now 🙂

Week 29 on T

^ This weeks picture

Week 29 on T comparison pic

^ Can’t believe how different I look! so awesome

^ This weeks video

Peace out

Zak

Trying to survived in a messed up system

Where to even start?! I suppose I’ll start with the GP appointment I had on Friday.

I had written some notes down the night before so I could just hand it over to my new GP. It was hard to write as it made everything real, it made me feel vulnerable and exposed. I was already feeling vulnerable and exposed, because on Thursday I was open and honest with someone about how I was feeling and what has been going on and that was really difficult. But I felt heard and I felt cared about.

I walked over to my GP surgery, I hadn’t eaten anything so I was feeling dizzy and sick. I felt so anxious, but I had my notes I’d written down, I’d also brought some blog posts that I had printed out and my wellness journal. My new GP called me up to her room, she came across as quite abrupt, unemotional and not particularly empathetic. It didn’t make me want to open up to her, I just gave her the notes I had written and she read them.

She asked me what was the main problem at the moment.. um like everything! I started with the cellcept, I said to her I am not sorting it out with Southampton, I don’t have the capacity to at the moment, I can’t deal with anymore bullshit right now. It isn’t my responsibility to sort out funding for a medication that I take. They approved my last prescription, so I have two months worth but she didn’t seem like she was going to do anything about it. But whatever..I really don’t care.

She then asked me about my physical health and she examined me, I was so on edge I freaked out a bit when she wanted to listen to my chest. I don’t know why they can’t just do it on the top of my t-shirt and why docs have to actually put the stethoscope on my skin. Because she didn’t make me feel at ease, I was so freaking anxious, it was almost like I felt threatened. I really didn’t want her touching me, it felt so invasive. The weird thing is I am so used to having my chest listened too and never usually freak out.

As per she couldn’t really hear anything but said there was a slight wheeze, my temp was up slightly too and my throat was red. She said its viral but gave me a script for antibiotics anyway.

Finally got around to talk about my mental health, which was the main reason I was there. She asked me some questions but she was so cold about it, she asked me to show her my self harm! I out right refused! in all the years I’ve self harmed which is a really long time, not once have I ever been asked to show where I cut. I was so fucking shocked, she acted like she didn’t believe me. She asked me a few other questions, but I had just shut down by this point I could barely talk. She just didn’t really care and just referred me back to the community mental health team, although I don’t know how long I’m going to have to wait to see anyone… but whatever.

I left this appointment feeling worse then ever. I got home and just sat and cried.

Later on in the day I got an email to say my medical records where ready to pick up and that they would be £10 instead of £50. I walked back into town, got some money out and went back to the doctors. I asked to have a look at these so called ‘medical records’ before I paid for them. But what I found made me so fucking angry, upset and frustrated. These so called medical records, where just printed off from my online records, which I have already stated several times are inaccurate! and there are huge chunks of my medical history missing. Like WTF?! this isn’t what I asked for. There was a few letters in there but only a few and they only go back till last year… Non of these shitty online notes are detailed enough, they’re all coded entries. So will make no sense to anyone other then doctors! The surgery knew what I needed it for! Yes I can use the letters but I need way more evidence, its far too little. Last time was fucking horrific! and the main reason was due to lack of evidence, I don’t want to go through it all again. I can’t go through it all over again.

I was so upset, I was already feeling like total shit from the appointment with the GP in the morning, that I just couldn’t hold myself together and I started crying in the doctors reception, while the lady was sorting out a receipt for me. I decided to pay the £10 as I can use a couple of letters, she suggest I write what’s missing and book an appointment to see a doc to see if they can find what’s missing on my notes.. but that’s a waste of time. There’s huge chunks of stuff that’s missing, so I’m going to speak to patient advice liaison services and see if they can advise me on what to do next.

I am so emotionally drained, I don’t have an ounce of energy left to keep fighting for my life. I feel like I’m just fighting for my survival every day, getting by on a minimal amount of food, because I’m just not hungry. I wake up feeling anxious and lost, I go to bed feeling the same way, there maybe brief moments of relief in between.

I read my GP notes after my appointment, she wrote that I denied being suicidal… I didn’t deny anything because I’m not suicidal! I’m depressed and she writes that I said my cuts are superficial, which they are but to me she’s written it like she doesn’t believe me because I refused to show her. Anyway this is what she wrote.

IMG_E6046

That’s it for now, I needed to get everything out of my head.

Peace out

Dyllan

 

Transition update – Week 6 on T

I missed updating on week 5 as I just didn’t have the time, as I mentioned in my last post I was at my friends place looking after her two boys and her dog, along with my two dogs.

I thought I would have time but looking after kids is hard work, there’s school runs, cooking, tidying up, homework…urgh homework! etc and on top of that they gave me their germs, it started off with a cold but now I’m on antibiotics for a chest infection.

The change I started noticing last week was dark hairs growing on my chin, which is pretty cool. I’ve tried to take a picture of it but haven’t been able to get the right angle or lighting. I already have a pretty dark moustache area, I always have done and I used to get bullied a lot about it at school but I have noticed that my moustache area has got darker and the hairs are coming further down which is all cool by me.

I don’t think I’ve ever examined my face as much as I have since starting testosterone. I’m constantly looking at myself, looking at and squeezing spots that are all over my forehead, constantly checking for hair in the beard area. It’s funny because I’m not a huge fan of looking at myself in the mirror but now I’ve just been scrutinising ever inch of my face, several times a day.

Week 6 – I’ve not noticed any new changes, its hard to notice if my voice has changed much because of my chest infection and I just sound like I’m ill.

Since starting T my mood has been pretty good, I’ve had a few up and down days but nothing major. Today my mood has been pretty shitty, I think I woke up feeling in a bit of a funk but the days events just haven’t helped how I’ve been feeling at all. I just tried to ignore how I’ve felt and just carried on but as the day went on and things irritated me. The more things irritated me the more I’ve felt really fucking frustrated and angry, yeah I get moments when I’m angry and frustrated but I usually get over it. Today I just feel low and irritable and I can’t seem to get out of it. I’m notching it up to the testosterone and its ok to feel low and irritable and after all I have a chest infection so that is probably impacting on my mood as well. I’m feeling more tired, more achy and just feel ill right now, I just need to look after myself and do things that are good for me, like resting, napping, meditating, reading, being outside in nature with the dogs, eating well, the usual self care stuff.

Anyway below is a pic of last week and this week

Week 5 on T

^ Week 5 on T

Week 6 on T

^ Week 6 on T

Peace out

Batman

I am still a work in process – update on life.

WOW so it has been a long old few weeks since I last posted and a lot has happened.

First of all I would like to say that I cannot believe I have kept my shit together, despite all the trials and tribulations I have been through recently. If this was to happen to me say 4-5 years ago then I would have lost my shit ages ago and I would have self harmed A LOT! But I have kept as calm as I could and I’ve not self harmed at all, which proves to me that I’ve grown and that I do not fit the BPD diagnosis any longer.

Um so where to start….

So Scrappy had another trip to the vets last week as he was still poorly but not as bad as his first trip to the vets, so he was given something to balance all the good bacteria in his stomach and it worked really well and he was back to his usual self in no time at all. The vet suggested he be muzzled when he’s out to prevent him from eating shit he’s not meant too. My friend took us to get him a muzzle and it will be ok for now but he can get it off but hopefully he’ll get used to it. All my other fur babies are absolutely fine 🙂

Medical stuff – I saw my new ENT doc and he was ok, he has ordered me a CT scan of my sinuses to see where we go from there and antibiotics until we know what the next step is. He also did me a letter for my PIP.

I also saw my GP and he is doing my referral to Dr Edwards in Southampton hospital! woohoo! FINALLY! He also gave me some naproxen for me knees as they keep swelling up and are really painful.

Disability benefits stuff – So I have been working really hard on writing my appeal as the Personal Independent Payment people have refused my mandatory reconsideration, I feel I was penalised because it was in late, which was not in my control as I had a charity helping me and it was their responsibility, I have since had an apology from the charity but I am still planning on making a official complaint about it. But anyway the appeal has been written and amended by someone who knows what the requirements are etc and its absolutely spot on. It’s all slowly coming together and I will be able to post it on Monday.

Sorting this out has had a huge impact on my physical and mental health and my ability to do anything. I’ve missed a lot of my groups and counselling, I’ve been quite isolated and lonely. I’ve struggled just to do day to day tasks because I have been so tired, in so much pain and feeling far too overwhelmed, even taking a shower feels too much. It has certainly taken a massive toll on me and this whole process has been a huge trigger for the deep routed anger that is inside me.

This whole process has brought up a lot of stuff and has bought up a load of thoughts about all the times I’ve been let down by nearly everyone in my life, at every crucial moment in my life. My core memories aren’t all happy, great memories, they are mostly negative with a bit of trauma thrown in. I am feeling a lot of anger and I don’t know how to get rid of it in a normal healthy way, I know I am on the right path because I know I need to do something about this anger in a healthy way and my behaviour hasn’t been destructive at all, which is a vast improvement since I completed DBT. I just need to work out how to process it, where to start, what do I do?! I will meditate on it, look up ways to process deep routed anger and see where we go from here. I think though I need to stop fighting and rest, my fight, flight or freeze is stuck in fight mode just to get me through all this but, I need to stop for a bit, stop fighting and just be, that will be easier said then done, as I have spent a lot of time in fight mode recently just to get through each day!

How do I feel right now? I feel emotionally, physically, mentally and spiritually exhausted. I need to rest and I will, I need to tend to all my needs and listen to my inner child and what he needs, this reminds me I want to learn more about this and re-parenting my inner child etc.

Just writing this has helped a bit but now I need to eat something and sleep 🙂

But just before I go, here are a few pictures of me and my babies ❤

^^ Marley Moo

^^ Harley playing with her new toys that my lovely friend made 🙂

^^ My beautiful Foxy girl

^^ My photography

^^ Scrappy doodles love swimming in the sea 🙂

^^ Me, I actually quite like this picture of me.

Peace out

Batman

Feeling more myself and ready to fight!

It’s been another week since I last updated but I am feeling more myself now, so that’s a good improvement from my last post. I can’t even describe how I felt then, I just felt weird and not myself at all. I feel more grounded and settled now as well which has helped me feel more myself again.

I did some guided meditation to help ground me again and I listened to beach noises at night to help me get a more restful nights sleep. Its crazy how it helps so much, just sitting and being in the moment has helped me more then any medication has.

I’m really tired, so I’m struggling to be think of what to write. I hate brain fog so much, it’s so frustrating.

So I’ve had a really good busy week, spent most of it with L and the boys which is always good fun but absolutely exhausting.

Got my sinus infection back again after my two week course of doxycycline. Just over a week until my appointment with my ENT it still feels so far away though. My nose and my head really hurts all time 😦

My man boobs are still swollen and sore which is making the gender dysphoria much worse to deal with because I really don’t feel manly at all. I’ve not been able to bind at all because my chest is just too sore, which is frustrating.

I’m feeling the effects more and more of not being on methotrexate, I’m much more exhausted then usual, after a afternoon out yesterday all I’ve done today is sleep. Also yesterday my knee was swollen, it was so sore and felt really uncomfortable. Its been hurting for a while but I’ve just ignored it, I think it might be time to get it looked at now.

Had some more shit fucking news regarding my disability benefits, they’ve refused my appeal! So this means I now have to take them to a tribunal ffs! I just don’t have the energy for this shit, I really don’t. But I’ve got to keep fighting this because I deserve these benefits because I am ill and unable to work. Its an absolute joke it really is, having to jump through all these hoops just to receive money to survive. This is governing my entire life right now, its all I think about, worry about, talk about. But its important because its effecting me so much, I am a strong boy I can deal with this, like I deal with everything else.

Mr Scrappy has been poorly today, he’s been throwing up this afternoon but he’s been stopped now for an hour or so. Hopefully its just a bug he’s picked up and he’ll feel better in the morning. He’s been like this a few times before, so I’m not overly worried about him, he’s probably just picked up a bug.

Ok lets lighten this shit up a bit lol, um so had a text the other day to say I can upgrade my phone 3 months early, OH HELL YEAH! I was bang straight on it and got myself a iPhone 6, I am loving it, I can’t stop playing around with it and the case feels really nice, I can’t stop touching it lol.

I’ve got a good week ahead of me, so I wont be at a loss of what to do. I am having my eldest nephew tomorrow for a bit which I’m really looking forward too, as I don’t get to spend a lot of time just me and him.

So yeah that’s me, life is mega frustrating right now but when isn’t my life complicated huh…. never lol.

I think if I hadn’t got the early upgrade on my phone then the denial of my appeal for disability benefits would have pushed me over the edge, I somehow feel refreshed and energised because I’ve been bursting for an upgrade and it made me feel so happy. Its hard to put into words that make any sense but I feel ready to fight again, I know I can win this and I am totally up for the fight. I’m definitely feeling more myself 🙂

^^ Scrappy and Foxy enjoying the beach

^^ Found this cool sand art 🙂

^^ My beautiful Marley moo

^^ Scrappy enjoying the sun by the river

^^ Foxy girl enjoying the sun 🙂

Well that’s all for now, I’ll try update sometime this week.

Peace out

Batman

Just one big vicious circle….

Ah what to write that is not along the same lines as what I have been writing so far this year and well last year… My life ladies and gentlemen is one HUGE vicious circle that I cannot stop and I fucking HATE! I don’t want to be in this circle any more! I want it to end NOW! 😦

Enough said right there ^^

I’m just SO over this all. Yet AGAIN I am on antibiotics for ANOTHER fucking sinus infection! Like I don’t suffer enough without this bs going on. Oh and I had a full on nose bleed last night..yeah it woke me up for like an hour :/ but felt much longer as all I wanted to do was sleep. Nose bleeds for me are a warning sign that something is wrong not that the Dr that saw me gave a fuck about anything I had to say, she just wanted to get me out the office and done with..

I am so sick of this fucking situation, I just want a break. Tomorrow I get to spend the day chasing people up and sorting shit out…Oh I cannot wait to do that! NOT! That in itself takes some much energy and emotional stress. I definitely need a secretary! I also need a sugar mumma Tongue Out that would make all this MUCH easier..but alas that is just a dream.

My life is right now is, antibiotics, other pills, chronic illness, chronic pain, low mood, benefits, phone calls, appointments, money worries…and it just goes around in a circle, the antibiotics finish and soon after the sinus infection comes right back again. I’m so sick of thinking about it, sick of this being my life! and as I am sat here writing this my nose is bleeding again..ffs! At least its not a heavy one but its still not a good sign, definitely think I am having a flare up right now.

I had to miss group again today, one because I had the doctors this morning and two because I just felt too ill to go anywhere. But I did get a call from My health My way, which is like a support place for people like me with chronic health issues. The lady was asking me for more details about me and my situation and said someone will contact me again, so that’s good. I hate missing group so much as its a lifeline of support and its not on next week due to annual staff leave..ah such bad timing but it is what it is I suppose.

Right now I am struggling to see any positivity or any hope that things will get better, or that I will get better. Its hard to keep my mood on a level as I’m standing on the edge of that black hole, my feet right over the edge, I have nothing to grab onto to stop me from falling in.

If my life were to be put on the scales then they would certainly look unbalanced and almost ready to topple over, I need something to help re-balance everything, but I don’t know what that would be or even look like. Everything just looks so bleak and black, like the colour has been drained out of my life. I certainly feel that if I were a colour I’d be black, mainly because that’s how I feel and because good days are extremely rare. Good days look like bright, colourful and happy, like purple, yellow, pink, orange, blue and other such wonderful colours, I miss good days, I hope I get one again soon.

I tried not to write about the same BS over and over but..well unfortunately my life is fucking BS right now and I have nothing else to talk about 😦

How do I feel right now? I feel tired, my body aches so much and I feel a bit low and empty.

I’m so glad I have the unconditional love of my 4 beautiful fur babies ❤

 and a picture of me 🙂

Peace out

Batman

Tired and achy but feeling happy

Right now I’m too tired to write but I am too tired to move and do anything else… I’m just glad I got through another stressful week with minimal damage.

I’m still not feeling any better then I felt on Thursday, still exhausted, achy, snotty and chesty. I can’t wait to see the nurse tomorrow and get some antibiotics for a bit of relief.

Today my arm and hand that I fractured last year has been so achy today, my thumb is the worst it proper hurts. May need to wear the splint for a bit as a bit of support. But I’ll talk to the nurse about it tomorrow.

Friday I spent relaxing and looking after my needs, which I totally needed. I took the pups out for a walk, it was windy and raining but it was actually quite nice. Not one single person was down where we walked, felt like the only person in the world. Loved feeling the wind and rain on my face, made me feel alive. The pups needed a good run around as they’d not been out since last weekend. After I just spent some time watching TV and then played on the PS3 until dinner. I had gammon for dinner with dumplings and veg, it was so nice and even though my appetite is better I’ve not put on any weight, so I’m well happy with that, I’m still 8st 13lbs.

Saturday L and boo came over and spent the day and mine. It was a good day, me and boo played with trains and cars. We did try and go for a walk but it was so so windy down there and boo was tired so we didn’t go far. Boo fell asleep before we got home, so L and I watched Legend and I made more cheese biscuits mmmmmmm 🙂

After they left I had a little sleep because I was tired and in pain. I made myself dinner and played on the PS3 for about 4 hours, which I love so much.

Today I struggled to get going, I was so tired and felt rough. Still wanted to go out and do something though, hate sitting about even when I do feel ill.

My friend F picked up me and the pups and we went to the beach for a walk. Again it was really windy but at least it was dry and the pups had great fun running around going all crazy.

F and Benny came back to mine for a bit, which was nice. I changed into my joggy bottoms and sat and the floor and Benny kept rubbing himself all over me lol, he’s so sweet and didn’t leave my side bless him.

After they left I chilled out for a bit and eventually I just couldn’t stay awake any longer and fell asleep for about a hour. Cooked myself another nice dinner again tonight, so chuffed that I got my eating back on track quite quickly.

How do I feel right now? Like previous posts, I feel tired, achy and not too well. But my mood has improved and I feel happier then I have done this week. That’s down to seeing my friends, taking the pups out, eating properly, resting and sleeping, oh and playing my games on the PS3 🙂

It’s been a hell of a few weeks and it’s totally mashed my head up, loads of things have been churned up by this benefits process and my continuing counselling etc. But as usual with the help of my friends I’ve managed to pick myself and carry on. Sometimes I wonder how/why I carry on but I do, life is precious and some people don’t have the choice of living their life. But I do and I choose to carry on and live it as best as I can.

 This is how I feel

 Scrappy at Baiter on Friday

 A wind swept Foxy

 Pups chasing each other

 Boo didn’t like the wind

 Playing with trains 🙂

 Muscle boys!

 Selfie 🙂

 Aw selfie ❤

 Pups down the beach

 Another wind swept Foxy running on the beach

 Scrappy loving the beach

 I love the beach in the winter.

Peace out

Batman

Another allergic reaction to yet another antibiotic

I’m ALIVE! YAY! although I still look a bit like a zombie because I’m exhausted. But I am more human today thankfully.

I am so glad I didn’t start my antibiotics on Friday, I took them Tues night before going to bed and I woke up early hours Wednesday morning with severe stomach pains and shortly after came sickness and diarrhea. This carried on until just after midday, thankfully it didn’t last any longer because I couldn’t take my pain killers until I could keep water down.

I was in agony from head to toe, I couldn’t stop sleeping, I was freezing, I was virtually blue because I was so cold. I couldn’t get warm, my feet were the worst they were like ice blocks.

Managed to get up long enough to ask my next door neighbour to take the pups out for a wee for me, as I just couldn’t stand up long enough to do it myself and I needed to try and keep warm. He was so great and happily took them out for me and I was so so grateful for that.

My food shopping delivery came and I managed to throw it all into the right places in the kitchen, before collapsing back onto the sofa.

I did manage to stomach some Pepsi and just plain bread before taking my meds and going to bed…yeah cuz I needed more sleep…lol!

I slept like a log last night, the best nights sleep in ages actually. I didn’t wake up till 9 am and I went to sleep at about 11 pm. But I so needed it after being so ill yesterday.

I stayed in bed until just gone half 10am but I’d let scrappy out on the balcony to pee and left my bedroom door open so the cats could come in and the pups could go get a drink or food. It was nice relaxing in bed watching tv with all the animals in bed with me 🙂

I managed to do the housework and do like 3 loads of laundry, the housework took a bit longer then usual because I kept having to stop and sit down. But I did it and felt loads better for it, the flat was an absolute bomb site lol.

Went over the road with the pups and they were off like little rockets bless them, racing around chasing each other. Luckily there are benches over there because again I kept having to sit down because I felt so weak.

After getting back with the pups I thought I better try and eat something filling but plain, so I made myself some rice and I ate it all and felt better for it.

Just relaxed and watched tv, played with the laser pen and made all the animals go crazy lol!

Spent some time playing Lego Dimensions with the new Ghostbusters level pack and the Joker and Harley Quinn team pack. Love this game so much, it always makes me feel happy.

I felt well enough to try to eat a bit of dinner and luckily I had a portion of beef stroganoff that was in the fridge, which is what I was planning on having for dinner yesterday but it was still ok to eat today. I didn’t make anything to go with it though and I’m glad I didn’t because it filled me up just on its own. I feel less weak now and back to my normal self.

After I’d eaten I noticed that my note pad had a list of medications on there that I had written down on Monday after I did my pill box up. This list of medication were ones I needed to re-order but I hadn’t done that yet. I took the pups out for a quick wee first, dropped them back and then went back out to re-order my medications. Glad it’s all sorted and I will be able to pick them up Mon evening.

Just been catching up on internet stuff this evening, I feel loads better then I did this morning, I just feel exhausted…well more then usual anyway lol.

So by my count I am now allergic to 6 antibiotics, which is very frustrating when I need them because of my stupid immune system!

How am I feeling right now? Other then extremely tired, I feel ok. Just relieved that the sickness is over. But yeah feeling ok is better then feeling low.

That’s all from this boy right now, I need to go get some sleep.

Peace out

Batman

Anger Issues and Great Friends

Sunday again..it seems to come around quicker every week and wow what a week it’s been.

How would I describe this week? Well this week has been filled with high emotion, mainly anger and frustration, with a bit of crying and some happy days. But the anger was really fucking intense, like I felt like the hulk and just wanted to smash everything. I hate feeling like that though because I feel so out of control and I kinda scare myself too..like is that normal? I don’t know, maybe it is.

My anger issues became worse after my dad died, which is a normal part of the grieving process and it did subside for a while. But since coming out as transgender my anger is a bit of a issue again, some days even smalls things makes my blood absolutely boil and I become angry in an instant.

It’s probably due to a number of things, like having issues with changing my details at my doctors and the fact he took so long to refer me to the gender clinic, which is another battle I have to fight. Then on top of that I am dealing with gender dysphoria, so disassociation from myself, mind and body. The frustration of constantly being misgendered and the fact I can’t bind my chest..yeah the list of frustrations about the transition as it is right now just goes on and on. I know I will be happier in the long run and it will be worth it, but it’s been a massive trigger for me not being able to control my anger. Through all of this crap though I’ve only resorted to cutting once 🙂 which I am proud of because before I did DBT, if faced with a situation like this then I would have just succumbed to my self harm addiction and it would have totally taken over me and I would have had NO control. But because I have done DBT and I have grown as a person, the addiction, my dark passenger is no longer in control of me. I am totally in control of my dark passenger now and he’s never far behind me and he will probably always be with me, but right now my dark passenger has now power, I’ve taken the power back. In two and a half years I’ve only cut once and that’s just a huge thing for me, as at one point in my life I cut every single day. So yeah I have come a hell of a long way and I am extremely proud of myself for that.

I did a course on anger management, not for myself though. I did that course when I was working with young people, so it was about how to work with people with anger issues..anyway I mention this because I think I may still have the paper work some where and it could be useful for me to look at and do some of the worksheets…Might be worth a bash!

I am still doing my mindfulness, although the last few weeks it has been difficult to sit and do because I’ve either been too tired and it’s made me fall asleep or I’ve just not been calm enough or been able to get myself into a place where I have been able to sit and meditate. Next week is a fresh week and I will try again 🙂 I do need some grounding and relaxation, I need to get back into my body and relax my body.

Since my last post I have had 3 good days and I do feel more relaxed and happier then I have done this past few weeks. I love that I have amazing network of friends around me now, a few years ago I didn’t and I would have just sunk. But now with my friends and my groups I can keep myself afloat.

Friday was really busy, the dogs had their haircut in the morning and I had the doctors in the afternoon and I spent 4 hours in the evening baking things for the weekend.

The doctors went ok, I have more antibiotics and if after them I still feel rough then I’ve gotta do a sputum sample and he will refer me back to ears, nose and throat. Also got to mention it to the chest doc tomorrow and see if he has any ideas about what we can do. My gp is going to back me up to the benefits people, as he’s been asked to do a report for ESA. So yeah I am really pleased about that. The last few times I’ve been to see him I’ve been really emotional lol and close to crying, out of sheer frustration. But he’s great and he’s such a lovely GP.

Saturday I did the housework in the morning and in the afternoon I had friends over for Foxy’s birthday party. Which was so much fun, all 4 dogs had a great time playing with each other and eating their little cakes. We also went for a short walk and got home just before it started raining.

H came over for a few hours, which was so great to see her as I know she is really struggling right now. So I really appreciated the fact she came over 🙂

L and Harvey ended up staying the night, so that was cool. We had burger king for dinner and watched Batman films. I let Harvey have a go on my Lego Jurassic world game and he LOVED it lol and asked me to buy it for him, cheeky boy. So I said I might get it for his birthday if he’s a good boy.

After Harvey went to bed, L dyed her hair pink and we put a bit on foxy too lol. Then we watched Sinister 2 🙂 and I had to watch something funny after or I wouldn’t have slept lol!

L and Harvey left early this morning, so I could go nap for a bit. I then got on it like sonic, did the housework, put dinner on in the slow cooker, had a shower and took the pups out for a quick wee.

Then I was all calm and ready for my two friends who came over for dinner. They spent all afternoon until the evening with me, they enjoyed the dinner I made and I really enjoyed cooking it. E had brought over a crumble that she had made and that was so yum. We played the card game that E taught me how to play and I really love it 🙂

So yes a great 3 day which I totally needed, I am extremely blessed to have these people in my life. I hope I lift them up as much as they lift me up.

This week isn’t too busy, I have the hospital tomorrow and group social in the evening, that’s if I feel ok enough. I have my 1:1 gender counselling Tues and Mindout LGBT mental health group social on Thursday and I am hoping to feel well enough to go to my friends boy’s birthday party  on Sunday.

Apart from tomorrows appointment, I am looking forward to this week. I do have lots to sort out, I need to look through my bills and see what I can cut or get down a bit. Need to ring Diverse abilities again to get an appointment with someone to help sort out my ESA. I just need to get super organised and stock up on essentials for me and the pups, in hope to take the pressure off when my money goes down in two weeks from this Tues.

Urgh when I did I get so grown up and have to deal with all this lol! I hate this adult stuff, I want a refund! It is NOT as it was advertised.

How am I feeling right now in this moment after writing this blog? Well I am extremely tired and I wasn’t going to write but I kinda needed too and I feel so much better for it, I always do. I feel happy and I suppose you could say I feel content in this moment, I feel relaxed too. I also feel strong, strong enough to sort my benefits out, strong enough to win this fight. I know there will be times when I won’t feel strong. But in this moment I feel very strong and capable, this is down to cooking for friends this evening, I feel proud of myself for that.

Here are some pics from the last few days

 Me looking and feeling hella fly!

 My beautiful foxy girl after her haircut.

 Harvey

 Foxy, Scrappy and Arnie 🙂

 Benny and Arnie 🙂

Peace out

Batman