Where do I belong – communities

Where do I belong? Is something I’ve been thinking about for a while and whilst I belong to a few different communities, I don’t really engage with them as much as I would like too, if I did maybe I wouldn’t feel so lonely. But its complicated, I’ve actively stayed away from these communities because I didn’t want to be defined by these certain things. I’m realising that these things will always be apart of me and its ok to engage with these communities and they could be a source of friendships and support. I’ve kinda cut off my nose to spite my face, but I’ve been surrounded by such toxic people who’ve said over and over that you can’t let these things define you because you are more then that.

Now years down the line, those people who said those things are no longer around, but I still have that fear and anxiety around engaging in certain communities because I don’t want them to be all that defines me and my life. Right now I due to lockdown, I don’t really have anything outside of myself right now because I’m high risk, so I’m not really allowed to do much and I’m struggling to do anything at home on my own, as its so boring.

So what are these communities I belong too, well first one is people with chronic illness. I was first diagnosed with an autoimmune disorder when I was about 15 and I spent a few years fighting against, as I wasn’t given any support. I’ve always tried to fight against it and act like it doesn’t exist, but that never ends well. I think I have a better acceptance of it now but it still kicks my ass, especially when I’m not feeling well. I know from experience there’s a huge online community, full of amazing people but I just don’t engage with it, mainly as I’ve said before I don’t want my illness to define me. I don’t want my life to be boiled down to just a person with a illness.

I also have mental health issues, mainly depression and anxiety but also struggle with disassociation and now this community I’ve ran from because I didn’t want my mental health made worse by others, I didn’t want to become a professional patient, which is such a toxic term and insinuates that someone is attention seeking and not really mentally unwell. I’ve also felt that because I’m not in and out of hospital and I don’t outwardly express how I feel that I’m not unwell enough to be in the community. I mean its a whole mess of not nice feelings surrounding the mental health community, so right now I’m not sure its one I can really engage with because I think it would make me feel worse.

And the last community is the LGBT community, I am the T in LGBT and it is really a huge community with amazing people, but when I came out as trans I didn’t want to solely engage with the T community, I’m not really sure where that came from, maybe because its how I feel about most communities. I don’t want to feel pigeon holed, I didn’t want my transition to be the only exciting thing about me. But again I think I’ve missed out on making friends and doing things.

I see ‘proud to be trans’ a lot and I think for me that’s now lost all sort of meaning, I’m not really proud to be alive let alone be trans. I just feel too old for all these communities, I feel like I’m not sick enough, not unstable enough, not trans enough, just not enough to be apart of these communities. I just feel like I don’t really belong anywhere, I don’t really know myself but that maybe because I’ve walked away these communities, but these parts of me make up who I am.

I’ve disengaged with life in general at the moment, everyday feels the same. I feel like I’m living in a simulation or something, nothing feels quite real and it seems to be never ending and its so god damn lonely!

I know I need to make an effort and engage more but it feels so hard, I just feel like I’m being annoying all the time and that holds me back from doing anything. I’m so stuck inside myself, I want to reach out but it feels impossible, feels like I’m physically being held in place, frozen. Totally engulfed by the darkness, overwhelmed by the anxiety. I feel like I’m drowning, trying my best to float but I’m getting tired.

I know there’s a wonderful world of different communities that I belong to and can engage with but I’ve been so disconnected from humans, I don’t even know how to interact anymore. I wouldn’t know where to start and feels a bit scary putting myself back out there and trying once again to make friends.

I don’t want to just find people who are only temporary, who forget me if I don’t always message first. That’s apart of why I’m anxious about making new friends. Because I don’t want to make an effort just to be forgotten again, cuz that shit is emotionally exhausting and makes me feel so worthless.

I want so much to have a better life for myself, I don’t want to feel this way forever. But I don’t know how to move on, I don’t know if things will ever get better, right now I can’t see that it will.

Peace out

Zak

Keeping busy during lock down

The last few days I’ve been pretty lazy and disconnected from life and not wanting to participate in life, which obviously hasn’t made me feel great.

My nose has been really stuffy the last few days and I think that’s because I’ve spent a lot of time laying down and sitting down. Which also isn’t good for my joints, I’ve been more achy then usual. Being on lockdown and having physical health and mental health issues is going to take a toll on both.

Today I got up at 9:30 am, did the housework, had breakfast, filled in my personal wellness journal, I had a delivery of food for the fur babies and cat litter which should hopefully keep them going for a while. I took the dogs for a wee, dropped them home and went to Asda as I needed to pay my rent and electric. I paid more then I usually do, so I don’t have to keep going out. I went to the pharmacy to pick up my medications and the line was pretty long but fair play to the staff working their asses off to make sure everyone gets what they need.

I weighed myself this morning and holy shit I got fat! I’ve been eating too much and being so freaking lazy! I’m 10st 12′ which is probably why my blood pressure is super high at the moment. I’ve decided I am going to loose this weight and usually once I’ve put my mind to something I will do it. I’ve started by intermittent fasting, which will hopefully help me to stop binge eating and eating when I’m bored. I’m also going to try exercise inside by doing a bit of Yoga, walking inside, using my weights.

I’m going to sit and write out a rough timetable of things to do everyday, so I don’t go insane lol! And so I make sure the fur babies and I are getting the stimulation we need, so our brains don’t turn to mush! I will share my rough timetable, which hopefully will give you guys some ideas of how to stay sane too.

I got myself Disney+ and NowTV Kids, along with Netflix and Amazon Prime I’m not short of things to watch. But I also need to get a balance of watching TV and having some quiet time to read, nap and listen too podcasts. I find I write better with the TV on which is weird.

I think before this day is out I may shave my hair lol! As going to the barbers isn’t essential and my hair is already starting to look a bit wild. I need to trim my facial hair and sort my eyebrows out lol! I will not look like a caveman at the end of this lock down! hahaha.

One thing that I am have done today is to keep my windows open, so I have some fresh air coming through, so I don’t feel so claustrophobic. It’s also good for your lungs and mental health to have a flow of fresh air, when stuck inside.

I’m definitely feeling much better today and I think actually getting up and doing stuff has helped.

I may write more a bit later,

Peace out

Zak

Chronic illness – Covid19

I’ve been back and forth about writing this as the entire world is talking about it and rightly so as its serious.

There’s lots of information out there, misinformation, real information and so on. There’s also a lot of people panicking. So it’s hard to know what to believe, what to do etc.

Obviously there are countries like Italy that are on complete shut down, to contain the virus.

I am stuck between trying not to panic but also panicking a bit, as I have an autoimmune disorder, I am on immunosuppressants, I have no immune system to fight off simple infections. For me a common cold will go to my chest and sinuses and I will need a 2 week course of antibiotics to try and get rid of it.

My mum is panicking a bit, keeps asking if I have stuff in, which is a bit annoying but also my local shop is out of the basic necessities. Luckily I have what I need for now but I can’t get paracetamol anywhere, so I may need to ask the doctor for a prescription but that’s if they will let me as I will run out eventually.

I can’t not go out main reason being is the dogs, I have to take them out to pee and for a run. But also I cannot stand staying in for long periods of time, it makes me feel claustrophobic and just isn’t great for my mental health. So whilst yes I probably need to stay away from populated things like the cinema (my fave thing to do) public transport etc, I still need to go out in the fresh air.

Until the government tell us not to go out at all, I am going to continue to walk the dogs.

I’m just trying to remain calm, not read everything I see on the coronavirus and carry on kinda as normal.

I was lucky enough to not get swine flu and bird flu when that hit, so am I hoping I wont catch this either.

My poor step dad is currently in hospital in isolation, not because of the coronavirus but he has a condition that effects his lungs and he’s been in and out of hospital for a few months now, which hasn’t been looking great. I don’t know how long he has left but I can’t risk going to see him, I can’t risk infecting him with anything and I can’t risk picking anything up either, which really sucks.

I’m just trying to rationalise this whole thing, try and keep myself safe as I can and just be sensible about the whole thing and not panic.

Stay safe, be sensible, please consider those around you, wash your hands, if your sick stay home! Do as your government advises.

Peace out

Zak

Winter sunshine

Friday afternoon I took the dogs out for a walk, as the sun was shining and I was feeling ok, despite having a cold. We all needed to get some fresh air, I was just going to go for a short walk but we ended up being out for about 2 hours.

I love being outside, it was so nice just walking with the sun on my face and the dogs had a blast playing with other dogs, a little girl was playing football with Scrappy which he loved, fox said hello to every human possible lol.

Walking is so great for my mental health and overall well-being, it’s always such a great pick me up and it’s free! Which is even better. I’ve started taking Scrappy for an evening walk, just me and him as we could both stand to loose a little bit of weight and it’s just good to get out a beat the January blues.

I love photography, I love taking pictures of my dogs and the sunshine, I’m by no means a professional but it makes me happy 🙂

Here are some of my pictures from our walk on Friday, I hope you enjoy them

Peace out

Zak

Dealing with disassociation – with self care

Schedule for tomorrow, this helps so much with disassociation and trying to get some stuff done. It’s mostly dependent on weather, pain and energy levels. I’m hoping I don’t feel as wiped out tomorrow so Scrappy and I can get out for a good walk, I may take Fox if it’s not too cold.

For me this is a form of self care whilst helping me stay in the moment. But I always make sure how I’m feeling before doing anything, so that my physical health is also taken into consideration, as well as my mental health.

I’m hoping I can get out and walk the dogs tomorrow as I was so wiped out this weekend because of the pneumonia jab I had Friday, but if I still need another day to rest and recover the that’s ok too, I have other low energy things that need to be done at some point as well.

I never put pressure on myself to complete everything and in the time scales I’ve set. It’s more of a reminder of what I need and want to do and having a rough time scale helps. If I manage everything then brilliant, it does make me feel good and even if I don’t manage everything but do a few things then that’s great as well and also makes me feel good because at least I’ve done something. But if I don’t manage anything at all because I’m in too much pain or too exhausted or both then that’s also absolutely fine too, because resting and doing nothing is as good as being productive because it’s still extremely important self care

Peace out

Zak

*Insert*Title*Here*

I don’t often write in between my weekly transition blogs, but I feel like I needed to write today, I got things I just need to get out and maybe it will help me make sense of everything.

It’s probably gonna come out a bit all over the place and scattered, but that’s how my brain is feeling at the moment. It probably won’t be strictly transition related but a bit of everything that happening in my life at the moment, so transition, physical health, mental health, family etc…

I can’t even remember the last time I just wrote a regular blog entry, must have been a while ago now.

I literally don’t know where to even start… Ok I’ll start with the good stuff going on, so I can get into the flow of things and unpick my brain as I go along.

My name change is all official now, which is really awesome and feels so good. I am now legally Mr Zak Dyllan Mills! Woohoo! I’ve already changed it at the bank and the doctors and I’ve written some letters too, they just need posting. It just feels really right and just the next part of my transition, I feel much more like me now. Which probably sounds weird as its just a name but for me a name is quite an important part of my identity and how the world views me and how I view myself. So yeah feeling pretty awesome about that.

Last Sunday my new little nephew Alex came into the world, weighing in at 9lbs 3! the lil fatty lol but he’s so damn cute. I already had cuddles on Tuesday with him, he was just so content just laying on my lap fast asleep, he’s so chill. Proud uncle to 3 nephews, which is insane! the eldest will be 9 this year, its just flown by so fast. I absolutely adore all of them.

Physical health hasn’t really been too great this year, I’ve had infection after infection. Over the new years I kept getting nose bleeds, I then had a sinus infection, then last month I had a ear infection and at the moment I’ve had a chest infection for about 3 weeks and I’ve had lots of really bad nose bleeds as well. So I’m not sure what’s really going on, but I went to Southampton hospital this week and he took some blood to see what was happening. As he didn’t want to up the cellcept and make me more immuo-suppressed just in case its just been back luck that I’ve been getting ill and not due to my Churg Strauss Syndrome playing up, but he can’t tell until he gets the results. I’m hoping I’ll hear about the results soon and I’mm also kind of hoping its just been a bad run of luck getting ill and nothing more serious then that. But when nose bleeds are involved I know its more likely to be my condition as nose bleeds were one of my first ever symptoms. I’ll just have to see what happens with all this… I am hoping its nothing serious, I’d rather not up any medication if I don’t have too.

My mental health has been a bit of a mixture recently, its been quite difficult to deal with and I know its made me a bit harder to be around as well. Its not really been the bipolar that I’ve been struggling to control, although fighting with the depression and bad thoughts some days seems like the easy part of it all. I’ve been really struggling with the gender dysphoria, it hits so hard and its overwhelming and intense beyond words. The slightest thing can kick it off and I feel like I have zero control over it, which in itself is kinda frustrating and a bit scary.

Its my chest that is causing all the distress, anxiety and stress. I want top surgery so bad. I’ve never liked my chest, its always made me feel uncomfortable and embarrassed. When the dysphoria hits, I feel so detached, I feel like a ghost, I just want to be as far away from myself and my body as I can get, so I just disassociate but then I find it hard to get back in my body again. It really effects my mood, it makes me feel so depressed and really agitated because I’m not comfortable in my skin, because it doesn’t feel like it belongs to me, its never really belonged to me. I know I have to do some work around acceptance of self etc, as I know surgery will not fix all the emotional stuff but it will ease it. But right now that seems like a big thing to work on by myself.

I’m already starting to stress about summer and the warmer weather, as I get hot easily so it wont be as easy to cover up while remaining comfortable. I’m already aware that its gonna cause me a huge deal of stress and anxiety and it may make me less likely to go out far, I’m already anticipating how I’m going to feel, be etc… So I don’t know how I’m going to handle that and get through it.

Not being able to bind my chest makes it all the worse, I think maybe if I could bind that would take a bit of anxiety and stress out of it, I’ve been still trying on the high impact sports bras as they were the most comfortable out of everything I tried but its still not comfortable enough, especially with my chest problems I experience anyway. Its just so fucking frustrating! and doesn’t seem to be getting any easier to deal with, but the longer I’m on T the worse its getting to deal with and most days I feel pretty agitated and anxious. Its not so bad if I’m just at home and not really going anywhere, but as soon as I’ve got to go out for any period of time, especially on my own then I feel so self conscious, agitated and anxious.

I feel like I’m stuck in a limbo, like life can’t move forward right now and I know I’ve stopped moving forward, I wouldn’t know where to go now anyway. I just feel stuck, waiting for life to start again but I can’t find the button. I know I shouldn’t be waiting for top surgery but that’s what it feels like, I feel like after that then my life can start going again, where too I don’t know. I know my life can be better then it is right now, but I don’t know where I’m going, what I want, what direction, what I should or shouldn’t be doing… I’m in a rut and I hate it. Desperately trying to find things that make me really happy and not much is making me as happy as before. I mean I’m not totally unhappy, but I know things can and should be better, I just lost the drive to find it, I feel lost.

Ok… so maybe I needed to write this a more then I really realised but feels good to get it all out, I can breathe now. Been feeling mostly ok today, as I’ve stayed close to home, I’ve only been out to take the dogs for a run. Have felt so so tired today, I’ve just been chilling and looking after myself. I also finished writing out my ESA forms, I just need to get my paperwork together and then Monday I can post it all off recorded delivery, so they can’t say they didn’t get it. But I’ll sort that out on Monday I think, gonna spend the rest of the weekend just relaxing and looking after myself.

That’s it for now, am getting hungry…bloody steroids lol! Gonna go cook myself some food, although I’d really love a take away but money is low.. so cooking it is lol!

Peace out

Zak

*Insert*Title*Here*

I don’t usually write in between my weekly posts but I just needed to write tonight to get everything out of my spinning brain. I struggle admitting how I feel because I don’t like to feel so raw and vulnerable but I suppose in order to move forward the first step is actually admitting that you’re struggling and that you need extra support, so yeah this post will be the raw, vulnerable version of me.

My mood is so low that I have the constant feeling of dread in my chest, I almost just want to collapse into myself and just disappear and not exist anymore, though its a different feeling from being suicidal, I don’t want to die, I just want to disappear. Its hard to explain how its different.

Everything just feels overwhelming and just doing small things takes huge effort and energy in order to just complete small tasks, say like brushing my teeth. Even just thinking about it feels too much and feels its just impossible, even though rationally I know its just a simple every day thing.

I feel almost paralysed by the depression, I have to will myself to move to do anything and its exhausting.  I just want to curl up and stop existing to end this pain that I feel inside, its almost like a physical pain that I just can’t get rid of, nothing works, nothing helps. I can’t even explain this pain, I don’t know what it is, it just hurts, so much. I can feel it coursing through all of me and its so uncomfortable.

Sometimes I feel like I’m watching over myself doing things, I’m not really here grounded in reality, just floating around in a endless void. Looking at things that I know I should recognise but I just don’t. I just don’t feel like I’m here, like any of this is real, which impacts the depression because everything seems pointless.

Overwhelming urges to self harm just to get rid of this pain inside, I don’t want to do it and I know the release will be short, but right now any release would be welcomed. But my rational mind knows its not the best thing to do.

I don’t know what to do to help myself.

I know this will pass, it has too.

I know that having to make a new claim for PIP was the tipping point for all this, last time it was such a traumatic experience and it was only a year ago that it was all finally over. I’ve only just recovered from the experience of it all and the thought of doing it all over again, makes me just not want to be here because I just can’t do all that again.

My whole existence is about to come under intense scrutiny again, I’ll be talked to like I’m lying, I’ll be treated as though I’ve committed a crime. This is how the UK government are treating those of us who are most vulnerable.

I already carry so much guilt for my life being the way it is, I feel guilty for being ill with a chronic illness, I feel guilty for having a mental health problem, I feel guilty for being transgender, I feel guilty for not being able to work, most of the time I just feel guilty for even being alive. But that’s made worse by the benefits system, even though I know I am ill and not fit for employment, I still feel like I should be trying more.. I don’t now. I wish I wasn’t ill, I hate it.

I think I spilled my guts out enough for tonight. Usually writing helps me feel a bit better but not tonight. It’s just good to get it all out though I suppose.

Peace out

Dyllan

Update – I’ve not written in forever

I haven’t written my blog for about 4 months now, mainly because my old laptop SUCKS! So I since have gotten myself a nice new laptop, it’s a gaming laptop and its a good spec for what I want it for and a decent price too. I have it on tick so paying it off monthly.

Jeez so much has happened in the last few weeks let alone four months. I’m not going to cover it all right now, but I’ll write the basics of what’s been going on and then I’m going to start writing more regularly again.

I don’t even know where to start right now, ummm ok I’ll start with the gender identity stuff. 6 weeks ago I went to the Gender Identity Clinic in London to see the psychiatrist, he was super nice and we talked for about an hour. He gave me the 2nd yes I needed to start testosterone. I was flying high that day I can tell you, I was so happy that finally things are on the move and I’m getting to where I want to be. However I am still waiting on the letter for the GIC about starting T, which is pretty frustrating it’s like dangling a carrot in front of a donkey. But I’ve been ringing up every 2 weeks and tomorrow I’m going to ring up again and chase up the paper work so I don’t get forgotten. I know they have a 8 week backlog of paperwork, which is why I need to keep chasing until  I get my paperwork sorted. I’m starting to get impatient now, I just wanna get started on my new journey. I feel as though I am in some sort of limbo just waiting, not really anywhere.. just here not really anywhere. I do also have some levels of anxiety about starting T, I’m anxious that it will make my bipolar harder to control then it already it at the moment. I’m anxious about my chest, as I don’t/can’t bind my chest.. so yeah that’s my biggest anxiety really. Anyway that’s the basics of that aspect of my life, just waiting.

Physical health stuff is doing alright with my new med regime that I started earlier on in the year. The only thing I stopped is the steroid nose drops, as they gave me a migraine every day. I’m not having any side effects from the mycophenolate which makes a nice change and physically I’ve been feeling alright on it. I’ve not had any sinus infections yet, which again is such a relief as pretty much all of 2016 was one big snot fest of a sinus infection, that was my punishment for stopping methotrexate against the doctors wishes.

Mental health stuff…where do I start with this, its been a hell of a 3 months regarding my bipolar. As soon as it became sunny my mood went up but I didn’t think anything of it really until a week or so ago my mood crashed. Looking back on it I was having a hypo-manic episode, it’s not as bad as a manic episode its like a level down from a manic episode. I think I was more annoyed at myself for not seeing it sooner but it is what it is I suppose, I think it took me by surprise a bit.  But on the plus side I got loads of stuff done, made some awesome memories and that so it wasn’t all bad. The come down have been pretty fucking shit though, some days I’ve been so depressed I just wanna die, although I haven’t felt suicidal I just didn’t want to exist any more. Other days I’ve felt really agitated, angry and just really on edge but with loads of energy so I think that’s been a mixed mood state. One day the agitation was so bad that I cut myself… but I don’t really remember much of that day or what happened it was a bit of a blur. I’ve been dissociating a lot as well, so I don’t remember a lot of things that have happened, some days I can’t even remember if I’ve eaten or not. I have big gaps of time missing and trying to recall anything is really difficult and that’s super frustrating. I find the dissociation the most difficult to deal with above everything else. I feel so absent like my body is just floating along and I’m above it with strings like a puppeteer moving the shell of my body along through the days and nights that just merge into one. Even writing this is difficult as my mind keeps wandering off into space somewhere.

This past few days I’ve just taken some time to myself to look after myself and my needs, I’ve slept lots, upped my meds, ate sort of well and I’ve just binged watched tv and played with my fur babies. I think I’m starting to feel a lil more human but I don’t want to get too excited about feeling alright.

I forgot to mention that I started Slimming world 14 weeks ago and I’ve lost 1 stone 3 lbs. Super proud of myself, I never thought I’d be able to lose weight in a healthy way but I have and I especially never thought I’d be able to sustain the weight loss on all the medication I’m on. Highly recommend Slimming world to anyone who wants to lose weight in a healthy way.

So yeah that’s me really in short, there’s probably tons I’ve missed out but I think I’ve gotten the most important things down. Now I have a nice new laptop that takes seconds to start-up, I’m going to write far more regularly than I have been.

Peace out

Batman

Health update – New Med Regime – So far So Good

I haven’t posted for a while in detail about my  health issues and transition, so as I am sitting at the laptop downloading pictures and stuff I thought I would write about what’s been going on in a bit more detail.

In January I finally had my first appointment with my new Rheumatologist in Southampton hospital and it went really well and he was super nice. I saw him again on 2nd March, which was also my birthday lol. He started me on a new med called Mycophenolate 500mgs twice a day. It’s going ok so far, it’s caused a bit of insomnia but I am hoping that will sort itself out. I got back in 4 months time, which is good. I also got to have monthly bloods again now I am back on an immunosuppressant drug, which I’m used too having been on Methotrexate.

This week I saw my new ENT doc at Southampton and he gave me Neil med Sinus rinse, Flixonase nose drops and a 8 week course of Doxycycline to try and get on top of this sinus infection, before we talk about any surgical intervention. Which I understand, he’s got protocols to follow. I really hope this all works out and we don’t have to go down the surgical route. I got a follow up in June.

Mental health stuff is going ok-ish, just still struggling with dissociation, depersonalisation and derealisation. But I am finding that taking pics and posting on social media is helping me stay in the moment. Also I am finding things to do to keep me busy to help keep me in the moment, like playing on the PS4, Lego, playing with the dogs, arts and crafts etc I am really trying my best so I don’t have to go back to the CMHT.

On Thursday I saw the Endocrinologist at the gender identity clinic in London and he said my health issues and medication will not interfere with my medical transition, especially starting Testosterone. Which is absolutely amazing news, so so happy about that. The only thing he did say is that I’m overweight..yup already knew that lol! but he did also say that my last blood results said that my cholesterol was a bit high, so before starting T I’ve got to get my weight down otherwise I will be more at risk of a heart attack. Which is fine, I know I need to lose weight, I’m not happy with my weight as is it right now. My next appointment isn’t until June but I’ve been put on the cancellation list, fingers crossed it will be sooner. My next appointment will be hopefully where I get the yes to start T, so its all super exciting.

So yeah everything is pretty much going ok, I’m happy with my new med regime and I really hope it improves my health.

Peace out

Batman

 

Benefits saga – Continues

I’ve decided to split up my posts about my life into sections, so my posts are shorter and a bit easier to read and digest.

So as the title states this one is about PIP and ESA…Oh the joys!

Well after having to go to a tribunal, the DWP decided they might appeal the court’s decision. I am currently still waiting to hear from them.

I did get the statement that the tribunal sent to DWP but that’s all. I am really hoping I hear this week, as the wait is killing me! I just want it over with and I just want it sorted. It physically hurts, the wait is just agonising and just unreal.

The sad thing is I know I’m not the only one going through this and its heart breaking to think about all the pain and suffering that has been caused by this benefit change-up.

I feel like as a person with disabilities, I am being picked on and treated like a criminal. Even though my issues are legitimate and real, whether you can see them or not. My disabilities are there and they affect me every day.

The system certainly doesn’t cater for people with physical and mental health issues. For example, I would love to be able to work on the days I felt well enough and then on the days I need to rest then I could take off. But I just doesn’t work like that, jobs aren’t that flexible. Most jobs these days are zero contract hours, so I wouldn’t be entitled to statutory sick pay and benefits takes months or in my case over a year to sort out. Or similarly people with mental health issues, could be well for say 3 months at a time. So they could work that 3 months and then take time off to rest or if they become unwell then to get better again. But as I said it just doesn’t work like that and to me it doesn’t make much sense and I feel that it should be working this way, so then at least people who are unable to work all the time are at least paying taxes, even if it’s for a short while, not to mention the fact that it will give people with long-term health issues purpose, self-esteem and pride in themselves. I despise not being a productive member of society but we have a system in place that’s all or nothing. You are either able to work or you’re not, which is silly to me.

Well that’s my personal opinion and views on where the system is going wrong.

I am also still without my bus pass, which is making me feel trapped because I’m unable to pay for the bus with the little money I do get. I’ve emailed my OT again to get her to chase it up, as it was meant to have been processed last Monday and I should have got it last week, so I don’t know what’s going on with that. It’s so frustrating having to always chase things up. I just wish things would start running a bit more smoothly so it’s not so bloody stressful.

Anyway that’s all for now, I will post more when I know more.

Peace out

Batman