Shining light

It’s been a few weeks since I last wrote anything and I’m feeling less angry and frustrated then I was in my last blog.

I took the decision to up my trazadone again to help me sleep better and hopefully help me feel less depressed and so far I’m sleeping a better most nights and I’m starting to feel a little better too. I don’t feel so hopeless and so lost in the darkness, I still don’t feel great but I can see the shimmer of light at the end of the darkness, I’ve just got to keep reaching out for it.

I’ve been trying to make little changes to my daily life, that will help continue to make me feel a bit better and to prepare myself for the winter months. Each year I struggle with my mood during the winter and every year it really hits me, so I’ve been trying to prepare myself so its not going to be so much of a shock when it rolls around.

I have written up a rough plan of things to do day to day, some of these things are non negotiable, like take my meds in the morning and evening, getting to bed at a reasonable time things like that. But also to get outside for at least 30 mins each day, especially when the clocks change. As some days I like to just chill and I don’t get dressed until 4pm, which during the summer months is fine as I have loads of time still to enjoy the sunshine. But in the winter it gets dark by 4pm, so I’m going to make sure that no mater how I’m feeling I make sure I spend time outside, soak in that vitamin D from the sun. I love being outside in nature so it shouldn’t be too much of a drag. Even something as small as that I know will make a huge difference to how I feel from day to day.

I love my lists and I’ve been spending nearly every day just writing and writing. One list is of self care stuff, things like washing my face masks regularly as that’s a new thing I need to do better, or using my SAD light every day, listening to what my body wants and needs. Just simple things.

This winter is going to be a tough one as we’re heading into another lockdown and firs time around I found it so hard and winter on top of that is going to bring added stress. But I feel much more prepared this time, that’s why I’ve been writing lists down, mainly as a reminder of things I can be doing to make myself feel better and help me get through this next part a bit easier and I know what to expect now so its not going to be so much of a shock to the system.

I think I mainly operate from my inner child, he’s in charge most of the time. Which is fine but at the moment he’s feeling scared, anxious and unsafe and that’s the main reason I’ve been trying to prepare myself for the winter months to ease the anxieties of my inner child and to make him feel safe. Which he is a bit more settled then he was but he’s still highly anxious and just wants everything in place to feel as safe as possible. Which I am currently working on and I’m not far off having everything ready but I’m not quite finished.

Trying to calm my inner child down has been difficult, but I’ve been trying to listen and trying to identify his needs and what he wants, but it’s tricky as he has complex needs from traumatic events in our life. Slowly I will heal us both, through counselling and lots of patience and self care. I’ve been trying to heal myself for the last 20 years but I’ve never even really scratched the surface until now, I think I’m finally ready to heal. I can’t keep bleeding, I can’t keep letting this little boy hurt, he deserves to feel better now. I want my life to be better now, I want things to be different, I want to break the patterns that I’ve been repeating for the last 35 years. I’m ready to be happy.

One of my self care/regular activities is to try and blog on a bit more of a regular basis. I love writing/blogging and my anxiety/procrastination stops me just getting on with it. I think sometimes I just feel so overwhelmed I can’t physically do anything so I don’t and then I feel annoyed because I haven’t done anything. So I am going to try and make more of a conscious effort to push through the anxiety and sit down and write. I always feel so much better for it, I just need to get over myself and do it! With any luck I’ll be here writing again soon and not with weeks or even months in between posts.

Now I’m sleeping much better at night, I’m getting between 7-9 hours a night, which is much better then the 4-6 hours I was getting, my appetite is a bit better as well. I’m not binge eating sugar because I’m tired. Hopefully I’ll loose a bit of weight now, as I’m not eating half as much as I was, I’m actually eating a proper breakfast every morning as well and I’m trying to eat dinner too, whether that be something I cook or a takeaway at least I’m eating meals rather then just shovelling chocolate into my face all day long.

Getting a good nights sleep for me is so important, it improves my mood, my appetite, I can manage my chronic fatigue better. It’s so easy to slip into bad habits when depressed but at the moment I’m really aware of what makes things worse for me and having all these lists of things will definitely help. Getting into a routine of going to bed at a reasonable time and having a slightly more structured day is slow going, it won’t ever be perfect but I’ve got a good start on it.

Well that’s all for now

Peace out

Zak

Self care during self QUARANTINE

I suffer with mental health issues, mainly depression and anxiety. But also struggle with disassociation and gender dysphoria. As I’ve mentioned in previous posts, I started myself back on trazadone to get through this tough, uncertain times. I’ve been back on it for around 5 days now and I’m already feeling a little better then I was feeling.

I know what its like to be socially isolated and it freaking sucks! It’s super hard! Even though I can be shy and a bit of an introvert, I do love being with other people. But as I am vulnerable to getting the covid19 I am staying away from people, ie not having people over and stuff. So I’ve been thinking of ways that I can stay connected with people, so the social isolation doesn’t hit me so hard and I can stay sane and mentally well.

One thing that has helped so far is that I’ve been reaching out to others who I know are in the same situation as myself and making sure they’re doing good. I find it hard to reach out to others when I need help, but this is a unique situation, we’re all kinda feeling the same anxieties and uncertainties, so I don’t need to express explicitly that I need help or support, as we’re all in the same boat right now. Which is making it much easier for me to reach out, as I feel like I’m helping others instead of asking for help/support which I’m not keen on doing.

I’ve offered people video calls/voice calls and messaging, to ease the social isolation and I’ve had a few video calls and voice calls with a few different people already and its been an absolute blast. Talking with my friends has definitely helped! Video calls makes it feel like I’ve socialised and got that essential interaction with people that we all crave. It makes the days feel less lonely and isolated.

I know I am often viewed as someone who is strong and capable, as I rarely let myself be truly vulnerable in front of people. So I feel like sometimes people don’t check in on me, as I’m seen as someone who can look after themselves quite happily. Whilst yes I am more then capable of looking after myself but I have my struggles. I’m trying my best to keep reaching out and talking to people. So I can feel connected with others and feel like I’m making a difference to others.

At times like this it’s important to remember no matter how alone we may feel, we are not alone! There is a community out there to help get you through this, you just have to be brave and reach out.

I’ve also been trying to keep some sort of routine, although its super flexible, I’ve just been trying to keep doing the things that for me are non negotiable for example I have to make sure I take my meds in the morning and evening, doing my sinus rinse morning and evening, do the housework every other day, walk the dogs twice a day, eat 2 meals a day. I’ve kinda given up on my sleep routine as I’m more awake in the evening hours anyway. I’m still making sure I get enough sleep, whether that’s napping in the day or waking up late.

I try and split my day up into units of time so the day doesn’t feel so overwhelming. I also try and remember that I don’t need to fill every second with an activity, its totally ok to just sit and be.

I roughly know how much time certain things will take me to do, like doing the housework takes about 30-40 mins, having a shower and getting dressed takes between 10 and 20 mins depending on how long I’m sitting in the shower for. So I know that when I decide to wake up and start my day how long it takes for me to get ready for the day and that’s like the first unit of the day and then depending on how I feel and what the weather is like helps me decide on what to do with the dogs, either a long walk or a short run around across the road. That’s another unit of time take up and you get the idea, cutting the day into more manageable chunks without feeling so overwhelmed about having to fill a whole day.

I wrote a list of things I can do on my own whilst were all on lockdown, so I’ll share with you what I wrote down

Things to do during self isolation –

Check in with myself daily

Video call friends

Reach out on social media

Write and blog

Try and read (I have adhd so I struggle to concentrate sometimes)

Listen to podcasts and audiobooks

Colour/draw/create something

Teach Scrappy new tricks

Play video games

Teach myself to play solitaire with playing cards

Nextflix/Amazon/DVD’s

Spring clean the flat

Walk the dogs

Watch YouTube videos

Create a cosy fort/nest

Yoga

Make bread, cakes, biscuits, meals

Nap

Be silly

I hope you’re all coping as well as you can during these uncertain times. We need to come together as one, show each other the kindness, the compassion and the unconditional love that I know we are all capable of.

If there’s anything you want me to write about/comment on please let me know and I shall try my best. Please like, share, comment and follow my blog

Peace out

Zak

Surviving self isolation

I’ve spent the last few days thinking about stuff, I think being forced into self/social isolation has a tendency to do that. Whilst I am used to social isolation, its something that is really bad for my mental health. So I’ve had to really think about how I am going to get through this, without spiralling into the darkness.

The first thing I decided was to start back on trazadone, I decided to stop taking it as I felt like I no longer needed it. Although having stopped it, I realised they were helping more then I thought they were. They helped me focus, stop disassociating as much as I am right now, took the edge off anxiety and depression, all which have come back but I’ve been able to keep on top of them a bit. Now we are in this self isolation and not being able to do everything I enjoy I know my mood, anxiety and disassociation will get worse, so I know I need to get on top of this. Not something I really wanted to do but I need to do.

I need to write down a list of things I need and see if I can try and get hold of them, I don’t need much just a few bits to get by. But as I’m vulnerable to this condition I need to try and be as prepared as possible.

I also need to write a list of things I can do inside, things I can do to keep the fur babies occupied as well. I can still take them for walks but with my chronic pain and fatigue I can’t always be outside with them.

I need to write out a rough routine that I can try and follow, I do better with a routine. Although I know I easily get bored of routine, so it won’t be something I will follow strictly just guidelines really so I don’t feel like I’m just floating around.

My asthma clinic appointment was cancelled as my doctors aren’t doing face to face appointments unless they are an emergencies, which I understand. I can still get my testosterone injection as that is something I need, so that is booked in for 14th April. I did ask if I can get paracetamol on prescription just for now, as I cannot find it anywhere and I don’t want to search the shops. I was told to ring back, but wasn’t able to get through, so I will try again tomorrow.

I plan on writing more, whether that is a blog or just scribbling down in my notebooks. I’ve felt so disconnected from myself I’ve struggled to write anything that I felt connected with.

Once I have some stuff written down about how to get through this self isolation, I will share it on here and hopefully as a community we can come together and help each other get through this.

Peace out

Zak

Counselling sessions

After 14 sessions, 14 hours I have finished my counselling sessions, with the lovely Scania Price.

I’m glad I was encouraged to find a private counsellor, I’m so pleased I found Scania as I got a lot out of my 14 sessions. It was different from what I have experienced before and its exactly what I needed at this time and I will definitely go back to her if I need to (probably will need too at some point) I have totally accepted now that its cool to need extra help, at whatever age, for whatever issue. Life is hard and sometimes I just find it so exhausting and so overwhelming, I just can’t do it on my own, I need a safe place to talk stuff through and work through stuff.

Before I started counselling, I had gotten myself to a certain point but there was still stuff I needed to untangle and I felt a bit stuck. I couldn’t move myself forward and I didn’t really have many people to sit and talk stuff through with and I struggle to talk about really deep personal stuff with people, as I struggle to trust others fully to reveal the true me. It takes someone special to get me to open up. I am the master of holding back and only saying snippets of things and not really digging much deeper then what I am willing to share.

I think that’s what’s hindered me in many ways, I think a lot of time I resist how I feel, I don’t just feel things, I fight it. I’m not truthful and honest with myself let alone other people. I struggle to always connect with myself, so often don’t check in with myself and how I’m feeling. But I am trying my best to check in with how I feel, speak my truth, say how I feel. I know I need to start trusting people, I need to try and accept that getting hurt is apart of being human and apart of having friends and family. I think I really avoid getting hurt, so I just withdraw from everything, but by trying to avoid the bad I’m also not letting the good in.

Counselling helped me untangle myself from a previous relationship that I was still getting over and untangle myself from friendships I was no longer in and these things were the main things I was really struggling with. I’d lost myself over the years in these friendships, I’d been chipped away at, I had no boundaries with people, I let people walk over me, I felt weak, I felt silenced, I felt used, I felt lonely, I felt unlovable.. the list goes on. I have started creating boundaries, I know what I will and wont tolerate, I feel stronger, I know I have a voice that I need to use more often. I feel less lonely, I just feel better. I know where I stand.

I feel like in my sessions I was able to be raw and honest and dig deeper then I’ve done before. I feel like I understand myself a bit better, I know I’m still in the process of rediscovering myself but that’s cool.

Even though I’m still feeling a little depressed although its not everyday, it comes in waves. Some days it will be a big wave and it will swipe me off my feet, but other days its a small wave and I’m still standing. I just think that’s the nature of having chronic depression and a chronic illness, as they both have a knock on effect on one another. I am in a much better place then I was in November.

It’s been 2 weeks since my last counselling session and it does feel a bit weird, it has been a bit overwhelming. I liked the routine of having a set time to get all the stuff out I needed too. I’ve been a bit all over the place, but I think I had a bit of the birthday blues, which threw me off. I’m just starting to get myself back together lol.

If anyone is thinking about seeking help, whether that be through the NHS, or privately please do it. Talking does help, no matter how old you are, what the problem is. If you’re feeling shitty, feeling suck and need a little help there is absolutely no shame in seeking what you need. It does not make you weak or less then. It makes you stronger because you are getting your needs met, you are looking after yourself.

I’m feeling tired right now and struggling to remember stuff and concentrate so this feels like its really disconnected and disjointed as I write this. I think its all I have to say, I can’t express enough about how much this round of counselling has helped me. I’m still dealing with stuff but who isn’t, that’s life right.

I was going to write another blog, but I need to sleep and come back tomorrow.

Peace out

Zak

Disassociation and other stuff

I’m not sure this post will make much sense, or even have a point lol. But I just need to write things out and hopefully help sort through the mass of thoughts that race through my brain every second of every day.

I’m going to try and make sense of everything, by sorting through things bit by bit.

I’ll start with an update about my weird breath holding thing… basically I’m still doing it and its still frustrating. Nothing works so I’m just trying to ignore it as trying to fix it makes it worse.

I do it the most when I’m feeling tense, which at the moment seems like a lot. I find myself sat on the sofa scrunched up, my whole body is tense and I’m just unable to move, unable to get out of my head. I can sit like that for hours, which I know is disassociation but in a different form then what I’ve experienced before.

This disassociation feels more like an internal struggle, I’d much rather feel all floaty and out of my body, as I feel weightless. But this is so intense and physically hurts my whole body and I feel like I have no control.

When I become aware of how I’m so tense and scrunched up, I try my best to relax my body but I feel so achy after, its hard to get away from this internal struggle.

I also keep getting stuck endlessly and mindlessly scrolling through social media, again feeling really tense and again with chunks of time passing by.

It feels like apart of my brain has just switched off and gone to sleep, which is a simple way to describe what disassociation is. It’s your brains way of protecting you, which in itself in super interesting. But I feel that there is still a small part of my brain that’s awake and shouting to wake the rest of my brain up, which is causing this internal struggle. Because even though I’ve disassociated, my brain hasn’t entirely shut off, so I have an awareness but I’m unable to do anything. I feel like I’m trapped inside my body, its really weird.

I can be sat down, all scrunched up know I need to get up and move because I have stuff to do and but I just cannot move, I’m glued in place. The small voice just isn’t loud enough to wake my brain up, but I can still hear it shouting at me. Which makes me feel even more tense and frustrated because I’m not in control, I cannot make myself move until my brain wakes up again.

I don’t really know if this will change, maybe it means I’m slowing healing the parts of me that needed to disassociate, maybe it doesn’t, I’m not sure.

Hopefully in time, this will improve or at least I’ll go back to fully disassociating.

I’m feeling more tense this week for a few reasons, I’ve come off trazadone, as I felt I no longer needed it, I’m sleeping better and despite everything I’ve just described I’m feeling better too. But the withdrawals of trazadone can make you feel more agitated and I think that’s really hit me this week. Also two weeks ago I had a pretty big hit of testosterone, due to switching over from Sustanon to Nebido and the loading process means having both shots at once! So I think again such a big dose of hormones has really hit this week. I’m sure in time these will both wear off and I’ll start feeling a bit more relaxed.

I’m still struggling to feel connected to myself, which goes back to the disassociation, but also apart of the gender dysphoria as well.

I think when I took a step back from people in my life and took stock of everything, I took a step back from myself and forgot to step back in again.

I feel a bit out of place, a bit out of sorts and just a bit weird. I’m slowly working towards getting back to myself. But I think I’ve always had this disconnect with myself, the gap feels bigger then before.

Talking about this subject in counselling is helping me understand it a bit more, which has been helpful. This week I learnt that my high tolerance to medications could be linked to the disassociation which is really interesting. Even CBD oil, does nothing for me, natural remedies don’t work for me and I’m really resistant to most medications. When I started taking tramadol, I don’t ever remember it making me feel high, like how it makes most people feel. This is definitely something I want to look more into, as its fascinating and I want to be able to react to meds like everyone else does. I also know a high tolerance to medications is also linked to hypermobility as well, which I have. I just want to try and understand my brain better and why it does what it does and if I can help myself in anyway.

I always knew my brain was wired differently to most, but never knew why. I’m still really non the wiser about why I disassociate, as its usually a result of trauma. I’ve not experienced your usual traumatic events like sexual abuse, violence etc. But then my life hasn’t been simple easy, I became ill when I was 6/7 years old, family life wasn’t always easy, my parents divorce was pretty messy but these are the only things I really remember.

My memories aren’t in order and there are huge chunks missing, which again a sign of traumatic event. Maybe it was just a culmination of events throughout my early childhood/teenage years rather then 1 significant event. Sometimes not being able to remember things is frustrating but I know its my brains way of protecting me from bad things.

This week my memory has been awful, its much worse when I’m feeling stressed/tense. It effects my short term memory, I can forget when happened a few hours ago, which is super annoying. If I’m feeling more calm and relaxed my short term memory is better, I have much better recall.

I struggle with routine, I have non negotiable things I do every day, like take my meds, housework, eating, taking the dogs out. Things I need to do to get by. But beyond that I have no interest in the 9-5pm life. Partly because my body doesn’t work that way, my brain certainly doesn’t either. I cannot stand early mornings, I need quiet time to wake up and adjust to the day. My brain certainly takes its time to wake up, its much more active in the evening, early hours of the morning. I like my freedom to do what I need/want to do in order to feel good and take care of my mental and physical health.

I know I have a lot to give this world yet, but I’m not sure what that looks like. Maybe as the year goes on, that will become clearer to me.

I need to keep writing, I keep saying this but I always hold myself back.. Don’t know why I do it.

I can feel myself switching off, running out of focus. So I shall sign off for now.

Hopefully this sheds some light on well me and how I function, which could be useful for those in my life and help them understand me more and maybe it rings a bell with whoever else is reading this.

Peace out

Zak

Self Care

I’ve not written much about self care recently, as after surgery self care was kinda a given. I had to listen to my body and look after myself.

Recently I haven’t been feeling great, I’ve been feeling absolutely exhausted and generally just been feeling unwell, but not enough to definitely say I have an infection or something. It maybe a delayed reaction to surgery. But I see my specialist tomorrow morning so I’m hoping to get more answers.

So because of feeling so exhausted all , I’ve been listening to my body and resting and sleeping when I’ve needed too. Which sometimes is a little frustrating as I feel like I’ve wasted a day. But self care isn’t a waste of time.

Today I’ve been resting and sleeping, as I’ve felt so exhausted. I eventually got up and did the housework which always makes me feel like I’ve accomplished something.

Took the dogs out for a quick wee, it’s been so grey and miserable today. Despite that I decided to go into town. I got myself some frankincense essential oils, as it’s meant to help relax the chest and help with colds and infections. I went to lush to take in my old pots in exchange for a free pot of face mask stuff, I also got myself a shower bomb too. I then went to Asda to get a few things.

I could have easily just gone to Asda, but I knew I needed to get out for a bit. Even if it was just to a couple of places.

I’m pleased I treated myself to some self care things 🙂 It’s important to me to look after myself and my needs. It’s keeps me relatively well, physically and mentally.

It’s important to slow down and listen to what your body needs. You only have one body, there is only one you.

Certain self care aspects of my days are non negotiable, like taking my meds in the morning and evening, making sure I sleep when I need too, eating as and when I feel hungry, putting my incense sticks on in the morning and evening, doing housework every other day, attending appointments. There are more I could list but it would take a while.

I’m feeling pretty exhausted now, so I’m going to wrap it up. I’m not sure this blog will make much sense lol.

Peace out

Zak

Dealing with disassociation – with self care

Schedule for tomorrow, this helps so much with disassociation and trying to get some stuff done. It’s mostly dependent on weather, pain and energy levels. I’m hoping I don’t feel as wiped out tomorrow so Scrappy and I can get out for a good walk, I may take Fox if it’s not too cold.

For me this is a form of self care whilst helping me stay in the moment. But I always make sure how I’m feeling before doing anything, so that my physical health is also taken into consideration, as well as my mental health.

I’m hoping I can get out and walk the dogs tomorrow as I was so wiped out this weekend because of the pneumonia jab I had Friday, but if I still need another day to rest and recover the that’s ok too, I have other low energy things that need to be done at some point as well.

I never put pressure on myself to complete everything and in the time scales I’ve set. It’s more of a reminder of what I need and want to do and having a rough time scale helps. If I manage everything then brilliant, it does make me feel good and even if I don’t manage everything but do a few things then that’s great as well and also makes me feel good because at least I’ve done something. But if I don’t manage anything at all because I’m in too much pain or too exhausted or both then that’s also absolutely fine too, because resting and doing nothing is as good as being productive because it’s still extremely important self care

Peace out

Zak

Don’t listen to that little dark voice.

A lot has changed in 3 days, a good kind of change though. I’m feeling much better then I did when I last posted on Wednesday. I am much more articulate now and I am able to write a decent sentence…Well I hope so anyway.

On Thursday I wasn’t going to go to my LGBT mental health group, I just didn’t want to go. The little dark voice was whispering in my ear saying “don’t go” “you’ll have a better day at home” “you don’t need that group anyway” etc you get the picture, the depression whispering lies into my ear constantly, trying to keep me at home, keeping me away from people, keeping me from helping myself to push through and feel better. Because the dark voice disappears if I ignore him, so he shouts as loud as he can for as long as he can, until the little ray of light starts talking sense, telling me that there is hope and I will feel better again.

That little ray of light gets louder and stronger the more I pushed on with my day. He got a little louder after I had my breakfast, a little louder still after having a shower and getting dressed. The dark voice was shouting too both in equal measure, my head was so loud but I knew what path I had to follow. I carried on and took the dogs out for a walk, I kept having to sit down as the dark voice was making my body feel so heavy and weak but I pushed through. By this point both voices were raging at each other, I was just listening to them both, both made good points. But ultimately listening to the dark voice would mean just perpetuating the liar that is depression, he would win, the only way I was going to feel better is if I listened to the light voice and went to group.

So I managed to get my stuff together, it took every fibre of my being to do this. As I walked out the front door, locking it behind me, the dark voice realised he’s lost. So he went back to whispering softly in my ear, whispering things like “you won’t have a good day” “you’re stupid” etc… :/

By the time I got on the bus, my head was fairly quite again and my whole being felt so exhausted. I kept falling asleep on the bus trip and very nearly missed my stop but I suddenly realised where I was and pressed the button to get off.

Group itself was good, I don’t remember what we did but I think that’s because it was such a huge battle to just get there, I struggled to be present. But I was there, I stayed, I participated as much as I could and I felt better as a result.

I still didn’t feel 100% better but I felt more myself for going out. I had a good evening, I made myself dinner, played with the pups while waiting for my food shopping, snacked on a peanut butter and syrup sandwich and went to bed.

Friday I went to the Weymouth LGBT mental health group and again it was a bit of a battle to get up and ready, but the struggle wasn’t nearly as bad as the day before. So it just goes to show that my mood was on the way back to normality again.

As always the journey there and back was good and the session itself was good. I think I’ve been going to that group for about a year now, which is cool and makes me proud 🙂

Got home from group about 6pm, I was so tired but I took the pups out for a quick wee and run. When we got back in I stripped off, my binder was hurting so off that came, jeans came off and were replaced by joggy bottoms, although if it was warmer I would just be walking about in boxers and top…but its still too cold for that unfortunately.

I had no energy or motivation to do anything, so I flopped onto the sofa, narrowly missing Harley and Foxy who were both on the sofa, waiting for attention. I reclined both sides of the sofa and I was soon surrounded by all four of my fur babies, I didn’t however appreciate scrappy standing on my back because he’s so freaking heavy! It was nice though, I spent about an hour just laying in silence, with my babies all round me.

Managed to muster up the energy to make myself some dinner which was nice. I just spent the evening watching tv and chatting to friends online.

Today the sun was out and it was like a cool spring day, its been so nice. Before I could go and enjoy the sunshine, I did the housework as its been a bit neglected this week due to my low mood . I felt better for doing it and the place no longer smelt of stinky cat litter, which isn’t a good smell.

I got myself together and I took the dogs for a walk and we went on the longer route. I thought it a bit ambitious of me to walk the long way and it worked out that yeah it was a bit ambitious. I kept having to sit down and resting along the way, but that was ok as I got to just sit in be in the moment.

Once again when I got in, I stripped off the chest binder and my jeans and adopted the much more comfortable joggy bottoms and I rested for a bit with my babies.

I started my dinner early as its quite a time consuming dish and didn’t want to eat too late in the night. I made myself a chicken and leek pie and it was very nice if I do say so myself. I did the washing up as I went along so it wasn’t overwhelming.

I have spent my evening playing with the animals and listening to music. Which makes a change from having the TV on all night and its been a nice change.

Recently I’ve been conscious about the amount of time I spend on my phone, laptop, ps3 and watching tv and I know that it doesn’t always have a good effect on me. So I’ve been switching off my mobile phone, not going on the laptop every night, now watching tv every day. I’ve been mixing up my routine a bit more, cuz before I would watch certain things in the day, then spend all evening with the TV on and my laptop on.

I like people not texting and talking to me all day long, sometimes I just turn my phone off and sit and play with the dogs, or do some colouring or whatever. Not having to be plugged in 24/7 is very freeing, just to sit and be in the moment and to be in whatever is going on around me is nice. It means I’m not missing out on spending quality time with friends or the animals, I’m not missing out on moments because I am not being sucked into my phone. I am learning more and more how to just be and it is difficult but I have found that if one of my senses is being occupied then I can be in the moment, being still and quiet.

I know people worry when I don’t text straight back or whatever but they don’t need to worry because I am ok, I’m just going back to basics.

So after sitting here for about 3 hours writing, well not solidly I may add, how do I feel? I feel calm, happy and connected with myself. I feel hopeful and excited to see L tomorrow for her birthday 🙂

My life is by far simple but I somehow get myself through it, I will drag myself through this life kicking and screaming until the very end! I will not give up, that dark voice will NEVER win the war.

That is all for now, as my heads starting to hurt from looking at the screen. Glad I took the time to update this though, as its been a while and I always feel better for getting it all out and hopefully I will sleep peacefully tonight.

Peace out

Batman

Chronic pain and fatigue

Days like today just reinforces my limitations of daily life. Yesterday was great fun but today I could barely drag my body around. All my anger towards this illness surfaces on days like today and I’ve got to try and “deal/process” it which is incredibly hard, especially as I’ve had zero emotional support surrounding my physical health issues.

Before I carry on I’ll have a quick update about the last few days.

Sunday – Didn’t really do anything just slept a lot, I was hurting from head to toe. I did go to my brothers for a few hours for dinner, which was nice. When I got home I spent a little time on the laptop but then spent the rest of the evening playing Lego Jurassic world.

Monday – I struggled to get going in the morning, I managed to drag myself around to do the housework and have a shower. Just in time for my friend to drop her boy over, for some boy time. We took the pups out for a quick wee, went and got some biscuits and then spent the rest of the time watching cartoons 🙂 which is a morning well spent in my mind.

In the afternoon I met L and the boys, went for a short walk. It was too cold to go far. They spent the rest of the day at mine, we played with the pups, watched Frozen and did some colouring. It was so much fun, I love playing with the pups an Albert. Harvey is much harder to engage with, as all he wants to do is either play on my ps3 or play fight, which he’s starting to get far to big for now. He’s nearly 9 and getting taller and stronger, he has no interest in colouring in, or anything where you have to sit and use your imagination. I really want to find something I can get him to engage with, as otherwise I feel like he’s a bit left out. He just ends up playing by himself in his own world, but it’s such repetitive play, just the same thing over and over every single time he comes round and even when he’s at home. Its just finding something that’s not play fighting or gaming related to get him to do something else. Its really difficult because when I ask him what he wants to do, he doesn’t really know. He does have potential to do whatever he wants its just unlocking it and finding him a hobby or a different form of play. Autism is complicated, but I will not be beaten and I will get inside his lil brain to unlock him. It fascinates me so much and I really want to help get him involved when we are all playing, I want to get him included but its hard when he won’t join in.

Anyway they left about nearly an hour before I was leaving to go to my trans group social. Which was good as usual 🙂

So back to today, I woke up at 8 am had a pee and went back to sleep until half 10. I still felt really tired and so achy, as I’d ran out of Tramadol and needed to pick my prescription up from the chemist.

I barely managed to get a shower and get dressed. I dragged myself across the road to let the pups run around, I just sat on the bench watching them. I just couldn’t walk around, my whole body felt heavy and slow.

Dropped the pups home and dragged my ass down to the shop to pick up my Tramadol and got a few other bits I needed. While I was in there, I suddenly felt this weird feeling in one of my fingers, if felt like it was about to explode…it was just a burst blood vessel. So I now have a very swollen and bruised finger..urgh.

I just spent all afternoon relaxing, I did try and sleep but I just couldn’t! Which was fucking annoying, I was tired enough for a sleep but I was just in too much pain. I couldn’t get comfortable, I couldn’t relax enough 😦 stupid painsomina.

Just been binge watching things I’ve recorded on sky, whilst playing fetch with Scrappy and the laser pen with both of them, also been playing with the cats. I just sit on the floor and they all surround me 🙂 I love it. They make days like today a bit easier to deal with…well along with some cookies!

I don’t have much planned for tomorrow either, I have to wait in for someone to come and lower my shower pole for me. Its too high for me to reach when I’m sat on the stool and I can’t raise my arms above my head for too long.

I still feel extremely exhausted so another day of rest is probably a good plan. I don’t get too bored staying in these days, mainly because of the dogs but I’ve really got into gaming and all my Lego I have now. I have more hobbies and things I like to to, whereas in the past I hated being bored because I never knew what to do, I didn’t have much to do. I’m able to focus myself more now into a specific task. I hate being bored, it really effects my mood and makes it really low.

 Both my babies have bandanna’s now 😀 they look so cute!

Anyway that’s all for now, I need to rest my eyes from this screen.

Peace out

Batman

Happy, content and refreshed

The mid week slump was much needed, I was totally wiped out by Wednesday afternoon and I had to stop everything I was doing and just sleep. I think that this in part has helped with my mood, I feel good, happy and refreshed. It feels nice but a bit weird, just trying to hold onto it and not look to destroy it.

We had a really nice sunny day on Thursday, wow I felt great! So energised and happy. Even my neighbour said I look really refreshed.

It was the first day of wearing my sports bra all day and that also contributed to my good mood. It hurt like hell at the end of the day, my ribs an back ached so so much! But it was worth it, I felt great! I’m not going to wear it all day every day, will have to build up to it. Plus as its cold I can get away with wearing hoodies so my chest looks less noticeable.

Group was good on Thursday, M and I agreed that I could use the group as I did before, whilst also being a volunteer. Which is great because I get to help but also continue getting support, its a good balance.

M dropped me home, which cut loads of time of my usual journey. I got home, threw my bag on the floor, peed and grabbed the dogs and went for a walk down Baiter. It was so nice and the pups loved it, we caught the sunset which was so beautiful ❤

I was glad to have dinner already made, I just had to heat it up. I was achy and tired after walking the pups but I felt happy, I love being out with them and it was definitely worth the pain! I then played Lego Jurassic world for the rest of the evening. I’m cutting down the amount of time I spend online, just because I see so much crap on social media and it does have a negative effect on me. Plus playing my games or doing Lego feels much more productive and it makes me feel loads better then surfing the web all night.

Friday M and I went to the Weymouth group, the group met for lunch before hand and it was really nice. I couldn’t eat my lunch any quicker lol, it was so yum! The session itself went well, I really enjoy this group. M and I had quite a deep chat on the way home, which is unusual for us, it’s usually quite light and funny. But it was good though and very much appreciated.

I got in and took the dogs straight across the road for a run, I met my sister in law to pick up Leo for a few hours. They both needed a few hours without a screaming child lol…so I got him! He was tired and teething, after he played with scrappy for a bit I managed to get him off to sleep in his pushchair for an hour, so I could eat and relax.

I ate loads today, I had 3 crumpets and 2 pancakes for breakfast, I had a jacket potato for lunch, then biscuits and I had more crumpets and pancakes for dinner. Its the first day in so long that I’ve felt really hungry and have snacked between meals and I ate without even thinking about it and without it being such a huge stress.

After they picked up my lil chubs and robbed all my sweets lol! As they always do when they come over, but I hide the good stuff!! I played Lego Jurassic world for a few hours, I got sucked into and away from my head. I love it so much 🙂 makes me feel like I’ve accomplished something. I’ve never completed a game 100% before, so I’m already half way through now 53% 🙂

I got to bed and sleep just after 1 am I think. I woke up at 9 am, had breakfast and went back to sleep until midday 🙂 I felt nice and refreshed, ready for another day.

Did the housework, had a shower and got dressed. Not wearing my sports bra today though, my chest bones are still recovering from wearing it all day Thursday.

Took the pups across the road for a run and wee, before walking through to high street to the bus stop. Its a Saturday so it will be busy and the last thing I need is for them to stop and poop in the street lol! Because they are small people don’t see them, I don’t like walking through the high street on a Saturday let alone with the dogs.

I took the pups to their vets appointment, just for flea treatment but I prefer to have an appointment so I remember when they are due what treatment. Mr Scrappy has put on 200gs, he’s now 6.7kgs! She said he should maximum weight now as he’s nearly 2 years old and should be finished growing. She’s happy that they are both happy and healthy and that now for a while Foxy has been maintaining her weight, rather it then dropping up and down all the time. I think a better quality of food has helped so much with her in so many aspects 🙂

I got home and chilled out for a bit, I then sat and played Lego Jurassic world for a bit, going round collecting more Amber and gold bricks. Had myself some dinner, I had gammon that I’d made on a previous night, which was nice.

I spent some time making some cakes and cheese biscuits, which I always enjoy. I’m going to my brothers for dinner tomorrow, so will take some of each with me.

Spent the rest of the evening catching up on online, social media stuff and writing my blog of course.

How do I feel right now? I feel happy, content and refreshed. I can’t put my finger on why, its probably to do with a few things. But I’m not going to analyse it, I’m just going to enjoy it and hope it lasts.

Here are some pictures from the last few days.

 Pups loved their walk on Thursday and didn’t want to go home.

 Foxy taking in her surroundings ❤ she looks so peaceful and happy

 Typical pose for my boy, willing that ball to move lol.

 Foxy in her pjs, chowing down on treats 🙂

 My gorgeous boy didn’t want me to leave him.

 The view from the room for out Weymouth LGBT mental health group.

 Eating the last cookie, whilst waiting for M to pee before we left. I was feeling pretty goofy 🙂

 Pups all ready for bed, they are such lil posers.

 Marley moo loves sleeping in bed with me

 Harley checking out what everyone was doing.

 Home made cakes are the best!

 Home made cheese biscuits are the best!

 The pups waiting for anything to drop on the floor lol

 Harley checking out what’s going on as usual.

That’s it for now, will be around again soon.

Peace out

Batman