Positive actions and Positive thoughts, helped me get out of feeling so miserable.

This morning I woke up in a funky mood, I was still tired after a shit nights sleep and my hips were still sore.

I spent until nearly 5pm sitting about feeling shit and just making myself feel a hundred times worse.

So I got off my ass, put the spongebob movie on in the background and played bubbles and fetch with my dogs and had cuddles with them and the cats.

I started feeling less grumpy and miserable.

My sister in law and two of my nephews popped in briefly, so that was nice 🙂

Then I decided to sort through all the shit I want to sell, as I’m doing a carboot soon.

I bagged up all the Lego sets I’m selling and then I cleaned the shelves and cleaned all my big Lego sets that I’m keeping.

I moved my crystals and stones into the bedroom where they have a whole shelf and arranged them all. Which felt really good, as the other shelf they were on was really cluttered and disorganised.

I took down the 2 canvases I’m selling, which then led me on to taking down all my posters but my signed tank girl poster.

My place looks pretty naked now and I still need to rearrange a few bits so they place looks right. But it feels good to have less clutter and the place looks less like a little boy lives there.

At the moment I’m just sat outside with the dogs, we’ve played with more bubbles, now they’re both just running about chasing each other.

I feel a hundred percent better then I did this morning, I feel more myself. I feel more awake.

Sitting around feeling miserable is fine for a bit, but the length of the suffering is dependent on whether or not you want the suffering to end or to just continue.

Cuz yeah sitting around feeling miserable and feeling sorry for myself is easy, it requires nothing.

But I chose to stop feeling miserable, because I felt like I was being a silly kid having a tantrum over literally nothing.

So I decided to change the course of my day by changing the negative thoughts into positive actions and guess what!? Negative thoughts have gone away and I feel much better.

I’m not saying this will work for me every time because sometimes yeah I’m entitled to feel miserable and it’s good to sit with those emotions and to process them and work through them.

But this is not how I wanted my week to start off.

Positive actions have positive reactions and a simple action can change your whole day.

“Pain is inevitable, suffering is optional” today I totally understand what that quote means!

Life is only good if you want it to be good. But a good life doesn’t just land in your lap, you have to start with positive actions to get the life that you want.

After all, all most of us want is to be happy. That’s definitely at the top of my list. I just want happiness and I’m working at it 🙂

Peace out

Zak

A day in the life of a trans guy – Chest binding pain vs feeling happy/confident out in public

Chest binding pain vs feeling happy/confident out in public

It’s a difficult dilemma, especially in the summer and as here in the UK it’s been a lot hotter for a lot longer then it usually is in June/July or ever actually lol. In the winter I tend not to bother to bind as I can hide my chest with baggy tops and hoodies, so it makes life a bit easier.

It’s also difficult because I have an auto immune disorder which causes joint pain/inflammation etc and I’m more susceptible to broken bones (a few years ago I fractured 5 bones in like 6 months)… so I have to weigh up when is safe to bind and for how long. It means listening to my body and how my body feels. For example if I’m tired and achy then it’s probably not the best idea to bind for 8 hours straight or at all. But I don’t always listen to how I feel, because I’m often disconnected from emotions and my body, I know I need to work on it though. I try and connect with myself by writing, meditation and just sitting quietly. I’ve been trying to do it more often as it does make a difference and helps a bit with the disconnect between mind and body.

The last 3 days I’ve worn my chest binder and 2 days I’ve worn it for the majority of the day and my ribs at the end of the day ache so bad and all I want to do is get home and take it off. But those 3 days I’ve been out in public, so beach one day and the other two days I’ve been around people I don’t really know that well and wearing the binder has made me feel a bit more myself, a bit more confident, less anxious and a bit less self conscious.

Tomorrow I’ll need to give my body a rest a not bind all day. It’s not recommended that you bind all day every day and definitely not recommended to wear it for 8 hours straight, especially when it’s hot.

I’ve been careful to make sure I’m drinking more and eating regularly too. So I’m not dehydrated or hungry.

Chest binding is exhausting, I’ve had mine on for nearly 12 hours… and I can feel it. I’m exhausted, hot and in a lot of pain but it was totally worth it as I’ve felt really good all day… so it’s a real dilemma.

Because of my health issues, I’m used to dealing with joint pain, some days are easier then others. But I know this pain is fairly temporary, cuz as soon as I take the binder off and relax then pain will subside which is good.

I use a high impact sports bra to bind my chest, as I’ve found it the most comfortable (as chest binding can be) an the material isn’t too hot, itchy and scratchy. I’ve tried a range of different chest binders but have found this to be the better one. So it is really important to find a chest binder that feels as comfortable as possible and makes you feel good cuz ultimately that’s the main point. What suits one person may not suit another, so it’s a bit of trial and error. But it’s definitely worth it if you find a binder that you feel comfortable with.

Peace out

Zak

Transition update – Week 14 on T

This won’t be a long blog today because I am in so much pain with my hip and I got other things I need to do before I go out later.

The only changes I’ve noticed this week is that the hair on my cheeks are starting to get a bit darker and fluffier which is cool.

Also being off the contraceptive pill is going well so far, last week I had a tiny bit of break through bleeding and a bit of a bloated stomach. But that’s all gone now which is good, so I’m hoping that will be that and I can be one pill down for good.

Urgh my head hurts today, everything hurts… I haven’t really had time to check in with how I feel because the pain that I’m in is just so bad I can’t really think about anything else. Going to take some pain killers soon and try and get a bit of rest before I’m off out again.

Week 14 on T

^This weeks picture

^This weeks video

Peace out

Batman

What a week and it’s only Wednesday!

Its only Wednesday and it has already been one hell of a week! I’m absolutely exhausted, in so much pain and so stressed out, literally don’t know how I am continuing to move forward and deal with all of this shit.

So Monday Scrappy went down hill, he was still being sick and he started pooping blood, he then went very lethargic. So I had to scramble around and got two of my friends to help me out but we managed to get him to the vets in the end. I was thinking the worse, as I’ve never seen him so poorly before. But the vet said he’s probably eaten something he shouldn’t have…which knowing scrappy is probably what happened lol. The vet gave him 3 injections, antibiotics, anti-sickness and anti-diarrhea and then some anti-diarrhea paste to give him for the next few days.

Yesterday Scrappy was still really subdue and not eating but today he’s really perked up. He’s eaten and played fetch, he’s still not 100% himself but he didn’t eat for 48 hours and didn’t sleep well for 48 hours so he’s probably exhausted and feeling really weak. I’m sure he’ll be back to his usual old self in a few more days. I’m just glad my baby boy is on the mend, I wouldn’t know what I would do without him or any of my babies.

Monday morning I spent ringing around my doctors and diverse abilities to sort out getting my case together for this tribunal for the disability benefits. I need to chase up one doc to see what’s going on, as I said I am at that hospital next week and can pick it all up.

My psych has been great, I saw him today to catch him up to speed with everything going on, so he’s going to write me an up to date letter for me to use at the tribunal, I just need to show him what I will be writing to them. So I am going to get diverse abilities to send me a copy of the appeal, so I can send to him because my case for the tribunal will still be along the same lines.

This fortnight after I pay out for everything I have £38… Yes I did treat myself to a £6 top and a haircut that cost £9 but I think I deserve a small treat after everything I’ve been through. But I can’t afford to get a taxi to my hospital app next week, so I’ve asked my brother to take me but I can’t afford to pay car parking because its expensive and I can’t expect my brother to either, so he’s just dropping me off. I have no money to socialise, which I know its not what it is for BUT because of my illnesses I get isolated very easily, so with no money to do anything, I will become isolated, bored and depressed.. This is no life at all, its just not fair! I just hate this so much, having to prove over and over that I am sick and “worthy” to be “awarded” these benefits. Its soul destroying to go over all my limitations and all the things that I struggle with or can’t do. I cannot WAIT for it all to be over, I will fight until I get my money, I need this money to live instead of just about surviving like I am right now.

Over the last few years I’ve watched helplessly as my health has gone down hill and I’ve not been able to do a thing about it. At the moment I am still having issues with my re-occurring sinus infections but next Fri I meet my new ENT doc. I am anxious about it but at the same time I can’t wait because it does need to be sorted out. Also this last week or so my right knee has been swollen after well doing anything and its has been really painful…But I can’t see my GP until next week. I had a letter to say he wants to see me, but the receptionists can’t possibly tell me why and they still cannot see me until Tues.. lol. I am over dealing with the gate keepers of the doctors, I just hope he doesn’t urgently need to see me for anything because well Tues will have to do.

So how do I feel right now? I really don’t know to be honest, overwhelmed is probably the right word to use right now. It’s all a bit too much and I have SO much to do and I am organising it all myself. I’m just grateful for the friends that I have around me right now and my brother, they are helping to keep me afloat.

I’m surprised that my dark passenger hasn’t made himself known, I think finally after 20 years I am totally in control of this dark addiction that I held so closely for most of my life. Finally there is a distance between us and he’s no longer walking anywhere near me. Throughout all of this stress I could have easily given my dark passenger permission to just take hold of me again but it hasn’t even crossed my mind, which is a huge step for me. I have cut once in about two and a half years and I am extremely proud of myself for that because before I stopped, cutting (my dark passenger) totally controlled my life, say if my current situation with benefits, health etc was to happen 4 years ago then I would probably be cut to shreds, I would probably be cutting every day because of the stress. Like I said I’ve not thought about and even now talking about it, isn’t a trigger at all, which again is a huge improvement for me. I’ve said before that I enjoyed cutting but now I understand myself a lot more and understand that I have sensory processing issues and that is why I enjoyed it. Now I am aware of that I have different things that I use when I need that sensory feeling or whatever, its difficult to explain.

I’m glad I’ve written about all this because it has shown me that despite all of the shit I am going through, I do have things that I can still be proud of 🙂 and that is a good mood booster, least I am still moving forward and making progress.

That’s all for now,

Peace out

Batman

Chronic pain and fatigue

Days like today just reinforces my limitations of daily life. Yesterday was great fun but today I could barely drag my body around. All my anger towards this illness surfaces on days like today and I’ve got to try and “deal/process” it which is incredibly hard, especially as I’ve had zero emotional support surrounding my physical health issues.

Before I carry on I’ll have a quick update about the last few days.

Sunday – Didn’t really do anything just slept a lot, I was hurting from head to toe. I did go to my brothers for a few hours for dinner, which was nice. When I got home I spent a little time on the laptop but then spent the rest of the evening playing Lego Jurassic world.

Monday – I struggled to get going in the morning, I managed to drag myself around to do the housework and have a shower. Just in time for my friend to drop her boy over, for some boy time. We took the pups out for a quick wee, went and got some biscuits and then spent the rest of the time watching cartoons 🙂 which is a morning well spent in my mind.

In the afternoon I met L and the boys, went for a short walk. It was too cold to go far. They spent the rest of the day at mine, we played with the pups, watched Frozen and did some colouring. It was so much fun, I love playing with the pups an Albert. Harvey is much harder to engage with, as all he wants to do is either play on my ps3 or play fight, which he’s starting to get far to big for now. He’s nearly 9 and getting taller and stronger, he has no interest in colouring in, or anything where you have to sit and use your imagination. I really want to find something I can get him to engage with, as otherwise I feel like he’s a bit left out. He just ends up playing by himself in his own world, but it’s such repetitive play, just the same thing over and over every single time he comes round and even when he’s at home. Its just finding something that’s not play fighting or gaming related to get him to do something else. Its really difficult because when I ask him what he wants to do, he doesn’t really know. He does have potential to do whatever he wants its just unlocking it and finding him a hobby or a different form of play. Autism is complicated, but I will not be beaten and I will get inside his lil brain to unlock him. It fascinates me so much and I really want to help get him involved when we are all playing, I want to get him included but its hard when he won’t join in.

Anyway they left about nearly an hour before I was leaving to go to my trans group social. Which was good as usual 🙂

So back to today, I woke up at 8 am had a pee and went back to sleep until half 10. I still felt really tired and so achy, as I’d ran out of Tramadol and needed to pick my prescription up from the chemist.

I barely managed to get a shower and get dressed. I dragged myself across the road to let the pups run around, I just sat on the bench watching them. I just couldn’t walk around, my whole body felt heavy and slow.

Dropped the pups home and dragged my ass down to the shop to pick up my Tramadol and got a few other bits I needed. While I was in there, I suddenly felt this weird feeling in one of my fingers, if felt like it was about to explode…it was just a burst blood vessel. So I now have a very swollen and bruised finger..urgh.

I just spent all afternoon relaxing, I did try and sleep but I just couldn’t! Which was fucking annoying, I was tired enough for a sleep but I was just in too much pain. I couldn’t get comfortable, I couldn’t relax enough 😦 stupid painsomina.

Just been binge watching things I’ve recorded on sky, whilst playing fetch with Scrappy and the laser pen with both of them, also been playing with the cats. I just sit on the floor and they all surround me 🙂 I love it. They make days like today a bit easier to deal with…well along with some cookies!

I don’t have much planned for tomorrow either, I have to wait in for someone to come and lower my shower pole for me. Its too high for me to reach when I’m sat on the stool and I can’t raise my arms above my head for too long.

I still feel extremely exhausted so another day of rest is probably a good plan. I don’t get too bored staying in these days, mainly because of the dogs but I’ve really got into gaming and all my Lego I have now. I have more hobbies and things I like to to, whereas in the past I hated being bored because I never knew what to do, I didn’t have much to do. I’m able to focus myself more now into a specific task. I hate being bored, it really effects my mood and makes it really low.

 Both my babies have bandanna’s now 😀 they look so cute!

Anyway that’s all for now, I need to rest my eyes from this screen.

Peace out

Batman

Happy, content and refreshed

The mid week slump was much needed, I was totally wiped out by Wednesday afternoon and I had to stop everything I was doing and just sleep. I think that this in part has helped with my mood, I feel good, happy and refreshed. It feels nice but a bit weird, just trying to hold onto it and not look to destroy it.

We had a really nice sunny day on Thursday, wow I felt great! So energised and happy. Even my neighbour said I look really refreshed.

It was the first day of wearing my sports bra all day and that also contributed to my good mood. It hurt like hell at the end of the day, my ribs an back ached so so much! But it was worth it, I felt great! I’m not going to wear it all day every day, will have to build up to it. Plus as its cold I can get away with wearing hoodies so my chest looks less noticeable.

Group was good on Thursday, M and I agreed that I could use the group as I did before, whilst also being a volunteer. Which is great because I get to help but also continue getting support, its a good balance.

M dropped me home, which cut loads of time of my usual journey. I got home, threw my bag on the floor, peed and grabbed the dogs and went for a walk down Baiter. It was so nice and the pups loved it, we caught the sunset which was so beautiful ❤

I was glad to have dinner already made, I just had to heat it up. I was achy and tired after walking the pups but I felt happy, I love being out with them and it was definitely worth the pain! I then played Lego Jurassic world for the rest of the evening. I’m cutting down the amount of time I spend online, just because I see so much crap on social media and it does have a negative effect on me. Plus playing my games or doing Lego feels much more productive and it makes me feel loads better then surfing the web all night.

Friday M and I went to the Weymouth group, the group met for lunch before hand and it was really nice. I couldn’t eat my lunch any quicker lol, it was so yum! The session itself went well, I really enjoy this group. M and I had quite a deep chat on the way home, which is unusual for us, it’s usually quite light and funny. But it was good though and very much appreciated.

I got in and took the dogs straight across the road for a run, I met my sister in law to pick up Leo for a few hours. They both needed a few hours without a screaming child lol…so I got him! He was tired and teething, after he played with scrappy for a bit I managed to get him off to sleep in his pushchair for an hour, so I could eat and relax.

I ate loads today, I had 3 crumpets and 2 pancakes for breakfast, I had a jacket potato for lunch, then biscuits and I had more crumpets and pancakes for dinner. Its the first day in so long that I’ve felt really hungry and have snacked between meals and I ate without even thinking about it and without it being such a huge stress.

After they picked up my lil chubs and robbed all my sweets lol! As they always do when they come over, but I hide the good stuff!! I played Lego Jurassic world for a few hours, I got sucked into and away from my head. I love it so much 🙂 makes me feel like I’ve accomplished something. I’ve never completed a game 100% before, so I’m already half way through now 53% 🙂

I got to bed and sleep just after 1 am I think. I woke up at 9 am, had breakfast and went back to sleep until midday 🙂 I felt nice and refreshed, ready for another day.

Did the housework, had a shower and got dressed. Not wearing my sports bra today though, my chest bones are still recovering from wearing it all day Thursday.

Took the pups across the road for a run and wee, before walking through to high street to the bus stop. Its a Saturday so it will be busy and the last thing I need is for them to stop and poop in the street lol! Because they are small people don’t see them, I don’t like walking through the high street on a Saturday let alone with the dogs.

I took the pups to their vets appointment, just for flea treatment but I prefer to have an appointment so I remember when they are due what treatment. Mr Scrappy has put on 200gs, he’s now 6.7kgs! She said he should maximum weight now as he’s nearly 2 years old and should be finished growing. She’s happy that they are both happy and healthy and that now for a while Foxy has been maintaining her weight, rather it then dropping up and down all the time. I think a better quality of food has helped so much with her in so many aspects 🙂

I got home and chilled out for a bit, I then sat and played Lego Jurassic world for a bit, going round collecting more Amber and gold bricks. Had myself some dinner, I had gammon that I’d made on a previous night, which was nice.

I spent some time making some cakes and cheese biscuits, which I always enjoy. I’m going to my brothers for dinner tomorrow, so will take some of each with me.

Spent the rest of the evening catching up on online, social media stuff and writing my blog of course.

How do I feel right now? I feel happy, content and refreshed. I can’t put my finger on why, its probably to do with a few things. But I’m not going to analyse it, I’m just going to enjoy it and hope it lasts.

Here are some pictures from the last few days.

 Pups loved their walk on Thursday and didn’t want to go home.

 Foxy taking in her surroundings ❤ she looks so peaceful and happy

 Typical pose for my boy, willing that ball to move lol.

 Foxy in her pjs, chowing down on treats 🙂

 My gorgeous boy didn’t want me to leave him.

 The view from the room for out Weymouth LGBT mental health group.

 Eating the last cookie, whilst waiting for M to pee before we left. I was feeling pretty goofy 🙂

 Pups all ready for bed, they are such lil posers.

 Marley moo loves sleeping in bed with me

 Harley checking out what everyone was doing.

 Home made cakes are the best!

 Home made cheese biscuits are the best!

 The pups waiting for anything to drop on the floor lol

 Harley checking out what’s going on as usual.

That’s it for now, will be around again soon.

Peace out

Batman

Mid week slump

Mid week and I am totally wiped out and I don’t really know where to start what to say as usual.

It’s been a pretty busy 3 days and I feel quite overwhelmed with everything. I started out strong on Monday with phone calls etc to sort things out…but yeah now I just have no energy to chase it up and sort things out. Maybe I’ll try again next Monday when I feel up to it, I just can’t right now its all a bit too much.

I had the nurse Mon afternoon and she gave me a nose spray to help clear up my sinuses. She couldn’t print off my prescription, she had to hand write it and when I asked at reception she said it was because they are waiting for my new NHS number 🙂 This makes me well happy, just can’t wait for it to be sorted.

After my counselling on Tuesday I went shopping, I needed a new jeans and shirt for my friends birthday party next week. I got myself some bootcut jeans that gives me a much less scruffy look and a nice shirt. I went to sports direct to again look at sports bra’s and I tried on one, this time I didn’t get stuck in it…last time I tried one on it was a bit of a disaster. Anyway this time it went well and it fit nicely and it flattened my chest well enough that makes me happy.

So I’ll talk a bit about chest binding… Trans guys bind their chests to look more male before they are able to get surgery to remove them. I myself have sensory issues with many different things especially with clothing so for me binding my chest has been extremely difficult. The binders I’ve bought are chunky, thick and the material is just not nice and I would totally over heat in them. So this sports bra is high intensity, so it holds everything down enough to make me look a bit more passable. The material is nice and not too thick and chunky, so I don’t see myself getting any hotter then usual in the summer. Its just as tight as a binder and it is quite hard to breathe with the sports bra on but I can’t get away from that, it needs to be tight in order to flatten my chest down. I can’t wear it all day long though as its not good too. But yeah I’m proper happy now I don’t have to stress about the summer and binding and stuff.

Today I had a few jobs to do and I did do most of them but then it got to lunch time and I just couldn’t go or do another single thing. I just had to sleep, I was so exhausted and in so much pain from head to toe.

I managed to do the housework, laundry, took the pups for a quick wee and run. Then went up to the hospital to drop off a sputum sample and get my bloods done, by the time that was all done I was done.. literally could barely move. When I got home I stripped off and got back into my pjs and got into bed and I slept for nearly 3 hours. I just hope I sleep well tonight as Sun and Mon night I struggled to sleep right through the night, without getting up and down 3-4 times.

I hate sleeping so much in the day and having to rearrange things, just because I’m tired and in pain. I just want a regular life… 😦 I have no choice over this which is the most frustrating part of this stupid invisible illness. I have no control over it either, it just happens to me. I feel like I’m not in control of vessel that I happen to be in.

I could talk forever about how my illnesses effect me because they are a huge part of me and it changes how I live my life. I also hold a lot of anger and resentment towards my illnesses.

How do I feel right now? I’m tired, overwhelmed but I’m ok, just trying to take it easy and go with how my body is feeling. After writing this I’m going to spend some time playing with the pups and cats.

That’s all for right now, got the Bournemouth Mindout group tomorrow and the Weymouth Mindout group on Friday, really looking forward to both groups as always 🙂

http://www.dorsetmind.org.uk/

Peace out

Batman

Tired and achy but feeling happy

Right now I’m too tired to write but I am too tired to move and do anything else… I’m just glad I got through another stressful week with minimal damage.

I’m still not feeling any better then I felt on Thursday, still exhausted, achy, snotty and chesty. I can’t wait to see the nurse tomorrow and get some antibiotics for a bit of relief.

Today my arm and hand that I fractured last year has been so achy today, my thumb is the worst it proper hurts. May need to wear the splint for a bit as a bit of support. But I’ll talk to the nurse about it tomorrow.

Friday I spent relaxing and looking after my needs, which I totally needed. I took the pups out for a walk, it was windy and raining but it was actually quite nice. Not one single person was down where we walked, felt like the only person in the world. Loved feeling the wind and rain on my face, made me feel alive. The pups needed a good run around as they’d not been out since last weekend. After I just spent some time watching TV and then played on the PS3 until dinner. I had gammon for dinner with dumplings and veg, it was so nice and even though my appetite is better I’ve not put on any weight, so I’m well happy with that, I’m still 8st 13lbs.

Saturday L and boo came over and spent the day and mine. It was a good day, me and boo played with trains and cars. We did try and go for a walk but it was so so windy down there and boo was tired so we didn’t go far. Boo fell asleep before we got home, so L and I watched Legend and I made more cheese biscuits mmmmmmm 🙂

After they left I had a little sleep because I was tired and in pain. I made myself dinner and played on the PS3 for about 4 hours, which I love so much.

Today I struggled to get going, I was so tired and felt rough. Still wanted to go out and do something though, hate sitting about even when I do feel ill.

My friend F picked up me and the pups and we went to the beach for a walk. Again it was really windy but at least it was dry and the pups had great fun running around going all crazy.

F and Benny came back to mine for a bit, which was nice. I changed into my joggy bottoms and sat and the floor and Benny kept rubbing himself all over me lol, he’s so sweet and didn’t leave my side bless him.

After they left I chilled out for a bit and eventually I just couldn’t stay awake any longer and fell asleep for about a hour. Cooked myself another nice dinner again tonight, so chuffed that I got my eating back on track quite quickly.

How do I feel right now? Like previous posts, I feel tired, achy and not too well. But my mood has improved and I feel happier then I have done this week. That’s down to seeing my friends, taking the pups out, eating properly, resting and sleeping, oh and playing my games on the PS3 🙂

It’s been a hell of a few weeks and it’s totally mashed my head up, loads of things have been churned up by this benefits process and my continuing counselling etc. But as usual with the help of my friends I’ve managed to pick myself and carry on. Sometimes I wonder how/why I carry on but I do, life is precious and some people don’t have the choice of living their life. But I do and I choose to carry on and live it as best as I can.

 This is how I feel

 Scrappy at Baiter on Friday

 A wind swept Foxy

 Pups chasing each other

 Boo didn’t like the wind

 Playing with trains 🙂

 Muscle boys!

 Selfie 🙂

 Aw selfie ❤

 Pups down the beach

 Another wind swept Foxy running on the beach

 Scrappy loving the beach

 I love the beach in the winter.

Peace out

Batman

I hate this broken body of mine

Where to start? I don’t even know right now, I’m tired as usual and not feeling too well again. I’m so fed up of this, I just want to feel better for a little bit.

Woke up today feeling even worse then I did yesterday, everything hurt from head to toe and still does now. My chest felt/feels tight but inhalers haven’t helped.

I took nearly an hour just to get showered and dressed because I kept having to sit and rest in between doing anything.

Despite feeling ill and exhausted, I managed to get myself out and on a bus to group (Mindout LGBT mental health group) http://www.dorsetmind.org.uk/

I’m glad I went, it was a good group and I found it helpful to vent all the stresses that are in my life right now, which is quite a few. I also sorted out taking subs and helped someone with some forms we were filling out. Which made me feel capable, useful and helpful and like I have a purpose, well at least for a bit.

Group took it out of me though, by the time I got home my head was pounding, my ears were hurting and just every inch of me hurt. I took some sumatriptan to help with my head, I couldn’t take anything else for my joint pain.

I took the pups across the road for 10 mins and took a ball over to play with scrappy 🙂 He loves playing fetch so much and it makes me happy watching him play and my little princess foxy just tags along trying to catch up with her brother. I love these two so so much and I am hoping to feel well enough to take them for a proper walk tomorrow, as I’ve not been able to take them out for a proper walk for about a week now, so they need one.

So glad I had dinner already made, so just had to microwave it. A day like today is why I have dinners ready made, because I just don’t have the energy to cook, even with my stool in the kitchen.

Haven’t done much this evening, just been relaxing and resting. I did paint two more boxes, one purple and one with a green base that’s going to have blue sides, so it looks like outdoors. I have a new mini figure of a janitor guy with a mop, so I am going to place him on my kitchen floor, with a spot of green paint to look like sick, gross I know lol! But it’s funny 🙂 need to do it tomorrow as the lighting in here is rubbish at night.

How do I feel right now? Tired, poorly and stressing about several things. Most things are out of my control right now so I’m trying to put them to the back of my mind and sort out the things that are in my control.

One of my stressors is the gender dysphoria, my main issue being not being able to bind my chest. Next week when I get paid I’m going to look one some sites and order myself a high intensity sports bra, in hope that will flatten my chest enough for me to feel passable.

In the summer I overheat really quickly, so I need to wear vest tops and shorts. So my chest needs to look less female in order for me to be myself and for me to feel comfortable in myself as well.

I wish I could unzip this body suit I have on because it’s the wrong body suit! with the wrong parts. I hate this so much! It’s frustrating because I can’t change anything right now.

Do you ever feel like a child? I do all the time, I feel like I am stuck at the age of 15 and I can’t seem to move on. It was the age I was diagnosed with Granulomatosis with Polyangiitis, the age my life stopped. Well that’s how it makes me feel anyway, I was really ill before my diagnosis but without a name it was easier to ignore.

I feel stuck, like emotionally stuck at this age and although I have progressed and I have moved on in many aspects of my life. But when it comes to being ill or whatever I go into child mode and it causes a lot of pain and anger. The anger almost becomes uncontrollable, I can feel it inside but there’s nothing I can do about it.

From head to toe, inside and out I despise my body. It has the wrong parts and nothing fucking works properly. I hurt every day, I’m tired every day, I’m ill all the time. Even my mind doesn’t work properly, I can’t and don’t trust any part of me to do its job properly.

I’ve never had any help with dealing with coming to terms in living with a long term illness with no cure. There’s still nothing out there, no help nothing.

Anyway..whatever I’m exhausted, well even more so. I better get this broken body to bed.

Peace out

Batman

I don’t even have the energy to be angry

In just two days things have changed, my mood has dropped and I feel like shit in more ways then one. I literally don’t have the energy for anything right now, I would just like things to go a bit more smoothly for a change.

Yesterday was a good day for the most part, I saw my brother and nephew Leo for a bit in the morning, I then spent the afternoon with my best friend and in the evening I had my transgender therapy group.

That was all cool and made me happy but I had woken up with a really bad sore throat and generally felt pretty rubbish. I carried on regardless though and it was utterly exhausting.

My appetite is back on track now thankfully, Mon I had beef stroganoff, yesterday I made a sausage and bean casserole and today I had gammon, roast veg, roast potatoes and dumplings, it was really nice, I’d never made dumplings before and I will definitely be making them again. It makes my life easier when I don’t have to stress about eating or not.

So today has been a wash out pretty much, I’m so stressed out I’m almost calm about it all because it’s all out of my control at the moment.

I didn’t get out of bed until 12 pm, I just felt and still feel so ill. Everything aches and hurts, my throat is still really sore and I just generally feel unwell. Just what I need another bug…The doctors are still doing something with my details because I can’t log into their system to book an appointment, which is a bit annoying. So I’m going to ring tomorrow and see if I can get an appointment soon. I need another antibiotic to tide me over until the 18th Feb when I see my bone doc and I will be asking for a new immunosuppressant that’s not freaking methotrexate!

Anyway I dragged myself around to do the housework and the laundry. Got showered, dressed and took the rubbish out. After that I felt so exhausted, I couldn’t do anything more because everything was hurting so much.

The pups had a vets appointment at 3 pm, so I was just relaxing and watching tv before I had to go out with them.

My rest didn’t feel long enough and I still felt so ill but I got myself and the pups ready to go out. Just before we left though, I checked my bank details to see if how much money was in my account, I knew there was enough in there but I always check just in case and I am glad I did! Otherwise I would have go there and wouldn’t have been able to pay as all my money was gone!

I had to ring up the vets and cancel the pups appointment and I have to sort out another appointment tomorrow. I took the pups out for a wee and quick run as they’d not been out yet and then dropped them back.

I went to the bank and I was in there for an hour and a half and for the majority of it I was on hold, being passed to 4 different people, listening to crappy music while I was waiting. The guy that was helping me was really nice and so helpful and he spoke to the peeps on the phone for me because I didn’t know what they were on about lol. I was feeling ill and in pain and it made it hard to concentrate on anything.

The reason my money was taken goes back to Nov 15 when I had that fraud issue on my account and had to get a new card etc. Anyway long story short they didn’t receive my letter confirming that this was fraud and not a transaction that was mine, but because I hadn’t heard anything I assumed it was all sorted…clearly not the fucking case. So they’ve had to start the claim all over again, so they will send forms out again for me to sign and send back. But I won’t be sending them back, I’m going to take them to the bank so they can fax it over so they definitely get it this time.

But whilst at the bank the man that was helping me noticed that I have two different titles on my account! Which is why the fraud team were calling me Miss and not Mr..making assumptions I suppose because they too would have seen both titles on my account. Anyway this means whoever originally changed my details they didn’t do it right, so I need to take my deed poll in again and they can sort it out properly.

Yeah…..One more thing on top of everything else I’m dealing with right now. Yes its been easily sorted but I could have done without sitting in the bank on hold for an hour and a half. I haven’t even got the energy to be angry about it. Its like yup ok of course this is happening to me, after all it is me and life likes to fuck me over at every opportune moment. I’m almost expecting for things to just fuck up now because that’s how it’s been the last few months.

Anyway whatever… So how do I feel right now? I feel achy with a really sore throat. I do feel quite angry right now about everything. Mood is low because of all this bullshit..

Going to sort myself out and get to bed soon and hopefully I’ll feel well enough for group tomorrow. I hope so as I missed last week because I was fucking ill!

Peace out

Batman