Surviving self isolation

I’ve spent the last few days thinking about stuff, I think being forced into self/social isolation has a tendency to do that. Whilst I am used to social isolation, its something that is really bad for my mental health. So I’ve had to really think about how I am going to get through this, without spiralling into the darkness.

The first thing I decided was to start back on trazadone, I decided to stop taking it as I felt like I no longer needed it. Although having stopped it, I realised they were helping more then I thought they were. They helped me focus, stop disassociating as much as I am right now, took the edge off anxiety and depression, all which have come back but I’ve been able to keep on top of them a bit. Now we are in this self isolation and not being able to do everything I enjoy I know my mood, anxiety and disassociation will get worse, so I know I need to get on top of this. Not something I really wanted to do but I need to do.

I need to write down a list of things I need and see if I can try and get hold of them, I don’t need much just a few bits to get by. But as I’m vulnerable to this condition I need to try and be as prepared as possible.

I also need to write a list of things I can do inside, things I can do to keep the fur babies occupied as well. I can still take them for walks but with my chronic pain and fatigue I can’t always be outside with them.

I need to write out a rough routine that I can try and follow, I do better with a routine. Although I know I easily get bored of routine, so it won’t be something I will follow strictly just guidelines really so I don’t feel like I’m just floating around.

My asthma clinic appointment was cancelled as my doctors aren’t doing face to face appointments unless they are an emergencies, which I understand. I can still get my testosterone injection as that is something I need, so that is booked in for 14th April. I did ask if I can get paracetamol on prescription just for now, as I cannot find it anywhere and I don’t want to search the shops. I was told to ring back, but wasn’t able to get through, so I will try again tomorrow.

I plan on writing more, whether that is a blog or just scribbling down in my notebooks. I’ve felt so disconnected from myself I’ve struggled to write anything that I felt connected with.

Once I have some stuff written down about how to get through this self isolation, I will share it on here and hopefully as a community we can come together and help each other get through this.

Peace out

Zak

Living with a Chronic illness – Hospital appointments

There are some things that came part and parcel with having a chronic illness and one of those things is having lots of hospital and doctors appointments.

I have a good GP whom which I get on well with, along with the nurses who I do my testosterone shot for me. I also have a good relationship with my Rheumatologist and his nurses and my Ears, Nose and Throat doctor. Usually I don’t find appointments too difficult as I always feel involved in my care and generally feel listened too and well looked after.

But yesterday’s appointment with a Rhematologist was the an absolute disaster. It provoked huge anxiety and anger. It was NOT a good appointment.

So I had made my way to my appointment, now if my Rheumatologist is busy, I will see one of his two nurses, who are both really lovely and I am more then happy to see. So I’m used to seeing one of those 3 people.

However when I turned up for my appointment, a nurse called me in to do my blood pressure and weight, she also needed me to do a pee sample. But she said that Dr Hopkins will see me soon… I asked who he was and why I was seeing him as he’s not my doctor. She couldn’t answer me.

It put me right on edge, it made me incredibly anxious and I wanted to leave. I then couldn’t do a pee sample as I was too tense, it was noisy in the waiting room, there was more people then usual there, which didn’t help with my anxiety.

I heard my Doctors voice, the one I usually see and I saw both of his nurses, who I see if Dr Marks is busy. In fact I spoke with Phoebe and she said I wasn’t on her list so I must be seeing Carole.

This wasn’t the case, I was led into see Dr Hopkins. At this point my anxiety was so high, I struggled to concentrate. He basically talked at me, he didn’t listen, he talked over me when I did try to speak, he didn’t involve me in the plan of tapering off my steroids, he basically told me what I had to do. This for some reason really triggered rage within me.

I held myself together as best I could but I was so enraged. How dare this person just bark orders at me, the guy doesn’t know, he’s never met me before, yet he was like well do it like this.

I walked to the train station as I need to get back for my counselling session, when I got to the station I rang the hospital as I needed to vocalise what had happened and how I felt and I wanted answers and to why the fuck I saw a random doctor and I also let it known that I did NOT want to see this fucking guy again.

The person I said to said some one would call me back, but as of yet I’ve heard nothing, so I will chase it up next week.

I think I was so triggered because it was an unexpected change and no one explained to me why I was seeing this guy, when my usual team where there. I also fucking hate not being listened too, I hate not being heard, it makes me feel so small and angry. I’ve spent a lot of time not being given the respect of being listened too. We all want to be heard and listened too. I also hate being told what I need to do regarding my own health and what I need to do with my medications. I’ve been ill all my life, I’ve been on medications for most of my life and I know my body better then any doctor ever will. I was more then happy to try and taper off my steroids again, but I didn’t agree with the way he wanted me to do it and I want to wait until at least March, as I’ve been really struggling lately as the weather has been so damp and cold, it’s just not the right time to start reducing my steroids.

The whole appointment was almost like a power struggle, he had all the power and wasn’t willing to listen about what I wanted to do regarding my steroids as I didn’t agree with his suggestion. I felt powerless, so ended up just agreeing with whatever he said so I could leave.

I will not be tapering my steroids like he suggested, I will get down to the bottom as to why I saw this guy and I will push to see someone from MY team soon and I will make it very clear that I do not want to see this doctor ever again.

Advocating for myself is something I really used to suck at, but as I’ve got older I won’t tolerate shit like this and I will let it be known. It’s fucking exhausting constantly advocating for myself and making sure I am being heard and that I am getting the care I need and deserve.

Note to any Doctors or nurses who maybe reading this, your patients know their bodies better then you do, especially those living with a chronic illness. Listen to your patients, they are the experts of their illnesses, you may have qualifications but they live it every fucking day! They know what works and what doesn’t, they know how they feel.

As much as I’m not always connected to my body, I know my body better then anyone else, I don’t think sometimes Doctors understand and respect that. I know its something my usual team of doctors understand, but this guy certainly didn’t.

It took me the rest of Wednesday to calm down, I’m glad I had a counselling session that afternoon, so I could let off steam and talk through it. It was quite funny as my counsellor had out some tuning forks which she used near me and she was like woah your body is having non of this and asked me if I was feeling angry and I was like I am furious. It was nice to have a safe place to express myself and my feelings.

I am feeling a bit calmer now about it all but I know its something that I will ruminate on now for a while. It’s hard not too when something provokes such a huge emotional reaction. I’ll get over it eventually.

Peace out

Zak

Living with a Chronic Illness – Ordering Meds

Every single time I order my Prednisolone they give me the wrong dosage ones! Despite having been on the exact same ones for most of my life!

It’s infuriating because they’ve wasted money as those wrong meds will not be given to another person. It means I then have to go to the GO for the thousandth time and sort it out!

Just organising 10+ medications + hospital appointments is like a full time job, which can be so stressful when I’m not being listened to continuously even though I know exactly what I take and when.

It may seem like a small thing to most people, but it gets beyond infuriating. It wastes everyone’s time.

I do see my specialist on Thursday, so I’m going to get him to write my GP a letter to say exactly what dose pills I am meant to be on and have always taken. Hopefully this will clear up the confusion, which started when I started tapering off the steroids last year, but I had to go back onto them when I had surgery in August.

Anyway hopefully this ongoing problem will get sorted soon.

Peace out

Zak

A day in the life of a Trans guy – Hysteroscopy

I wouldn’t usually put a trigger warning on my blog, but this blog in particular could be triggering as it mentions a procedure in a private area and those with gender dysphoria may find it hard to read. Having said that I am writing this to raise awareness of this particular procedure and its process and why it maybe done during transition from female to male.

This goes back to July, where I was sent a letter from the Gender clinic and my GP got the same letter to arrange a ultrasound scan of my uterus. Which is standard procedure once you are 2 years on testosterone. My GP organised the ultrasound scan for me, which was at my local hospital.

I’ve had ultrasound scans before so I knew what the expect. I had to drink loads of water before my appointment, I got called into my appointment and they put gel on my stomach and tried to scan me but as it was in the morning, I needed to drink more. So I went back into the waiting room and drank MORE water until I felt like I needed to pee and then they called me in and tried again, more cold gel on my belly and she pushed the scanner thing into my stomach, to take a look at my uterus. Which was really uncomfortable, especially when you really need to pee! She cleaned off my belly and there was a toilet in the room, so I went for a pee straight away! and man what a relief!

While I was waiting for the results, I tried to google why a trans guy on testosterone would need a ultrasound scan but I couldn’t find anything. Which is why I am writing this blog, to help educate others with my experience.

It didn’t take too long to get the results but the letter said that the lining of my uterus was too thick and it shouldn’t be. That really was all the information that was in the letter. They booked me an appointment with the gynaecologist and I went to that appointment on Friday.

Turns out I was extremely unprepared for this appointment and wasn’t fully aware of what they were going to do. That was partly my fault for not reading the information letter properly, but also I was probably just trying to block it out, not think about it as I have little connection to that part of my body. Although I was kinda good I wasn’t aware of what was going to happen at this appointment, as I didn’t have time to get anxious.

It was an early morning appointment, I only got up an hour before my appointment, so I washed my face and put some clothes on and ate a chocolate bar for breakfast lol and walked up to the hospital.

When I got there the Doc was already at reception and asked if I was there, even though I wasn’t late. As soon as they saw me they said ah this must be him and they made sure my details were up to date and the Doc took me into the room.

He had a male student nurse in the room with him, which I didn’t mind. My local hospital is a teaching hospital, so there’s always students knocking around. We briefly discussed my transition, how long I’ve been on testosterone for, how long I’ve been on the contraceptive pill for etc. He did say to me I could be fitted with the coil instead, which I fused as I’ve had friends who have had issues with bleeding and their mental health whilst having the coil and I don’t have any bleeding on the pill so I do not want to change that as periods are something I do not want! and cannot cope with.

He explained that all the hormones I’m on should have thinned the lining of my uterus, so they needed to do a hysteroscopy to take a sample of the lining to test and make sure everything is as it should be.

Now I cannot fault the Doctor or the nurses, they were amazing! They all gendered me correctly and just couldn’t have been nicer.

TRIGGER WARNING – Description of the procedure.

The Doc took me into another room, where two nurses were getting everything ready. I had to take off my shoes, jeans and boxers and loosely wrapped a sheet around me. The nurse helped me get up onto the bed and get comfy, had my legs up in those stirrups with the sheet covering my modesty while they set everything up.

The Doctor stared by inserting a speculum into me, which I’ve had done before for a smear test, so that wasn’t too bad. The Doctor talked me through what he was doing as he was doing it.

He then put a camera inside me, which I could see on the screen next to me, which was kinda cool. But it was extremely painful, he had a good look around my uterus and took pictures. He said it was painful due to the testosterone having made my uterus tight and constricted. They kept saying they could stop, but I didn’t want them too as I didn’t want to have to come back again. The camera process felt like forever! but they were all talking to me, asking me questions, trying to keep me relaxed.

I don’t quite know what he did to take a sample of the lining but it felt really pinchy and like really bad cramps. The whole thing was extremely painful and I’m pretty good with pain but this was almost unbearable.

The Doctor left the room so I could sort myself out, the nurses were clearing things away. One nurse gave me some paracetamol and a drink of water and the other nurse was talking to me about the Joker film and the new Harley Quinn film, which was cool.

I stayed sitting down for about 10 mins because my stomach hurt so much. I went behind the curtains to clean myself up and the nurse gave me this super thick sanitary pad to wear, as she said I would have some bleeding after. Wearing a pad and boxers don’t really go but wasn’t overly uncomfortable. She told me to take a few home with my just in case.

I went back into see the Doctor and said I wasn’t talking to him lol! and he laughed and apologised for it hurting so much. He didn’t really explain the negative possibilities of what the problem could be, he just said that it’s more then likely nothing and he’ll book me an appointment for 12 months. Which still leaves me in the dark as to what potentially the problem could be and as I’ve said there’s no information surrounding this particular situation relating the trans men.

I walked home, as I had light jeans on and I felt self conscious so I didn’t want to sit on the bus and potentially bleed through my jeans. Plus my stomach was hurting so much, I just wanted to get home.

When I got in I fully reclined the sofa, grabbed a pillow, put on my black joggy bottoms and pj top. Grabbed some snacks and a drink and curled up on the sofa with my blanket and Netflix.

I couldn’t move for a while without it hurting, I was curled in ball for hours. I fell asleep for a bit. Eventually the pain eased enough I could stretch out a bit, but I stayed relaxing on the sofa for most of the day.

Not only was I dealing with the physical effects of the procedure, but the mental side effects of having something done in a area of my body that almost feels like something completely separate, its hard to explain what I mean. But the whole experience wiped me out for the day.

Luckily I only bled for a few hours and by the evening it had stopped completely. But my stomach felt really tender all day and still feels a bit tender now a few days on.

I’m not sure how long it takes for the results to come through, but I will keep you all posted with the results.

I wish I had been a little more prepared before this procedure, as I would have done things a little differently.

Here are some tips for having this procedure, I would take a trusted friend, partner, member of family with you and have them in the room if you feel comfortable with that. Have someone drive you home and look after you for the rest of the day. Even though I couldn’t do much after, it would have been nice to have someone with me for that emotional support, even if it just was hanging out and relaxing. Make sure you have in snacks and easy to make foods, hotwater bottle, pain relief. Luckily I already had some snacks and pain relief in.

I hope this has been helpful to those who are going through the same stage in their transition.

If this has triggered you, please reach out of help, don’t suffer alone.

Please feel free to share this blog, to raise awareness within the trans community. I know these things aren’t an easy subject but its something we need to talk about, so we know we aren’t alone.

Peace out

Zak

A day in the life of a Trans guy

Today was my testosterone shot day! which is always something I look forward too. I had spoken with my GP a few weeks ago about changing over from Sustanon to Nebido injections.

I started on Sustanon two years and 5 months ago, having 3 weekly injections. I did try doing to injections myself for a bit but I couldn’t get over the anxiety of doing it myself as it really bloody hurt!

I decided I wanted to change over to Nebido as they are 12 weekly injections, which means roughly 4 injections a year, rather then every 3 weeks.

Thankfully when I turned up to my appointment today, they had sorted the prescription for the Nebido and I was ready to go!

There is a loading stage you have to go through in order to change from one injection to the other. So this afternoon I had Sustanon and Nebido jabbed into my butt muscles! The Nebido injection hurt way more then Sustanon but I am definitely cool with a bit more pain if it means less injections.

I hope it doesn’t cause any drastic changes in my mood, that is my only concern but I’ve managed well on the 3 weekly injections so fingers crossed everything will go smoothly.

I’ll keep you all updated with the change over.

Peace out

Zak

Self Care

I’ve not written much about self care recently, as after surgery self care was kinda a given. I had to listen to my body and look after myself.

Recently I haven’t been feeling great, I’ve been feeling absolutely exhausted and generally just been feeling unwell, but not enough to definitely say I have an infection or something. It maybe a delayed reaction to surgery. But I see my specialist tomorrow morning so I’m hoping to get more answers.

So because of feeling so exhausted all , I’ve been listening to my body and resting and sleeping when I’ve needed too. Which sometimes is a little frustrating as I feel like I’ve wasted a day. But self care isn’t a waste of time.

Today I’ve been resting and sleeping, as I’ve felt so exhausted. I eventually got up and did the housework which always makes me feel like I’ve accomplished something.

Took the dogs out for a quick wee, it’s been so grey and miserable today. Despite that I decided to go into town. I got myself some frankincense essential oils, as it’s meant to help relax the chest and help with colds and infections. I went to lush to take in my old pots in exchange for a free pot of face mask stuff, I also got myself a shower bomb too. I then went to Asda to get a few things.

I could have easily just gone to Asda, but I knew I needed to get out for a bit. Even if it was just to a couple of places.

I’m pleased I treated myself to some self care things 🙂 It’s important to me to look after myself and my needs. It’s keeps me relatively well, physically and mentally.

It’s important to slow down and listen to what your body needs. You only have one body, there is only one you.

Certain self care aspects of my days are non negotiable, like taking my meds in the morning and evening, making sure I sleep when I need too, eating as and when I feel hungry, putting my incense sticks on in the morning and evening, doing housework every other day, attending appointments. There are more I could list but it would take a while.

I’m feeling pretty exhausted now, so I’m going to wrap it up. I’m not sure this blog will make much sense lol.

Peace out

Zak

Psych app!

So a few months ago I asked my GP to refer me to the my psychiatrist and I was meant to have an appointment last month, but I had to to reschedule.

Anyway I had my appointment first thing this morning. 9am… why do they book such early appointments lol!

I felt fairly awake this morning though, so it wasn’t too much of a struggle and I had enough energy for to get the bus up there.

I didn’t have to wait too long before I got seen.

I knew what I wanted to say and what I wanted from the appointment. I think that always helps, to have an idea of what you need/want etc.

So I told him everything that’s been going on recently and what I’ve been struggling with. About the anxiety, depression etc.

I said I would like to maybe do DBT again, maybe not the main therapy group but maybe the group people do whilst waiting for the main therapy.

I also said that it’s been 6 years since I finished DBT and then there’s no follow up. And he thankfully agreed that it would be a good idea, he also gave me Trazodone to help me sleep better and hopefully it will help with my anxiety too.

My next appointment is in 3 months and then I’ll have an appointment with Deirdre, she heads up the DBT group.

I last saw my psychiatrist January 2018 and I wasn’t open, I didn’t know what I wanted or needed and I didn’t want to be there. So nothing happened as a result, but I don’t think I was ready.

This appointment was different from most appointments I’ve had there, because I wanted to be there, I know things need to change and I know I can’t do it alone. I’m ready for the extra support and I need the extra support.

I’m glad I have things put in place for now and after my surgery in August. Feeling pretty proud of myself 🙂

Peace out

Zak

A day in the life of a trans guy – Lower surgery appointment

Yesterday I went to see the Doc that will be doing my lower surgery.

It went really well, he’s happy for it to be done from my arm.

But because of previous bone fractures and my physical health stuff I need to have a scan of my wrists to check the blood flow. As where they take a vein out ( to use for the pee tube) the remainder of them needs to be strong enough to carry enough blood through to keep my hand alive and also I may have problems with my body rejecting the skin grafts cuz of physical health stuff but other than that everything should go well and I’ll be referred back for a proper appointment as this was just an information appointment but useful to have especially with my complications.

I also now know exactly what I want done, as there are various different ways to do this surgery, which is good. I’m so excited for this part of my journey. One thing I will share about the details of the surgery is, at the time of the first lower surgery op I’m going to have a full hysterectomy, removing everything. The other details are a bit more intimate and sensitive, but I will share it at some point.

I’ll now have to be officially referred for lower surgery, I have to be seen within 12 months of the referral, although if they’re busy they can extend it. But I’m focusing on getting through top surgery first and try to not get too excited about the next step.

So exciting!!! 🥳🥳🥳

^ one of the many trains I took with my friend yesterday

Peace out

Zak

Laid bare

I’ve been mia for a while, I’ve not been posting regularly like I was, for a number of reasons, which I’ll explain as I write this.

I’m feeling pretty vulnerable at the moment, so this is going to be hard and uncomfortable. But it’s something I need to do, I need to get it out and be brave and open myself up.

I’ve been really shut down for the last 8 months, which was around when I spilt up with the person I was dating last year.

I opened myself up and ended up getting hurt, so I did what I always do when I’m hurt, I just shut down, shut everyone out. But I’ve learnt all that does it hurt me more and other people cuz I’m often a absolute dick to people, which I hate but it feels safer then being vulnerable with people.

I’m still good friends with the person I was with last year, which I love but at the moment it’s really hard to not be super needy and just need them and want them to be here and make everything better.. which is ironically where I went wrong in the relationship. I put her on a pedestal and hoped being with her would fix everything and that’s a lot to expect from one person let alone a relationship. That’s not how they work and that’s where I seem to always go wrong. My feelings always just get too intense and I get too much, I expect too much and actually this time I crossed major privacy boundaries and went through her phone, which I regret and still feel so guilty about. I behaved like a jealous child. But it was like an impulse I just couldn’t control. I still give myself a hard time about it, I’ve not forgiven myself yet.

Ultimately the breakup was mutual although she initiated it. It wasn’t meant to work out.

I need to be with someone who’s not embarrassed to be with me, who won’t hide the fact their with me, I deserve that much I know.

From there my mental health has just spiralled down. I think I’ve disconnected with anything mental health related because I didn’t want to have it anymore, I just wanted to be fixed and move on and just have a good life, like everybody else. But I realise I’ll never be like everyone else, maybe I was always meant to stand out and be different which I hate because I’ve tried so hard my whole life to fit in but I never have. Maybe this is it, maybe I’ll always have to work harder then everyone else just to be where I want to be.

Everyone shines, they know who they are, where they’re going in life. I still at 34 have no idea who I am, what I want. I don’t try because I’m so scared to fail but I’m also scared to succeed. I hate being centre of attention. I have no self esteem anymore, I don’t think I ever did. The last few months I’ve just been listening to the negative words running through my head every second of every day, mentally bashing myself. I’m so horrible to myself but I can’t stop.

I doubt this will make much sense because I’m really struggling to organise my brain and thoughts, everything is just all over the place. My brain is just all jumbled up at the moment and it takes so much energy to just get myself organised enough to get out of the flat.

I’ve been trying really hard to fake it till I make it, but I really can’t do it anymore, it’s too hard and it’s not working. I got myself a voluntary job, I started a social group etc I thought it would help and for the most part when I’m out doing stuff it helps, but as soon as I’m on my own again it’s like a switch gets flicked off and my brain is just done.

I’ve really been struggling with depression, anxiety, insomnia, disassociation, gender dysphoria and it’s all just overwhelming and too much for me to deal with alone anymore. So I made an appointment with my GP, I’m going to ask him to refer me back to the community mental health team, I need meds upped and probably need some therapy or something. But this time I need to be super honest and not hold everything in like I can just handle it all, because well no one can do that, not forever anyway.

I think recently I’ve felt worse, for a few reasons, I’m just emotionally exhausted from trying to hold everything together on my own, I’ve stopped doing things that I know help, I’ve been spending too much time on social media, wishing my life was different, knowing full well social media creates a fake reality, it still effects me. I’ve just had zero motivation to do anything, I have to push myself from the moment I get up, some days I can do stuff other days I fail and the furthest I get is from my bed to the sofa and back, with 2 15 mins walks for my dogs.

I don’t feel anything either, just numb all the time.

Everyday I wake up and pretend everything is ok and just fake my way through what I have to do. But inside all I want to do is just be at home where I feel safe. I’m a pretty good actor, some days in front of certain friends I can’t hide it and the darkness seeps out but to most people they see me smiling and happy and it couldn’t be more opposite.

It’s getting harder to just pretend, it’s getting harder to keep it together, it’s getting harder to keep everything inside.

I feel so small, so worthless and that’s another reason I’ve not sought help sooner is because I am trans and have physical health issues, I feel like I don’t deserve help because I already have so many issues. I’m just a drain on society so why waste more money on me.

I know it’s completely self loathing and probably comes across like I’m playing the victim or something (something I’ve recently been told I was doing and tbh hands up I probably was because I was angry and I couldn’t be the rational adult I know I can be) but it’s genuinely how I feel like a lot, all this negative mass of self loathing words swirling around my head daily, I try and say nice things to myself but I just don’t connect with them so I just can’t believe them.

I need help, I need support, whether that be meds’ and therapy or whatever but I’ve finally come to terms with the fact I just can’t do this on my own anymore. My GP is ringing me tomorrow and hopefully I can say everything I need too and maybe get referred back to the community mental health team.

I don’t want to feel like this forever, I want to feel better and I want to feel better about myself and stop destroying myself. I want to try and fail and try again until I succeed at something.

I want help with dealing with disassociation, I’ve just been doing things myself on a trial and error basis to help my dissociative moments. I don’t know if it’s the right thing or not and what I try and do to help myself doesn’t always work. I want to feel more connected with myself, at the moment myself, my brain and body just seems to be fragments floating around bumping into each other but never connecting. It’s really weird, I want to feel like a whole person.

I’m just so emotionally exhausted, I just want some relief. I feel like I’m wading through mud with no end in sight, I’ve ran out of ideas and steam, I can’t help myself anymore on my own. I wake up just as exhausted as when I went to sleep.

So yeah this is me laid bare, heart on the table.

Peace out

Zak

Living with a chronic illness

I’ve not written much about my health lately, mainly because I’ve been super busy with like a trillion appointments!

It feels great having such a great team of doctors around me but that comes with a lot of appointments. The team of doctors and nurses looking after my care are incredible and I am so grateful for them. I love the NHS!

My Rheumatologist over sees everything, but he is just one Doc apart of my team, I also have a Ears nose and throat doc, physiotherapist, and podiatrist. I also have to go to the hospital for a blood test every 8 weeks. I have two other appointments for my medical transition, I see a nurse every 3 weeks for my testosterone shot and also the gender clinic.

Since January I’ve had a total of 9 doctors and hospital appointments and I have another 7 coming up in the next 6 weeks!

Appointments mean a lot of early mornings and a lot of bus rides and days of recovery from these appointments.

My treatment is going well but like the appointments its takes up time as well. I take medication in the morning and in the evening, which have two pill boxes that I have to fill up every Monday, I do a sinus rinse twice a day, morning and evening but sometimes in the afternoon if my sinuses are playing up and physio exercises.

The treatment itself seems simple but if you add in the human element of chronic pain, chronic fatigue, getting ill, depression, dysphoria, disassociation, insomnia, memory issues and no motivation, then its not so simple.

Some days its so hard to get myself up an organised and get everything done before even leaving the house, that I often can’t get out until 2-3pm. Some days its such a struggle, some days are a bit easier but everyday is hard work.

Mental health has a huge impact on physical health and visa versa, which complicates matters. Even after all these years of dealing with these things it only feels like recently things are more under control and I am being properly cared for, but its still not easy and I’m still learning about myself and learning different ways to deal with whatever is thrown at me.

I don’t think living with a chronic illness will ever be easy and I don’t think its something I’ll every truly accept and its something I’ll never stop learning to deal with. But all I can say is that I am trying my hardest to maintain good physical and mental health, which in itself is a full time job.

Overall things are on the right path, at the moment its about maintaining good physical health with medications, physio, insoles in my shoes, sinus rinses and hospital appointments.

Peace out

Zak