After sorting my bed stuff out, taking the pups out and dosing myself up to the eyeballs with medications, pain killers and my injection. I was in bed by midnight, put on a dvd and played on my tab for a bit.
I slept really well last night and I woke up just before 9 am. Had some breakfast and a drink, watched some tv.
Mothership text me saying she wanted to go into town later and if I was up for going into town with her. She had to take the car in for a service and some other bits. I said yes because well it would be nice to see her and actually get out of the flat.
I had time to relax and watch some tv, so was nice to relax and take it easy. Oh I did a load of laundry.
My rash is gone now and so has the wheeze. I’m just left still feeling a bit run down and tired. My skin on my face and ears is so so dry, its all flaky. It looks a bit like eczema now.
Eventually got myself showered and dressed and I took the pups out for a wee and run.
Came back and had some microwave chips for lunch. Hung up my washing to dry and then mothership text me to say she was on her way, pretty good timing. I got myself ready and met her outside mine, we were lazy and parked in town lol, rather then walking from mine.
We had a good walk about town, chatting and stuff. It was actually a pretty nice afternoon. While we were out I asked her if I could have £10 as I want to go to my group on Mon and I already owe last sessions fee of £2.50. But didn’t tell her it was the trans group and she didn’t ask any questions and she gave me the money I asked for which was awesome! Really pleased as I missed this week’s Thursday LGBTQ mental health group because I was too ill. So I can’t wait to go to both of my groups this week. As we were walking and talking about things, we were talking about my brother and his children and I said that I want all my baby making stuff taken out because I’m not going to have children because I’m too ill and she seemed pretty chill about that as I know in the past she’s sort of pressured me, I know she wants grandchildren from me. But I think as I’ve got older and my condition has become less stable I think she has come to realize that having children for me just isn’t a sensible idea. And that takes a lot of pressure off me and its sort of a step closer for me to tell her about being transgender.
After town, we came back to mine for a few hours and just sat about. My brother, his gf and Jack and Leo came over for a little bit. It was nice to see them all and have cuddles with little Leo, he’s getting so big and Jack loves playing with the dogs emoticon smile
Even though I enjoyed seeing everyone and having gone out etc. It was nice when they had all gone and the flat was nice and quiet again. But I really do appreciate that they came to see me, took me out, treated me etc.
Mum had got me some baby oil to help with my dry skin. I’ve applied some of that all over where I’ve been itching the most, I’ll use it for a couple of days and hopefully it will help. Oh and I booked myself into see my GP on Tues, just like the hospital suggested.
When I was talking to my mothership about the rash and I showed her the pictures of how bad it was, she said I have had it before and that it was because of the GPA (was wegeners granulomatosis) I don’t remember, but then I’ve had so many different symptoms in the last 29 nearly 30 years…I don’t remember them all. I’ve believed from the start it was GPA as it slowly got worse over 5 days and was knocked on the head by a big dose of steroids straight into my vein. If it was an allergic reaction to something then all the symptoms would have happened within a few hours from the rash to the wheeze…or quicker. I think it was a viral thing. The wheeze has gone, so has the rash, but my ears are still hurting on and off. I got my ear spray still left and I’ll keep using that until I see my GP and see what he thinks.
Gah, this blog has been all over the place this evening, but that’s a reflection of how my brain is right now.
This evening I’ve just been chilling out. Felt so tired after today, its the first day in about 5 days that I’ve gone anywhere for a period of time. My brain wanted to clean the flat as it’s a tip, but had to listen to my body and just sit and relax. So I have, even though the state of the flat as been driving me insane. Scrappy hasn’t helped with the state of the place….he’s been having a lot of fun pulling the fluff out of his toys lol! It looks like a dog toy massacre in here! At least he’s not eating MY stuff!
Tomorrow I am going over to see my step dad emoticon smile he’s been poorly too, he’s been in hospital again. I’m going over with the pups and some dvd’s so we can just hang out. Am really looking forward to that. I’ve not seen him since xmas. But yeah I love my step dad and we are pretty similar, both really easy going, both got pretty severe illness’s, we like the same sort of thing. Plus he’s my dad’s brother and it makes me feel like I’m close to my dad when I’m with him.
I am feeling good mentally and physically emoticon smile My physical health always has a knock on effect on my mental health, but its rare that both things are going well. It’s days like these that I hold on too, because I know my health is bad, but I get good days.
Off to bed after this emoticon smile very much looking forward to a good sleep.